Hi Rab
Welcome to the site. Sorry you have to be here but I guess we are all sorry to be here. It's a warm and friendly place to be.

The good news is as the letter states your in complete remission so well done.

Zometa is a bone strengthening drug that also has shown to work against myeloma. I'm sure you'll of been prescribed it to prevent…[Read more]

Hi ner
I'm sorry that your mum has been diagnosed with MM. Welcome to the forum that all of us would prefer not to be members of.

Everyone's journey with this awful disease is different – but the starting point can be very similar – I too started off with back ache and it took 18 months for me to be introduced to the world of multiple myeloma.…[Read more]

They should let me in the under fifties,then I could really let rip,and I feel like it after the day we have had,people seem to think because you have grey hair,you should not have an opinion ,and being 5 foot nothing does not help.

Just so angry,have had a few beer,s to relax me,but its not working.will have to try vodka,works for you…[Read more]

Hi Debs

Well said, that young lady was my inspiration through all my treatments first up with good advice and not short to give that comfort as and when you needed it.

Reading Pamela's Post when she was giving advice I could feel her arms giving me comfort also.

You made me Happy and you made me Believe I can do it and for that Young…[Read more]

Ps R/T is Radio Therapy the tell me its good for the bones 🙂 xx

Well Done Garry you have beat my 16 days of "Lockdown" stay well and in a few months you will be in Top(ish)Form 😀

Even when you are home Garry you are still recovering so take it easy and sleep when your body tells you.

Well Done and Good Luck

Tom Onwards and Upwards

Hi Ann and pete

Yes early days but its gonna be Ok 😀
Do you know when i was off I dint like the telly on nor radio I used to sit and read or go on Commie in between sleeping lol.
You should try and borrow a "Shooting Stick" for Pete I was given one and i carried it when out and when my back was bad or I felt tired ext I popped it open and…[Read more]

Lol Eve am sure only you could get away with this one Lol al probaly get told orf lol xxx

Love Tom xxxx Lol

Hi Sandie

Am pleased your Mum is getting better and hope the next round of Chemo is good for and to her 😀

As for the steroids well we all differ in what and how we cope with treatment but am sure am safe by saying a weight gain is civen on steriods (i did but i had lost a lot of weight due to MM (and I thought it was my diet ha ha) as for…[Read more]

Hi Tom

His pubic hair never came back. Lol.Eve

Hi Peter

Since 2003 you have done very well pity about RT but if it solves the immediate problem,then it must be worth it.

10 years to anyone on here is all good news,the fact that you now need more treatment is a bit of a bummer,but that's what we are here for to support each other when times are hard,age does not come in to it.
Slims…[Read more]

Yer correct you lot its nice to be nice BUT Lol, and Eve am sure you shouldn't tell us Slim was having his curly's played with Ha ha xx

Love Tom

Hi Ian

well am pleased to seem to have found what it is hope the reductions work and your soon back on your feet (no pun intended Lol)

Keep strong

Tom Onwards and Upwards

Hi Sue

Well Sue the reason they say oh,and walk away,or go in as you come out,is they cannot face it and by looking away they think it will not happen to them,but when something like this happens to them,who do you think they will go to for support and advice,I am sure I do not have to tell you the answer.

I had a conversation with a…[Read more]

Debs

I was devastated to hear about Pamela. Everything you say about her is true and more. She was a truly inspirational lady who helped so many people – and as you know I was one of those she helped. She and others brought me through a very bad time. She gave so much of her time and love to others my sympanyth goes to Trevor, Sam and Beth.…[Read more]

Tom
Your right there are some right dickheads out there wrapped up in their own little worlds where nothing matters as long as they can breath, drink, smoke or do whatever THEY want. But and it's a Jennifer Lopez sized BUTT there are lots of people who do care. The problem a lot of the caring people have is vocalising their caring side. Some can…[Read more]

That's what I've been led to believe Tom.
Mind you it's still a long way off but I'm hoping to get my free Revlamid 😀

Hi Vicki sorry your not well, but it's great that Colin is well enough to look after you for a change. Hopefully you'll both have a long time to recharge your batteries now and get back to some sort of a normal…[Read more]

Hi Tom

We only live 20 miles from France,and they are so moterhome friendly,believe it or not its cheaper to spend a month in France,than a week in this in UK.So if we manage to go away it will be France.

Now Slim looks well,if anyone ask how he is I say fine,because if truth be known they do not want to know!!! And they don't want to know…[Read more]

Hey Eve when you go off in the Moterhome bring yourself and Slim down to Sunny Scunny we have a nice place for the capming fraternaty pretty near us in Sunny Scunny 😀

Andy

I was at work today when some one asked me how i was doing and as i started to tell him another workmate ? walked in and heard our chat and said "Oh are we on about…[Read more]

Hey Girls and Guys

As for lack of saliva!! its been a long time since i was in that position but I used Chewing Gum 😀 and I know a lot of you Ladies wont use it? but it worked for iccle ole me 😎
As for the food I was some time before i could eat big what i call Sunday Dinners, but it came back after about 6 months post SCT with a…[Read more]