tom replied to the topic light chain myeloma in the forum Newcomers 12 years, 9 months ago
Hi Babs
Thats a fair distance to travel when you feel a we bit weary 🙁
Yes this site is a Godsend for us all MM'ers and Those great people that look after us when we aint too good 😀
Hope your doing well on your treatment
Love Tom "Onwards and Upwards" xx
jmsmyth replied to the topic new arrival in the forum Off topic 12 years, 9 months ago
Hi Jo Jo
Thanks. He is so lovely but his nails are so long that he has scratched the face off himself ? they have put mitts on him,, they hope to get home tomorrow but as Angela is diabetic they may keep her in a bit longer. She won't like that as she wants home so badly
Hope you are well and truly over you chest I fiction
Keep…[Read more]
jmsmyth replied to the topic pamidronate in the forum Side-effects 12 years, 9 months ago
Hi John
My hubby had Zometa for 2 years back in 2006. He then started it again in June and on both occasions he has had no side effects at all. Hope all goes well for your wife
Love Jean
tom replied to the topic pamidronate in the forum Side-effects 12 years, 9 months ago
Hi John
I had four weely infusions of Zometa for just over two years, at the start I got Flue symptoms nothing too bad, its just that I was pleased when they finnished as my veins were getting harder to use :-S
But that also worked for me.
Good Luck
Tom Onwards and Upwards
tom replied to the topic Phil's SCT Journey in the forum Treatment 12 years, 9 months ago
Hi Megan And Phil
When I had my SCT and went back for tests at Castle Hill in Hull I was booked in and put in a side room then a Nurse used to come in and take my Bloods/Temp then take me through to another waiting room and put me in another side room and then the Dr came for me took me into his room and told me all bout my results, On the…[Read more]
jmsmyth replied to the topic new arrival in the forum Off topic 12 years, 9 months ago
Hi Pat and Tom
Thanks for your good wishes. Just back from hospital and they had to prise him out of my arms. They have called him Benjamin Francis (Francis after Frank). Too adorable
Pat Beatrix is a wee poppet – she is so tiny, dear love her. I'm sure you can't wait to meet her. This 'face time' is brilliant. I use it all the time to see…[Read more]
tom replied to the topic Short but sweet in the forum End of Life and Grief 12 years, 9 months ago
Dear Sal
Yes I recall your posting about Jim, and am so sorry he lost his Short fight with this dreaded Disease.
I send my condolences to you and your Dad's (Jim) Familay and Friends.
Keep in touch if yopu wish
Love Tom xxx
tom replied to the topic new arrival in the forum Off topic 12 years, 9 months ago
Hi Jean
Wow he is a Little Cracker, one Handsome little Lad, I bet you are all well chuffed, now go out and enjoy the shopping we dont want to see him in a frock now do we.
Love to all 😀
ps can you just give him a wee slap as the devil has more hair than I lol 😎
Pat Baby Beatrix is a cutie, so so Tiny aww Now am gonna have to…[Read more]
tom replied to the topic LUMBAR KYPHOPLASTY in the forum General 12 years, 9 months ago
Jaqui
I hope all goes well on Friday and I am sending you Cyber Hugs to help you get through this difficult time.
Love and Hugs Tom xxxx
tom replied to the topic So far, so… in the forum Treatment 12 years, 9 months ago
Hi Dai
Hey am pleased your results are getting better My Friend 😀 and its a shame about having to wait for more results as i know its a worry having the wait.
So as you say Carry On 😎
Love to both you and Janet
Tom Onwards and Upwards x
jmsmyth started the topic new arrival. in the forum Off topic 12 years, 9 months ago
Hi all
Our new grandchild arrived this morning, a little boy 7lbs 1oz. After 4 grand daughters we have a little grand son (photo attached) We are all so delighted. He is in an incubator but is doing well. Parents over the moon 😀 Cant wait for visiting time.
Hope you are all good
Love Jean x
jmsmyth replied to the topic Short but sweet in the forum End of Life and Grief 12 years, 9 months ago
Dear Sal
So sorry that your dad has lost his battle with this horrible illness. I know it's difficult and maybe hard to hear but it is a blessing that as you say it was "short and sweet". To know that your dear dad is not suffering must be of some comfort to you. My thoughts and prayers are with you and your family
Love jean x
jmsmyth replied to the topic Ian adn CTD in the forum Carers 12 years, 9 months ago
Hello Maureen
I am so glad to read that Ian is progressing and glad that he may walk again. Everything crossed for him. When Frank was on CTD they had to reduce the Dex as he had bad side effects. Great to hear that Ian is handling it well. My very best wishes to you both
Love Jean x
tom replied to the topic So Alone in the forum End of Life and Grief 12 years, 9 months ago
Hi Sue and Michael
Am sory the snow didn't allow you to get to the Hospice and I hope you get soon now the weather has got better.
Am pleased you found help with the District Nurse and Mac Nurse,I hope the stair lift Lifts Michael's spirits as am sure it would be great to get into another room.
Its a Bloomin Shame you are left at the…[Read more]
eve replied to the topic sct looming but pp plateau at 14 in the forum Treatment 12 years, 9 months ago
Hi Vanessa
Once you have had SCT you are again randomised for maintenance or not. My husband got no treatment,at first I felt he had lost out,but it does give you more time away from the hospitals.
He now goes for Zometa every 2 months boods and urint taken for trials plus we try to get appointment with consultant the same week,so that…[Read more]
tom replied to the topic lets have some fun in the forum General 12 years, 9 months ago
Hi Steve
Good luck on cycle 8 and I hope the side effects are low.
As for trying to remember what it's like without the side effects well trust me it won't be long till you can't remember side effects.
Stay Well
Tom Onwards and Upwards
tom replied to the topic Happy 2nd SCT Anniversary in the forum General 12 years, 9 months ago
Hi Phil
Sorry you have The Bug, I hope it's soon cleared, and may I say Happy 2nd Anniversary, and hope you have a healthy run through to your 3rd.
Tom Onwards and Upwards
Michele replied to the topic Spam on the forum in the forum Off topic 12 years, 9 months ago
Thanks for doing that Stuart.
Is there any way a more secure firewall of some sort could be put in place to stop these scumbags registering?
Michele replied to the topic All new to me, and very scary…………. in the forum Newcomers 12 years, 9 months ago
Hi Grayham and welcome to the site.
We don't mind having an Aussie join us.:-D
I'm really glad you found Myeloma UK. It's a brilliant site and it definitely helps you to understand what's going on in the MM world.
I was diagnosed in May 2011, had 6 months of CTD and then a SCT in February 2012. I recovered very well and am now living life to…[Read more]
tom replied to the topic Update on kev in the forum Treatment 12 years, 9 months ago
Hi Vicki and Colin
Well snow or no snow am sure you prefer the Countryside to town 😀
As for the BMB "Gas and Air" wow I just get a Local Injection then they dig in Lol, and all I want to have is a few large Vodka so that when the Local wears off am in a drunken state lol, am sure it will be Ok but I do feel for you both as the wait is near…[Read more]