Hi Kes and welcome from me to. This is the best place for you to be. We are all a friendly lot and there is a mindful of I formation, advice and friendship here. It is hard coming to terms with Mm. My hubby was diagnosed 6 years ago with smouldering MM and started CDT in June and has just finished his last cycle and waiting for date for SCT.…[Read more]

Hi Deirdre
Welcome to the site,yes the whole thing does seem so unreal,it is all a bit mind blowing,how are you managing in yourself are you getting enough rest??

It must be hard work,going to the hospital 3 times a week,why are they talking of ( crancking up the chemo??? )

How long has he been on treatment and what chemo treatment is he on.??Eve

Hi Babs

You certainly have had a terrible time. But as you have read a out Slims journey you will,know that there is light at the end of the tunnel. Slim had a hard struggle but look at him and Eve now gallivanting all over the place – and New Zealand no less!!! So as Eve says book you Australia trip (when you get consultants permission) then…[Read more]

Chris great news you are going home and that you are feeling good. I'm sure Lena is over the moon as well. Take it easy and take care

Love Jean

Hi Babs

Get that letter from the consultant and book it,it will do you the world of good,since remission,we have had a cruise,been to France and now NZ,we do not have a lot of money,but when you now your chances of living until you are 80 are not great,it,s not important.
Hi Jean
Thought I would say hello while on,we never seem to be on line…[Read more]

Hi Babs

IT is a bit of a bummer,comes and knocks you side ways,all your plans for the future,flying out of the window,well i am a carer and I felt like that:-P, still do some times,it,s a big learning curve,but look around you,all ways someone worst off than you:-S

My husband had his SCT in May so a little ahead of you,and we are off to NZ…[Read more]

HI Keith

Well,you answered your own questions,so does that mean it was not so much of a shock or is it a combination of relieve plus your ready for the next hurdle,??? I am amazed that I could not find a lot of trials for people in your position in the uk. To put it bluntly you must feel any new trial offers some hope. I looked at cancer…[Read more]

Hi Babs

Sory you had to join us but welcome. It is such a shame that you have only just found the site as this is a great place for support,advice and friendship. I hate the word carer, but I am carer to my hubby Frank. We are just waiting for a date for his SCT. How was yours are you in remission? Although I have been a member of the forum…[Read more]

Hi Ali

Must admit I felt cheated for Slim,I had done a lot of research and 33% chance of no treatment and 66% of treatment,Slim got no treatment,to be truthful felt deprived,and I am just a carer lol.

Saying that have got my head around it,now looking forward to 6 weeks free,then 2 weeks of test and consultant,so there are some good points…[Read more]

Tom I have to say it,you are as bad as Slim,

Slim was being sick and I went out to the desk and spoke to the doctor who said he could go home,as long as he was not sick, mhhhhhhhhhhhh.He had told her he was not being sick earlier,I told her," he tells lies",who did she believe,An ex marine who could look you in the face and lie.

I rest my…[Read more]

Hi Carol
Sorry to hear that MM has reared it's ugly head again. I had 2 cycles of PAD when I had no response to my original treatment CDT. unfortunately for me I had no response to PAD either or any other treatment till I was put on Revlamid, cyclophosphamide and Dex.
PAD for some reason is Bortezomib (Velcade) , Doxorubicin and Dex. Where they…[Read more]

aww Gill

Am sending you HUGS lots of them((((((()))))))).

I bet its hard to cope but am sure you know you have to, I cant tell you it will get better as i haven't been through it, but I show/read out these posts to Elaine (i think am getting her ready sad in it? )

Much Love and many thoughts from one teary eyed Tom xxx

Love Tom xxx

Hi Sue and Michael

Am sure that at anytime in anyones illness you are never wrong in asking Q's it may seem silly to you but if you are thinking it then its imprtant to you, so i would say ask away and get answers it might not alter the outcome ?? but trying and knowing is better so ask away
Thinking of you both

Love Tom xxx

Hi Vicky and Wide awake Colin 😀

Its Going Good you two (even though it dunt feel it or look it) the Dr wouldn't say "Home at week end" if he thought it was not a Doable 😉 If I remember correcltly I was still Ill a day or two before i was shipped off home and was even sick in toilet the day I came home (i dint tell them) but took anti…[Read more]

Hi Carol
Aww am sorry you have had that MM kick back in 🙁 but hey am sure your Dr will get something to throw it to the back of your mind pretty soon 😎
Stay Strong.

Love Tom "Onwards and Upwards" xxx

Hi Chris and Lena

Its working well and it wont be long stick with it and you will soon be home, but trust me you are still going to need to be looked after for a month or so when you are home but the wait will be worth it 🙂

Keep Well

Tom "Onwards and Upwards" x

Hi Keith

Well wot a to do as the saying goes 🙁

Am sure you kn ow I say am a "If My Dr is smiling am happy" well that is because I trust my Dr and I know if I need to know anything its him that I see, and if its My Cancer Nurse Helen I see and need to know more My Dr is in the next roomits a case of waiting till he has done with who is in…[Read more]

Hi Eric (am pleased that OUR Eve Misses nowt Lol)
And am with Eve, stick with the trials I am on nowt at the moment and still in remission 😀 and mine was just CDT then SCT all in 2009.

Tom "Onwards and Upwards" x

Hi Phil

Think its all been said Nowt normal in this dept so not one shoe fits all, I never ever bothered with my PP nuets or anything els i just wanted to see My Dr with a smile on his Face and to be fair that worked and still is for me 😎

Keep well and stay Fit

Tom "Onwards and Upwards"