Hi Keith

I cannot answer any of your questions or give advice on Trials but just wanted you to know tha tI am thinking of you and hoping all goes well for you tomorrow and you get your questions answered

Love Jean x

Hello Stewart

Well a very bonny welcome,and congratulations on your new baby:-)

Well MM is the last thing anyone needs or wants,but saying that on here you are going to see and hear lots of people who live with it for many years,so you will learn to cope with it.

First may I say forget that diet,you will need all your body to sustain the…[Read more]

Hi Keith

You sound very down,and who can blame you,I would agree they know the results,the meeting will be to decide the next treatment,in some ways they are trying not to leave you in a state of not knowing,but they forget,you become an expert on yourself.My advice is look on here at all the trials taking place in you area or not,and go armed…[Read more]

Hi Chris
Sounds if things are going well,they have taken your tube out,well well they must think you will not need any extra,s to help you improve like platelets.So that must be good,when you start feeling better you tend to want it to constant,well everybody is going to tell you it will take time,its something you cannot rush,if you stop and…[Read more]

Hi Carol
I am so sorry Carol,cannot help with PAD,Andy is the one to help you as he had PAD but it did not work for him:-(

Your right,you do not have to put on a brave face here,we do understand,although Slims in remission,the brain says when do we have to start going through this again,never said at home but the thought is there,then I give…[Read more]

HI Eric
Hello and welcome.You must be wondering why you have not had any reply,s???

Well if i may explain,because you went into an old thread,although it shows a posting it has come on screen in the middle of an old posting.The best thing to do is ,log in go to the first section,which you did,then scroll down to start discussion ,then you can…[Read more]

Hi Sue
May be the answers lie in what you did not hear!!!!!

When Slim was being taken to ITU a doctor in front of me said to him,you are being taken to ITU "I cannot promise you,you won,t die",he did nor ask and he cannot remember:-P.

Sue you need to speak to someone may be a consultant or your own doctor,you need to ask for a second…[Read more]

Hi Keith
I hope everything goes well with your BMB tomorrow and Wayne is gentle with you. Hopefully when you get the results you will be able to start to get your bloods back to normal.
I had my latest blood test Friday – everything was ok except my neutrophils which are now down to 0.4! On my rest week now so they're going to make a decision…[Read more]

Hi Vicki & Colin

Its Good Colin is out of bed for a time even if he is asleep in chair, I bet he is a great Host before and will be again after SCT
Dai is correct but as for me I went out amongst it all club and walks (short ones)

Hope your counts are good Tomorrow Colin and get you off home where the hard work starts 🙂

Love Tom…[Read more]

Hi Phil

Fortunately I was only neutropenic for 4 days. As I said, the count did bob about a bit for a few days but as far as I know it started to climb VERY slowly after that. It was only 0.2 increase every month but always in the right direction.

You look as though you're a similar age to me so as I said, don't panic. It's very early days…[Read more]

Hi Phil

This disease has no normality,so one persons story,has no baring on your,s,my husbands neuts and platelets took a long time to become stable.The thing they look for is,although the neuts dip,they look for a little gain each time,my husbands went down to o.3 when he was taken back in,he is now 6 months on and plates are 84 should be…[Read more]

Hi Kerry and Melvin

Sorry it was another Hospital Dash but am pleased That you are now back Home Melvin, this MM is a bloody hatefull thing, but you are both fighting it with all the strenth you can muster keep that strenth going you two.

Love Tom "Onwards and Upwards" xx

Hi Vicki and colin

Well Colin you are soon on the move and sleep is good for you I slept for about 5 days when i had my SCT some times didn't know the young Bride was with me (wot sort of a host was i lol) as for the eating I didn't just water for me I used to order sandwhich for tea and choos it for Elaine so i didn't eat it.

Sleep well…[Read more]

Hi Tina
That long and hard ride you are having will soon be a distant memory for you (mine is nearly lol)
Think if i am correct I was about two months post SCT before I woke up and turned that Corner to being Fixed and that I knew I just felt "Fixed" 😎

Keep Well Tina and it wont be long now before you are "Up and At Em"

Love Tom…[Read more]

Hi you all

Not be long before you are at home Chris 😀 then you can start to get better faster, just keep away from those bugs and you will still need to sleep a lot and if you are like me still keep the bathroom door open Lol.
I was also stil taking the Anti Sick Tabs for a few weeks after getting home so ask for them before you…[Read more]

Hi Helen

Well I stopped smoking in November 2009 just prior to SCT and my cough/chest has never been as bad 🙁 I have always had a iccle tiny cough when I smoked as my Young Bride (Elaine) called it an attention cough Lol, but that iccle cough has grown up and been a bother for a few years now its just weaker :-S

Had me flu Jab…[Read more]

Hi Sue and Michael

I am Pleased you are Home Michael as am sure its best place for rest and comfort, sorry you had a panic attack michael it must have been scarey ?

Sue I have three Handsome Sons but all soreted now but am sure that Pretty Daughter of yours will be sorted when she is ready, aint no rush these days is there?

You both kep…[Read more]

Hi Sue
If it is any help Sue,Slim had panic attacks when in ITU,and of course I was not there,and I was there 20hrs out of 24.made me feel awful,but he did say to me they were bad dreams,and we did talk about them after he came home.

So glad to hear he is coming home,make time just for you and Michael,you will need all your strength in the…[Read more]

Hi Phil
I had my SCT 9 months ago and can clearly remember the obsession with the neutrophil count.

I had my transplant on the 10th February and was then sent home until the count fell to 1. That turned out to be on 16th February when I was put in isolation. It held at 0 for only 2 days and I was given 2 GCSF injections on the 18th and 19th.…[Read more]

Hi Emma
Glad to hear your mum is feeling better,there is so much to learn when starting treatment,so it is a big learning curve.:-)

When your mum starts treatment everything will be explained,about tablets when to take them and the best times,there are a lot of tablets so go out and buy a pill box,and make a chart makes life easier.

Kidneys…[Read more]