Great news Helen.
Your posts are similar to mine (fortunately) more positive and upbeat. Please don't feel guilty about good news. I think it's important for us to tell of good news. As you say it balances out the not so good news and hopefully encourages those on the road behind us.

Remember, we were the frightened, poorly ones once and have…[Read more]

I sometimes, but not always have a bit of a sniffly nose a few hours after my infusion and then a few aches 2-3 days later.
It doesn't last long at all and is a very common side-effect.
Shows it's working!
🙂

Hi Dai.
That C.diff is really hanging around causing you problems. Really glad that your starting to feel better. Glad that you can start the bendamustine after Christmas and your birthday. Hopefully you'll be home in time to enjoy Christmas, I was discharged last Xmas eve, and your birthday.
Take care Dai.
All the best to you and Janet…[Read more]

Hi folks.
Thanks for all the replies.
It does help boost morale that you all take time out of your own personal battles to read and reply. I read the posts all the time but sometimes find it difficult to post my news or give my insights when there's so much good news going around and so many new members on here with me being a difficult case.…[Read more]

Hi Sarah Jane.
I'm on RCD though not on the trial. I'm on cycle 10 🙂 and my PP's are only creeping down at 21 last reading. I've been on treatment for 14 months now! and that's the lowest count I've achieved.
Whoops I've gone off course of what I wanted to say lol. I've found it's the cyclophosphamide that causes the nausea with me. I've been…[Read more]

Hi Keith.
You sure are going through it at the moment! It shows how careful we have to be and to monitor our temperatures regularly. Things can go down hill really fast – NEW MEMBERS PLEASE NOTE – and it's important to ring in with ANY worries.
I'm glad your back at home now and hope you can stay home over the Christmas and New Year period. I…[Read more]

Hi Helen
Good news that you've reached the second anniversary and everything is going well. If only you could get rid of the last of your cough.
I had to read your second post twice, I thought you were calling the Prof. A hobbit lol 😎 I blame it on the steroids I'm on!

We hope you have a good Christmas and a happy new year Helen

Lots of…[Read more]

Thanks Helen and boy do I wish I looked 45. I can but dream. One of our sons Robert took me to the cinema tonight to see the new bond movie really enjoyed it can't remember the last time I was at movies what I did enjoy as well was the looks I was getting being with "a toy boy" 😉

Tomorrow is D day bye will be so relieved for the pain to go.…[Read more]

Great news Helen and hope that da*n cough goes. Have a great Christmas and New Year

Love Jean x

Dear Dai

Wishing you a speedy recovery and have a great birthday (at home) and a great Christmas to you and Janet 🙂

Love Jean x

Hi Sue and Michael

Am Pleased you are feeling much better this site is a godsend in difficult times as I know too well.

Give Michael my regards and Hugs to both of you.
Stay strong

Love Tom xxxx

Hi Keith

Well what a palava you have had My Friend you are doing this the hard way am afraid so just turn to the right and that is the road you should go down its smoother and softer on the body (i took that turn 😀 )

You are correct even us stuborn folk should not wait, I was told by my Consultant "Dont bother with your Dr if you think it…[Read more]

Well My Friend you are keeping the Hospital and Janet on their toes but am pleased you are near sorted, your Car is like our Charliebut your is the hospital (your car knows where to go) and our Charlie knows where the pub is on his night walk ha ha.

I hope you are all sorted and home to Janet by Friday 😀 it just brings it home and one that we…[Read more]

Hi Every one

First Vicki and Colin, am so sorry your Dad passed away Colin I send my Condolances to you and your family at this sad time, please keep strong and well.

Ann and Pete, well you know we all differ through all the treatments I was on the machine for 3/4 hours (see how fast you forget 😀 } and got enough in one laying (wasn't sat…[Read more]

Hi Ann

Sorry to read of the disappointment. When we saw consultant last week I asked her was it 2 million they had to coolest and she said no it had to be at least 1 million. Maybe different hospitals have different rules. Yes Ann we go tomorrow and Frank has had a terrible day. He has had terrible pain on his chest and back. He phoned hospital…[Read more]

Hi Sarah Jane

Great new about the PP's. long may it continue. Sarah Jane a great Christmas and a HEALTHY happy new year
Love Jean x 🙂

Hi Rita

Sorry I'm like Tom I cannot help but hope someone will come along soon that will be able too. My best to your son
Love Jean x

Hi Rita

Am sorry to hear about your son, but I can't help you with this one, just wanted to wish your son good luck..

Tom Onwards and Upwards xx

Hi Roz

I am sorry your friend is ill,and am sorry you are having to cope with it so near the date of Michealmpassing away.

It's good that you are helping her at this time and am sure you will make a difference to your friend by your advice and help with the strength you have got (yes you have strength) .

Keep looking at the tree, your…[Read more]

Megan good luck to Phil. Hope all goes great! 🙂
Love Jean x