Hi Keith it was good to catch up with you yesterday. It's always good to see you. Though obviously I'd prefer it to be somewhere other than the day case unit. I hope your transfusion went ok and your energy levels start to pick up a bit.
Patrick was having trouble keeping his HB's up and he like you was having regular transfusions. I hope his…[Read more]

Hi Tebebe

Sorry you had to join 🙁 us but a warm welcome anyways now you are here.
Seven Children wow I have three Sons all grown up and yes I/we found it pretty easy to tell the kids as we had been through it before with my Young bride (breast cancer) but I know its hard, it depends on how old the Children are as to how much I would tell…[Read more]

Hi Andy and all

Pleased your doing Good Andy and I as a MM'er super glued my fingers crossed lol (only joking lol) your doing well Andy and am sure its a blessing for those that have had to start new treatment to know people like you do well with it 😀

Keep going strong My Friend and stay strong.

Tom Onwards and Upwards x

Hi Peter

And I got this in my Email :::::

PeterJames has posted to a discussion you're monitoring:

Subject:
RE: Harvesting for SCT

Message:
Hi to one & all out there
Came into the Christie yesterday , set upon straight away , Hickman , line installed & drugs into me in quick order
Late pm had my dose of killer chemo , but…[Read more]

Hi Lesley and Jill

Sorry I cant help on this one, Just wanted to wish you Luck.

Love Tom "Onwards and Upwards" xx

Hi

It is so nice to see such positive reply,s to Mari.No matter how many people tell you there is light at the end of the tunnel,you find it hard to believe until you can see it for yourself plus we all know how this illness can change to become a fight for your life.no matter how old your children are,you still worry how things will turn…[Read more]

Hi

I can only tell you about my hubby,admitted with AKF,but kidney function improved,after a few blips,pneumonia which left him with wholes in his lungs plus blood clots,resulting in injections for 8 months, finally,referred to Kings for SCT.

Had SCT,but a reduced dose of chemo,enough to do the job,it worked SCT successful .
He had 2…[Read more]

Hi Tina
I have also started on revlimid and aspirin on Monday and hoping for a long remission,I was told I will be on it as long as my bloods don't go low hope you have a long remission Etta ..

Hi Tina

And a well done young lady,am sure you will get a Long Remission out of your treatment, good luck Tina.

Love Tom Onwards and Upwards xxxx

Hi Tina

Great to hear about the PPs. It is always encouraging to read positive things. Good luck for the trial everything crossed for a loooooong remission 🙂

Love Jean x

Hi Liz and Kev

Yes Elaine and I are doing great Thanks 😀
Kev will have same as Elaine the "Tattoos" for his R/T Elaine had 25 sessions of R/T in 2008 and did pretty good with it 😎

Its like your rink here in Sunny Scuuny am afraid, I just hope the dog dunt pull me over when i take him for a walk Lol.
Good Luck and am sure the RT will…[Read more]

Hi All

Well who has put a Great Photo on 😀 you both Look great and yep you scrub up real well (not that either of you need to )

Love iccle ole me xxx

Hi You two

Well I hope he can get infection kicked out and get on with treatment,its bad this time of year no matter wher you are some one is infected with somthing and are only to keen to pass it on 🙁

It looka like the revlimid Is working 😎 so it is good if infectios is sorted.

Get well Kev and keep away from those with germs…[Read more]

Hi Rob

Do not worry. About the tube it is the least of your worries,one would have been fitted later for SCT it actually makes your life a lot easier,on normal treatment they go in to veins every time often they collapse,some like my husband it takes a number of tries,so a centreline sounds much better.

If you are looking at all…[Read more]

Hi Vicki & Colin..
Hope you both had a good Xmas and New Years.
Glad to see Colin is recovering nicely post SCT but don't let him do too much. Obviously I don't speak from experience but from what I've read 😉
We really hope this year will be great for you both and you get to enjoy yourselves. Holidays, parties let the good times roll :-D…[Read more]

Hi Helen.
Just seen the photo you posted 😀 looking good.
Hopefully you are feeling good too and had a good Christmas and new year.
I see you are having trouble with food re Revlamid I don't find it a problem. I have a problem with cyclophosphamide putting me off food and making me feel nauseous. I have 3 courses of cyclo. per cycle and my…[Read more]

Hi liz

Now Slims in remission and off treatment,I find I am posting less,but I like to keep up with what is going on also if you have not looked at the site for awhile you do loose track of what is happening to people,plus all these new people coming on,if they felt anything like
I felt when Slim was first diagnosed,they need lots of boosting…[Read more]

Hi Rob

Just to welcome you to the site and wish you well on your MM journey.

Wi th you being based in London you will have some of the best experts and treatments available ,we are Kent ,but my husband went to Kings for his SCT,also to. Have a choice of trails,my husband did MyelomaX1 trials,CTD randermised,which did not work,so straight on…[Read more]

Hi Everyone

Well we made it,and when I learn how to put pictures on here,you might see some.

Has taken a fair time to get over the flight home,at the moment Slim is doing better than me,he,s waiting on consultant for the ok,it's a bit of a worry every 2months wondering if its all ok,as Slim is one of these people that it no longer shows…[Read more]