Hi Tina

Also so sorry you have been in hospital. I’ve had a bad cough, but fortunately although I still haven’t got rid of the cough I have been OK apart from that.

Do hope that this apart life is going well for you.

Love.

Mavis x

Hi Tom

Just caught up wit this. So sorry you got this news, and just before Christmas. Still like everyone else, I know you’ll kick it into touch again. And what advances those four years have bought. Think of the Velcade Three bravely battling to get it available for all, then the injection rather than infusion, and the other drugs. It…[Read more]

Hi Nick

Sorry, I haven’t been on for a few days.

I decided not to press for SCT partly because of other health issues, but mainly because as there is no guarentee as to how long a remission it would buy, I didn’t want to spend precious months feeling so rotten for an unspecified gain. Also there are a new arsenal of drugs coming on stream so I…[Read more]

Hi Harmony

Happy Christmas. Do hope it is a very special year. One thing about a diagnosis of MM is it does make you value each day. Perhaps in this way, it is one of its gifts!

As Andy says ” each day is a gift, use it well.”

Blessings to you and your family.

Mavis xx

Hi Tracy,

Welcome. Your response to the diagnosis and the treatment is quite normal. MM is hard to come to terms with and an ongoing battle. I do hope that the chemotherapy does its magic for you and that you progress steadily to a very successful SCT. Do be kind to yourself and find ways to make “being at home” more pleasant. I imagine you…[Read more]

Hi Nick

Just wanted to pop in and welcome you to the a Forum – sorry you have had to join us! Sorry you progressed to MM so quickly. How did you get diagnosed?

I just hope you do as well on CDT as I did. After six regimes I have now been in remission since summer 2012. Of my own choice I have not gone down the route of SCT. I am 68 years.…[Read more]

Hi Gill

I’m so glad you have called in to see us. I do hope your plan for how to cope with Christmas works for you. You are the important one in all this. I am glad though, that there will be family around over the Christmas season. They will all be feeling a gap at the table too, as it were.

Do hope you and your best friend can spent some…[Read more]

TEST

Hi Helen

I thought I'd come back to you on this thread! I think I missed this because I haven't been on so much. I feel bad because, as I have been feeling better I didn't want to be reminded of Mm all the time. I always remember how Bridget was so faithful supporting everyone in spite of how I'll she was getting. It is a challenge isn't…[Read more]

Hi Jo

Wanted to send. You my love and prayers. Go well.

Love Mavis xxx

Hi Helen

I was surprised you are needing so much treatment when, earlier, you were doing so well. What has happened about work?

Do hope you manage to knock the MM right back again.

Lots of love.

Mavis x

Hi Dai

I too am glad that your Consultant has come up with something after your disappointment about the Trial. I hope and pray that the Velcade and Dex will have a synergy that will work for you.

Lots of love.

Mavis x

Hi Christine and Chris

Also wanted to welcome you AND say so sorry Chris's treatments haven't worked.

SCT aren't the only way to go. Several of us on the Site are managing without and still keeping going! I see Chris was on Velcade and got núeropophy. I haven't had it, but have read that having it by injection makes one less prone to it.…[Read more]

Hi Karen

Just wanted to join others in welcoming you to the Site. Sorry you have had such a difficult time. Like you I find physio really works.

Very best wishes.

Mavis x

Dear Maureen and Ian

I do wish you well in your battle. I'm glad that you, Maureen, have the emotional energy to carry on with it.

I was misdiagnosed for months as worsening arthritis, when the fact I had reported weakening and falling (not results of arthritis) should have alerted GP. I also begged for Private Appointment with Consultant,…[Read more]

Hi Dai

Enjoy the break from treatment. Glad you are feeling a bit more like it.

Do hope your Consultant comes up with a good plan. At least she seems"on side" and you certainly keep challenging them which is good. I keep reading on the American Site of all these Trials for refractory patients. It's a shame we don't seem to have so many…[Read more]

Hi Jo

Glad to hear your treatment is going OK. How many more lots have you got to have. You know I watch you closely as another none ScT member of the Site!

I am going well, apart from an outbreak of cellulitis in my legs, not too serious, and lots of back pain. However, have just booked our flights to visit my daughter in Luxembourg in…[Read more]

Hi Pat

I'm with everyone else. I'm sure you will quickly adjust to retirement. There are plenty of other things to do in lif!
If you find time on your hands, it isn't for cleaning, or in your case shopping, but for doing the things you value most. I still have to take up the idea from Jet's Blog, to list the 50 things I want to do before I…[Read more]

Hi Clare

Welcome to this Site. Sorry to hear your Mum has Myeloma. All of us on here know how difficult it is to comes to terms with this diagnosis.

Before your Mum decides perhaps she should ask her Consultant how agressive her Myeloma is. She has obviously responded well to SCT. There are several of us around your Mum's age, who…[Read more]