andyg replied to the topic Cycle 10 in the forum General 12 years, 11 months ago
Hi all.
I had my zometa today errrr yesterday which was administered with the usual effiency. Then we had our meeting with my consultant. My paraproteins have drop slightly again from 23 to 21 – not brilliant but moving in the right direction. So I'm putting it down as good news – we haven't had much to cheer about since diagnosis Oct 2011. She…[Read more]
tom replied to the topic revlimid and vorinostat in the forum Side-effects 12 years, 11 months ago
Hi Babs
I was give anti sick tabs during my CTD and SCT and used them for over a month post SCT.
Good Luck and get some anti sick tabs.
Love Tom Onwards and Upwards xxx
tom replied to the topic Pete's SCT – so it begins!!!!! in the forum Treatment 12 years, 11 months ago
Hi Ann and Pete and all
Am sure I posted here ..?..?
But good luck to you all and Colin I am sorry to hear about your dad.
Love Tom xxxx
tom replied to the topic Cycle 10 in the forum General 12 years, 11 months ago
Hi Andy
Well we are posh ???? IPad mini handy ain't they.
Am same as you Andy hope it's the word getting out and not a rush of poor beggars with MM
Keep well Andy and as you know Onwards and Upwards.
From my IPad 2 😎
tom replied to the topic in hospital for my sct in the forum Treatment 12 years, 11 months ago
Hi Peggy
I bet you find it strange to h
Ave no internet for a few days ???? good luck and take it steady.
Love Tom Onwards and Upwards xxx
jmsmyth replied to the topic Pete's SCT – so it begins!!!!! in the forum Treatment 12 years, 11 months ago
Ann and Pete
Good luck for tomorrow. Everything crossed 🙂
Love Jean xx
jmsmyth replied to the topic in hospital for my sct in the forum Treatment 12 years, 11 months ago
Good luck from me Peggy. Hope all goes well
Love Jean xxxx
jmsmyth replied to the topic Happy Christmas and a HEALTHY New Year to you all in the forum Off topic 12 years, 11 months ago
From me too I wish all my friends a happy Christmas and a very healthy and happy new year. My thoughts too are with the families of all the lovely friends that we have lost this year. May 2013 bring even more positive news on MM
Merry Christmas and a HAPPY HEALTHY NEW YEAR to all
Love Jean xx
tom replied to the topic So Alone in the forum End of Life and Grief 12 years, 11 months ago
Hi Sue
Hope you are all doing ok and Michael is having the pain under control, I am pleased that you have got scones and a new friend.
Love and hugs
Tom xxx
jmsmyth replied to the topic So Alone in the forum End of Life and Grief 12 years, 11 months ago
Dear Sue
I read your post on the day it went up and wanted to say something to you but was scared that I would say the wrong thing. I pray that Michaels pain is under control and that God gives you strength. I'm so glad that your neighbour came round and now you will have someone that you can talk to who is nearby.
I hope you and your family…[Read more]
andyg started the topic Cycle 10. in the forum General 12 years, 11 months ago
Hi everyone.
May I first welcome all the new members to the forum. We seemed to have gained a lot in the past months. I do hope that its not an indication of a rising rate of myeloma but more an indication of the success of MyelomaUK in getting its message out. I hope you newcomers find this forum informative, supportive and inspiring.
Sorry I…[Read more]
tom replied to the topic HOW DO YOU REPORT ABUSE OF THIS SITE? in the forum Off topic 12 years, 11 months ago
Aww whats this busy iccle bee missed this time??
Onwards and Upwards xx
jmsmyth replied to the topic HOW DO YOU REPORT ABUSE OF THIS SITE? in the forum Off topic 12 years, 11 months ago
Hi Gill
I nearly had a fit when I saw these postings this morning. Didn't know what to do about them. It is a disgrace
Gill how are you doing? iIthink about you often
Take care
Love Jean x
eve replied to the topic So Alone in the forum End of Life and Grief 12 years, 11 months ago
Hi Sue
It must be very hard for you at the moment ,people do not know what to say,must find it very hard to send a card,wishing you a happy Christmas,but as Gill said we do understand what you are going through. At least you have your daughters around,I would suggest if you have a good friend reach out to her,no one wants to upset you,but if…[Read more]
tom replied to the topic So Alone in the forum End of Life and Grief 12 years, 11 months ago
Aww Sue
I am sending you loads of Cyber Hugs Girl ((((HUGS)))) as that is all I can do from this distance.
I dont know how you feel watching Michael being in that much Pain and i dont understand why he is in pain?? am sure they must be able to stop the pain?.
Am sorry you haven't heard from folk for a bit am sure that would help you…[Read more]
tom replied to the topic Is it coming back in the forum General 12 years, 11 months ago
Wonderful News Wendy, Just what we need to throw us into the week end.
I know its a worry every time we have a bit of a grumble but its best to be checked out 🙂
Stay Well Wendy
Love Tom "Onwards and Upwards" xx
jmsmyth replied to the topic Is it coming back in the forum General 12 years, 11 months ago
Great news Wendy well done so uplifting to read good news
Jean x
jmsmyth replied to the topic SCT – Franks turn in the forum Treatment 12 years, 11 months ago
Hi Vicki and Colin
Good to hear from you and glad that Colin is on the right road. What terrible news about Colin's dad. It's never good to hear news like that but at Christmas it just seems so poignant. I do hope you have a brilliant Christmas. I'm a bit worried (there is no satisfying me) this is the best Frank has felt in a long time. He…[Read more]
Michele replied to the topic 10 Months Post Transplant in the forum General 12 years, 11 months ago
Thanks for your comments.
What I should have added was that it didn't take me until now (10 months) to feel my old self again. looking back I really started picking up back in May, just after my hair had started growing. So, 4 months really. 🙂
tom replied to the topic Sore tongue advice in the forum Side-effects 12 years, 11 months ago
Hi Emma and Mum
Sorry Mum's got a poorly mouth, I was told to use a soft tooth brush during my treatment on CTD and I always have used mothwash but used it four/five times as much as i do when on treatment.
Get the Nurses to get the act together I had a chart for all my drugs to take at a certain time I would make sure that your Mum is…[Read more]