jmsmyth replied to the topic At a low point in the forum Carers 12 years, 11 months ago
Hi Sue
Welcome from me as well. I know you don't want to be here but you will get the support and friendship that you need. Ken has had a rough ride but David is right this d**n disease is so individual. My husband smouldered for 6 year and started treatment in June. I knew about the Dex and dexitude from the postings on the forum but when…[Read more]
jmsmyth replied to the topic Bendamustine information in the forum Treatment 12 years, 11 months ago
Terry what a terrible terrible time you have had. Sorry I can't help with any info but I'm sure someone will come along who can help. Best wishes to you and loved the car 🙂
Love Jean x
tom replied to the topic All Systems Go! in the forum Treatment 12 years, 11 months ago
Well done Dai, I am not the only one on here that hopes it works a treat for you Dai with little side effects.
Keep strong and stay well
Tom "Onwards and Upwards" xx
tom replied to the topic Greetings Joining the happy band in the forum Newcomers 12 years, 11 months ago
Hi Carol
Sory you have relapsed and i wish you luck on your 2nd SCT and say a big thank you to your Brother from me am sure its better than a scarf for christmas 😀 Lets hope this one will be better.
Love Tom "Onwards and Upwards" xx
tom replied to the topic Neutrophil recovery after SCT in the forum General 12 years, 11 months ago
Hi Mike
Well am sure the thecko stuff will all fall into place am afraid to say its a long haul this one M8, but i am happy if my Dr is happy 😀 and I feel well 😎
Good Luck in your road to remission
Tom "Onwards and upwards"
tom replied to the topic Is it coming back in the forum General 12 years, 11 months ago
Hi Wendy
Am sorry you are having Pain 🙁 and I hope they soon sort it all out for you.
Good luck for friday
Love Tom "Onwards and Upwards" xxx
tom replied to the topic Very worried in the forum Side-effects 12 years, 11 months ago
Hi Emma and Mum
Well I bet your all pleased that a plan has been hatched and that your Mum is Happy with it 😀
Its Going to be a hard slog for you to go and visit at Hospital so Emma you take care of your self while your Mum is in hospital and getting constant help sit back and breath 😎
Just Make sure your Mum does not get too comfy…[Read more]
tom replied to the topic 10 Months Post Transplant in the forum General 12 years, 11 months ago
Thats Great News Michelle
Another Onwards and Upwards 😀 we are soon gonna need a bigger room 😀
Long may it continue.
Love Tom "Onwards and Upwards" xx
jmsmyth replied to the topic Pete's SCT – so it begins!!!!! in the forum Treatment 12 years, 11 months ago
Hi Ann and Pete
Frank went today for the high dose chemo and starts the injections tomorrow . We were told that there may be aches and pains in back, legs, or chest. Nurse said this is a good thing as it means marrow producing cells!! We have to go back next Wednesday early in morning and they will take blood and we have to go to canteen were…[Read more]
jmsmyth replied to the topic All Systems Go! in the forum Treatment 12 years, 11 months ago
Dai some more great news. Well done!!! Take care
Love Jean xx
jmsmyth replied to the topic 10 Months Post Transplant in the forum General 12 years, 11 months ago
Michelle that is really great news. Frank is going for harvest next Wednesday. It is so inspiring to read posts like this. Thank you and have a fantastic Christmas
Love Jean xx
Michele started the topic 10 Months Post Transplant. in the forum General 12 years, 11 months ago
I don't usually start posts but thought my news would encourage others who are on the road behind me.
I've been to see my specialist today and have been told that all my blood-counts are very good, the myeloma's inactive and the SCT was obviously a success. "M-spike" is still less than 1.
I feel so happy and relieved!
Now looking forward to…[Read more]
tom replied to the topic Very worried in the forum Side-effects 12 years, 11 months ago
Hey Emma am sending ciber hugs for you and your Mum I hope they will give you some comfort during this difficult time, I hope Monday works out good for you both and will sit and say "Gosh why did I worry about that"
so big big ((((((Cyber Hugs))))) for you both
Love Tom "Onwards and Upwards" ((((HUGS)))) xxxx
tom replied to the topic REVVING UP FOR SCT! in the forum Treatment 12 years, 11 months ago
Hi Ann and Pete
Well I had two a day of the injections and the nurse bless her used the same needle left needle in and just changed the filler 😀
Side effects? pain in ribs and back for me for about two/three days and as the saying goes the more pain the better 😎
Hair well I lost mine shaved the head, lost all body hair cept eye lashes…[Read more]
jmsmyth replied to the topic REVVING UP FOR SCT! in the forum Treatment 12 years, 11 months ago
Hi Ann and Pete
Frank is 2 days behind Pete. He is due on 19th (all goes well). So I will be following your posts closely and wish Pete the best of luck in the world. Ann we were having 12 for Christmas and the registrar sad no. So we cancelled. But we don't thing she is right. We are seeing consultant before the zap of chemo starts so will…[Read more]
tom replied to the topic SCT – Franks turn in the forum Treatment 12 years, 11 months ago
Hi Jean
Well I have been known to watch Footy at the Club we drink in 🙂
I got three £5 notes for friends of ours that had George Best on limited edtions from Ireland a few years ago, so I do a fair bit re football memorabilia Ha ha not bad for a man that dunt do footy Ha ha
Off side rule :::: When a player is nearer the goal before the…[Read more]
tom replied to the topic Trials and maintenance therapies etc. in the forum Treatment 12 years, 11 months ago
Hi Tom
Well I had my transplant in December 09 I hhad Zometa infusion every four weeks in Scunthorpe General and that lasted 2 years.
I am now Drug free and in remission would i want to go on a trial?? if I am in remission I see no reason to take more drugs that would possibly give me side effects.
I was well and truly pleased when I came…[Read more]
jmsmyth replied to the topic Very worried in the forum Side-effects 12 years, 11 months ago
Hi Emma
Like Vicki I cannot say anything that will be of help to you. But I know what you are going through and I hope you get some comfort that there are many thinking about your mum. And wishing her well. Good luck for tomorrow
Take care of yourself
Love Jean x
jmsmyth replied to the topic SCT – Franks turn in the forum Treatment 12 years, 11 months ago
Hi Vicki
Thanks for your advice. At first I was a bit uncomfortable when people visited but not now. Frank is more important. I have the poor mans head turned. He went with sons to pub to watch United. He has the hand wash, wipes and I made him take first defence before he left the house and he has it with him. And I forgot the Manuka honey -…[Read more]
Michele replied to the topic Trials and maintenance therapies etc. in the forum Treatment 12 years, 11 months ago
I go every 4-5 weeks in Poole Hospital. The care there is first class.