Hi Dai

And a Well done from this corner of our world 🙂
I never asked about my tablets cos am still not on anything and am free to roam for another four months 😀 .
You keep up the Good Work and as the bad bits drop in I know you will roll with them like a Pro.

Keep well Dai its soon spring 🙂

Love to you and Janet

Tom Onwards…[Read more]

I know that feeling Tom! It's great news and will hopefully be repeated many many times.

Felt like the first day of Spring today. First blob of frogspawn in the pond. Spent the afternoon out in the sunshine. It really did me more good than any pill!
A bit different to last year when I was in the middle of SCT…..

Michele x

Hi Tina

Well done for yesterday great result 😀 except for the rash 😎
Keep it going.

Love tom Onwards and Upwards xx

Chris Frakn is also a fit 69 year old. We have been told that they won't do the STC after 70 which Frank will be end of April. At the time he said it was discrimination and as long as he was fir he would fight for a second SCT. Now I'm fighting him for the first one.

Take care Chris and go from strength to strength
Love Jean x

Hi Chris

In December when cells were harvested they told us that the stem cell co ordinator would come to talk to us, but she was called away. Every time we have been to the hospital we are told that she will be in contact very soon. We are still waiting. I wanted to,phone her but as Frank is having second thoughts he told me not to. We go…[Read more]

Hi Chris

In December when cells were harvested they told us that the stem cell co ordinator would come to talk to us, but she was called away. Every time we have been to the hospital we are told that she will be in contact very soon. We are still waiting. I wanted to,phone her but as Frank is having second thoughts he told me not to. We go…[Read more]

Hi Andy

Well I had them twice 🙁 once as a child then next when i was late 30's went to Dr and he was looking at my body rash and I looked over my shoulder and said My wife says its Chicken Pox?? and he replied you should take more notice of your wife because she is correct :-0 so six weeks of work 🙁

Tom Onwards and Upwards 😎

Before I was diagnosed with MM it was rare for me to even take a paracetamol let alone anything else. I had and still have the idea in my head that if the body can fight something off on its own, let it do it!

However, I'm not stupid and knew that I had no choice but to take all drugs prescribed to me when I was on CTD and during the…[Read more]

Hi Tom.
I'm on just in case anti-virals because I've never had chickenpox! There's a lot of it about at the moment and its very dangerous, or so I've been led to believe, to us MMers. If I come into contact with anyone with the pox 😉 or anyone who's been in close contact with someone with it I have to get along to the hospital straight away. So…[Read more]

Hey Nice Post, I like most just take the drugs that am given ask Q's never felt the need ? But Dai you are correct too many drugs taken for a "Just In Case" :-/

It might be better to wait for the "Just In Case" symptoms to turn up???
I will ask if and when iback on the Tabs

Tom Onwards and Upwards

Hi Helen

Well I hope the "No treatment Change" last for a bit, Have a good trip To Barcalona.

Love tom Onwards and Upwards xxx

Hi Rob.
I had the pump when I was on PAD it wasn't too bad once i got used to it though I too missed out on the red pee. I only had two cycles of Pad or it may of been three but it didn't happen for me 🙁 side effects wise I got a little numbing in the end of my fingers like you get when you've had your hands in water too long.
Hope everything…[Read more]

Hi Vanessa
I'm sorry Stewart is having such problems with everything – I remember having problems when I was on CDT and being in and out of hospital regularly with back problems and infections in my case. I know osteonecrosis of the jaw can be a side effect of Zometa and PE is a side effect of thalidomide. I was warned about them both at the…[Read more]

Hi Carryanne.
Welcome, belatedly, to the forum. I hope you have a long and successful stay. I'm one of the rarer cases with MM. I was diagnosed Oct 2011 and told I'd probably be having a SCT in the spring 2012 – well it didn't go to plan and now I'm on my 4th treatment and at last I'm making a little progress month by month. Auto SCT and Allo SCT…[Read more]

Hi Ali I have PM'd you. Thanks
Love jean xx

Vikki that information is very helpful. I didn't know that about the cleansing. Thanks. Hope Colin goes from strength to strength

Love jean x

Hi Carryanne

My hubby finished SCT in December. There was one month when both his feet and legs swoll up. When he phoned the unit they told him to go up. The doctor gIve him agood examination and sent him home. Eve told us to raise his feet and that seemed to do the trick. Hope things improve

Love Jeax

Thanks for that Megan and good news for Phil. It's always on my mind and just wish we could get it started. We go on Thursday week to hospital and this time I am going to ask to see consultant – even if we have tow wait, I have such a sting feeling that she is deliberately avoiding us – hope I'm wrong but will see. I also emailed Ellen so waiting…[Read more]

Hi carryanne

Your welcome and yes we do have Grandkids 🙂 6 four boys and two girls and we are hands on with them all.

How did i cope?? well I have to admite I have never done much differant with the Kids apart from when I was proper ill and i couldn't do anything at all and it was all left to my Young Bride (Elaine)

You will find it…[Read more]