[KWilsonParticipant]

Welcome.

No, I've not experienced spinal surgery but have had radiotherapy to my back.

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[KWilsonParticipant]

Welcome. I hope you soon get some answers to your questions.

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[KWilsonParticipant]

Welcome. Good that you've got an early diagnosis. Ask away with questions, it's a brill group and someone will always try to help.

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[KWilsonParticipant]

Welcome glad you got diagnosed early and have started treatment. Good luck.

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[KWilsonParticipant]

LOL re 'looks cheap'. I asked my neighbour to collect my prescription for me one month (it has to be ordered, our pharmacy doesn't keep it in stock) and she said "Oh, I didn't leave you medication on the step, I thought I'd wait until you came home." When I told her the one month's supply was £4,000 she said "Oh, my Goodness, if I'd known, I'd have driven straight home for fear of getting mugged!!!"

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[KWilsonParticipant]

I always take mine in the morning with my Dex. Mind you, I'm sleepy even when I'm on my week 4 of the cycle where I don't take it at all.

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[KWilsonParticipant]

Nope I definitely wouldn't risk taking anything else alongside the prescribed drugs and the interactions can be quite drastic sometimes. I do have faith in complimentary therapies but under these circumstances, they are not something I'd want to take.

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[KWilsonParticipant]

He seems to have a positive approach and if/when the effects kick in then hopefully he will rest up and listen to his body.

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[KWilsonParticipant]

LOL, there's a sort of irony in being relieved to be told that we are 'just' old and creaky and finding that reassuring!

Glad it was nothing more complicated.

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[KWilsonParticipant]

Well, licensed or not, in the circumstances, could your consultant not authorise sc injections? There are lots of drugs that are given on a 'named patient' basis because they aren't licensed, surely the method of administration should be the same? Worth an ask?

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[KWilsonParticipant]

I think asking for an x-ray is not unreasonable and should help your consultant decide what's going on. As said above, the pain should be kept under control wherever possible and so do discuss this too.

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[KWilsonParticipant]

Great progress, well done! Keep up the good work.

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[KWilsonParticipant]

Gosh, no wonder you're confused and I can relate to the 'bad news' on some of the sites. You're best to stick with sites like this one with up to date and accurate information. I'm 9 years post diagnosis and I know some on here have been patients longer than that.

It is a very frightening thing at the start but you will get in the swing of things and the ups and downs – I can understand your worries with such small children, it must be such a concern all round.

However, all is not doom and gloom and the treatments do work so take each day as it comes and don't try to take in too much at once, there's a lot to learn.

Good luck on your family's journey.
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[KWilsonParticipant]

Have a great time – you deserve it! Well done both.

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[KWilsonParticipant]

With regard to holiday insurance, there's a list on this site of companies which will give you a quote for people who suffer from illness and more particularly, myeloma. You need to ring round as the prices vary wildly, also, I seem to have seen other posts regarding people who had good quotes from different companies so yes, you can get insurance but SHOP AROUND!

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[Author]

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