Hi Maureen

My husband did 6 cycles after CTD failed for him,tolerated it very well,went on to SCT and is now in remission .hope every thing goes well with your husband.

Time soon passes,the worst thing was having to go to the hospital bloods in the morning then home and back again twice a week,use to look forward to the week off.Eve

Tom I got from MMUK I think it was Ellen that I emailed. It got very tattered so I got another one. I find it very useful it has 10 different section, some examples are key myeloma terms, appointments, questions to ask your doctor and for me blood tests results. It gives you what the normal readings on and has a section where you record your…[Read more]

Hi Paul
A warm welcome to the group, it's not an easy task Paul but you can do it, I did it in 2009 bit rough at times but trust me well worth it.

Good Luck in your road to remission.

Tom Onwards and Upwards

Hey Keith
You know am sorry it never worked 🙁 you have been through the mill with it.

I hope the CDT works for you, just to let you know it was my first attack on mm was that and it put me into remission, I hope it works the same for you.

Good Luck with it.

Tom Onwards and Upwards

Hi Lesley

Your more than welcome, now don't forget any question you feel you need to as then fire it in here ????nothing is too much to ask you now you are here will always have an ????to bend.

Love Tom Onwards and Upwards xxx

Hi Lisa and Mick

We have a few on here doing great and not having a SCT and I think the Dr's are nw thinking that its best if we don't have one ? .

I was a bit washed out during my CTD but it came back,not same as I used to be but doing good.
Stay well .

Love Tom Onwards and Upwards xxx

Hi Lesley

Its not a walk in the park to be honest BUT it is doable as we say I have had mine since 2008 (ish) CTD then SCT in 2009 and am now Drug free and doing well8-)

Stay fit and take it one day at a time.

Love Tom Onwards and Upwards xx

Hi Megad and of Course Phil

Well Done you two, sat at home as proud as punch and so you should be 😀 .
Now I need to say this first, Now you are home Phil its not all done Please take your time and keep your temp checks regular as it will take you a few more months before you feel the difference, if like me I woke up one morning and knew Just…[Read more]

Hi Keith

I like everyone else hope that this is a blip and that you get good news from the doctor today. Good luck and keep strong, you have so much support here.

Love Jean x

Hi Lesley

Yes, it's a terrible shock to be diagnosed with MM and frightening too. I hadn't got a clue about and had never heard of it before May 2011.
It felt as though my future life had concertinered and I honestly thought I only had a couple of weeks to live. I was only 49 at the time too.

Let me assure you that this is NOT the…[Read more]

Hi Sue

How are you,??? Just to let you know,we are thinking about you,do not worry if you cannot reply,everyone understands.Love Eve

Hi Tina

Would agree with Tom,you have along way to go,Slim has the same problem,try sucking sweets helps with moisture ,Slim is getting a bit better,but sometimes he goes to speak,and because his mouth is so dry,he does not make sense.Always carries drinks with him no matter were we go.Eve

Hi Jo

How are things going??? The Velcade is not so bad,just all the hospital visits !!!

Hope you are managing to get out and about,and results going in the right direction Love Eve

Hi Lesley

It is very frightening

when you get that final answer,but we felt after months of not knowing what my husband had a sense of at least we know now,although I did burst in to tears at the doctors surgery anger was the next feeling why did the doctor not listen to me when I told him how ill Slim was,it took another doctor in the…[Read more]

Hi Stevo

Its been a long time since I took them and used to take 10 Tabs @ 8 am and another 10 Tabs @ 11 am, was I bad with them ?? Lol I once asked the young bride (elaine) if i was bad on dex? and she just tapped my arm and said "Its over now your better! and walked away ? am sure that means I was Bad lol.

as the Ladies say its like having…[Read more]

Hi Steve

When are you taking the Dex,should be early in the morning as possible,it did make Slim argumentative,so certain he was right,plus became anxious at my driving luckly he did realise it was the Dex,It gave him a good appetite for a few days,so that was good.
The bad thing about it,is it mask infections,so you have to be careful and…[Read more]

Hi Peter

Well av seen a manky Butchers dog more than once to be fair Ha ha, well you will lose a bit but trust me it will come back with a vengance lol

I hope your Young Bride has a great Birthday and am sure you should be doing something on the 17th that will keep you out of bother.

Catcha Later and Take care

Tom Onwards and Upwards

Not a Problem Lisa hope Hubby (dont know his name? ) is soon better and bear in Mind the treatment and side effects differ from each of us.

Where is Hubby (name) being treated?

Love Tom "Onwards and Upwards xxx

Hi Peggy

Am gonna Google "Smeegle" he he ?

Hope ur home now and all settled in? sorry you had a bad time but am sure you will get better soon, stick with it, it works.

Love Tom Onwards and Upwards xxx

Hi Lisa

Sorry your hubby is not feeling so good and hope he starts to improve soon. When Frank was on CDT for the whole time he had the most horrendous rash in his groin. They tried everything g to get rid of it. It did not go totally away but eased a bit, and then went away when he finished meds. I know it took him some time for him to feel…[Read more]