Hi Rob
And a warm Welcome to you and well done to you.

After my SCT in 2009 (Dec) I went onto Zometa for 2 years am now in remission and drug free 😀
The Zometa might give you symptoms of Flu but that will soon wear off.

Good Luck and well done so far 😀

Tom Onwards and upwards

Hey Andy thats good so you say if you reach a a point then the drug company pay ALL cost of the drug??

Tom Onwards and Upwards

Hi Jean and Frank
Your welcome and hows things doing ?? you dont want to sit in hospital watching bad movie's get Elaine on Ipad for Face Time it will do you both good Lol.

You all stay well now and Dai you are correct.
We should have a thread Just for you dai as your words are words of Comfort and Wisdom my Friend 😀

Love Tom Onwards…[Read more]

Hi Georgina

you know I cant answer for your dad but i can tell you what I just might do if I was offered a 2nd SCT First I would look at how long i got in remission with the first, and 2nd how good the alternative is Ie the drug only route, when i got better from my one and only SCT I said openly that I wouldn't have a problem having a 2nd, but…[Read more]

Hi you two
Pleased its going good good luck for resuts on that dreaded BMB

Tom Onwards and Upwards x

Hi Dai.
Thanks for posting Pats article. I read it on twitter, I follow him as he has some great insights and info, and found it to be very apt. I have found that those around me look at me and think I'm beating MM because I "look well" but I'm not. I know it's a fight I can't win. I'm living with MM I can't even get to SCT I'm on drugs…[Read more]

Thanks Mavis and Tom.
I've been told by my specialist nurse if I make it to cycle 25 Revlamid will then be supplied free for me to the NHS. Now that's a goal to aim for. 🙂 Though it'll cost the NHS a canny bit to get me there lol.

Andy on Dex :-/
😀

Hi Louise

Not a problem its now a wait and mor wait 🙁 but in the end it is worth the wait 😀 , your dad and you all will be thinking will it ever get better (we did) and one day your dad will wake up and feel 100% Better, not his old self am sorry to say but Better 😎 and that is what all this SCT was for its good to feel that better…[Read more]

Hi Peter
Now I am confused (know it dunt take much lol) am now not sure who to look for on FB lol, is it Stevenson or James ha ha.

Tell your Middle Granddaughter to add me to yours and you can find me as tom.lappin.5 Me thinks but av got a photo on mine so you will spot me he he.

I also dont do good as its not as much fun.
Catcha soon…[Read more]

Hi Sarah and Henry

Its always strange when Meds change with no discussion :-S and am sure you do always ask?.
But I was on Zometa and had that for two years post SCT, just had flu like symptoms for a few of the treatments.

Sarah, Frank keep eye out for Jaw problems as it can have problems on the Jaw bone.:-/

Keep well.

Love Tom…[Read more]

Hi veronica and Georgina

No problems please ask away about anything.

I was diagnosed in Jan 2009 first line of treament was CTD I had 5 courses of it, that led up to my SCT in December 2009 in Castle Hill Hull.
Now in remission and Drug free now 😀 and I now only go see Consultant every four Months.
Dont forget ask away things i cant…[Read more]

Hi Sandie

Now do I say well done in having Osteoporosis :-S Yes i think I should 😀 .
Its not good but its Better than having MM :-S .

I think you should ask if R/T will help ease the pain in your back??, let us know what exercise they say you can do as am sure it will be same as us MM folk should be able to do 😉 .
Am Pleased your Mum…[Read more]

Hi Ann and pete

Yes thrown out on day 16 I was 😀 but am sure someone on here has my days beat ??

Hope your Home today Peter and let Ann have that week off you just might need it (I did) and when Elaine went back to work she left me a flask and Pack up for me to eat (if i could) till she got home (Bless her )

Tom Onwards and Upwards xxx

Hey Andy and Steph

Looks like it will be another nite out for you two 🙂 to celebrate
Shame you didn't see keith, I also wish him Good Luck and fingers crossed that the treatment works for him
Tom Onwards and upwards x

Hi Georgina

Well I haven't had a 2nd i have only had one.
Would I have another?? am not sure Georgina as I understand treating MM with Drugs with No SCT is a good way to go I think at the moment.
Sorry to hear your Dad's SCT has failed.

Good Luck in the Choice your Dad makes.

Tom Onwards and Upwards x

Hi Maureen and Ian

Good Luck to you Both and I hope this Cycle passes with none or little problems am pleased the bloods were Ok

Tom Onwards and Upwards xx

Hi Gill

I understand what you say about your Cat am same wi Dog "the Yorkie" 😉
as for Chest Infections well I think thats me also with this Bloomin MM.

Aint heard of a "Lung Nodule" ? what are they doing with it then Gill and what do they about it??

Stay well
Love Tom Onwards and Upwards xx

Hi Louise
Its not a problem, your dad will slowly feel better but dont expect it to be soon it will take a bit of Time even when he is out of Hospital.

Am with you all on this one.

Love Tom Onwards and upwards xx

Hi Sarah Jane

Stem Cell Harvest am sure you wont find that too much of a problem if like me you should find it pain free.

The GSF injections well I had to go into the Day Unit and get a nurse to do mine ha ha Now way was I sticking Myself so i wish you good luck with it. (BTW it dint hurt its just me) during the Injections i had about two…[Read more]