Gaye, I know what you mean about avoiding the pain relief because you don't want to be stones out of your brain but if you start off with a low dose and see how that goes, you do soon get used to it and it WILL help until such time as your RT becomes effective.
What, if any, pain relief have you tried so far?
I'm on Oxycontin, 10mgs, twice daily and they haven't zoned me out even from the beginning.
When I was first diagnosed, I was given high doses of morphine straight away (and I did need it) but at first I was totally on another planet and having ahllucinations (I wouldn't want to take anything like this for recreation that's for sure!) I did get used to it and fared quite well later on with the Fentanyl patches until the pain subsided. Mind you, I did need to wean off the patches VERY slowly so's not to get withdrawal too badly – glad my Macmillan nurse was savvy and advised me well on this point.
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