Hi Debbie and Les

And I dont know your Mum and dad but I wish I was going with them also Lol.
A m sure your Dad (Les) will be lucky with his treatment and I for one hope the road to remission is a smooth one.

Tom "Onwards and Upwards" xx

Hi Lizzy and mom

Its not a problem and am pleased to read Mum is getting better today and Hope it gets better and last longer 🙂

Love Tom "Onwards and Upwards" xx

Hi Keith

I have strong gums and teeth 😀 but i was told during treatment to use a soft brush, and i always use mouth wash every time i go to the loo its hand wash and mouth wash, I dont floss that often and my dentist tells me to but :-S

if in doubt phone hospital 😀

Tom "Onwards and Upwards"

Hi Lizzy

A Warm Welcome to the site to you an your Mum.

My Run was straight foreward so Cant add nor help you at this time but am sure some one will be along that is on this treatment and give the advice you need.

What Hospital is your Mum getting treated as some on here might be able to help and advize.

Tom "Onwards and upwards" xx

Hi Chris and Colin

Doing great Chris 😀 and Colin you will be the same soon My Friend, dont rush it as we all differ in the getting home Time mine was on day 16 and I have been beat and i have beat others so as you all see we differ in the Home run.

Stay Strong you all

Tom "Onwards and Upwards" xx

Hi Debbie
A warm welcome to you and your dad and sorry am late with the reply, and am sure it has been answered.
But Get that holiday in and dont wait till after or during treatment as I didn't know how I was going to feel the day after let alone four months away :-/ but the Uk is fine as you wont need Insurance as such?

As for Driving I…[Read more]

Sorry Debbie
Must have had one of my moments Dad became Mum:-/ :-S 😛 Eve

Hi Lizzy and welcome to what you've already discovered to be a brilliant forum.

I was diagnosed in May 2011 and had 6 cycles of CTD from June to November 2011.
Fortunately I had no kidney damage at all, but as a precaution was initially given allopurinol.
I had a red itchy rash start up after about a month. When I showed it to my specialist…[Read more]

Hi Jo

I have only just read you post and realised you have started treatment again,So sorry Jo,lets hope by starting early it gets you into remmision early.

Velcade worked for Slim the worse part was going and waiting so long for an injection that lasted seconds.
Good Luck with the treatment Jo,Love Eve

Hi Mavis
I am so pleased for you,lets hope you mobility gets better as you get stronger.Love Eve

Hi Debbie

No one says you cannot drive,to me it just seems reasonably not to drive whilst taking heavy drugs,your mums treatment might only go 4 to 6 cycles,so no reason why she cannot drive the rest of the time.
As for insurance you are supposed to inform them of any changers:-/ but if you cancel your insurance and after a year take it up…[Read more]

Hey Helen

I thought the pesky cough had cleared up. Hope it goes soon. I know the whooping cough does last some time but you have had it long enough. It's time it takes a hike!!

Take care
Love Jean x

Hi Sue and Michael

Sorry to hear its a Hospital stay for Michael but am pleased that when he is home a plan will be put in place for Michael and yourself.

Please mdont worry about what you can and cant do that will all wait and do what you are doing now "One Day At A Time" stay well Sue

Love and Huhs to you all

Tom xxx

Hi Vicki and Colin

Your doing Good Colin thats the way it rolls My Friend stick with it and slowley it will get better but it will be slow for you and Vicki.

Vicki am sure Elaine (my young bride) walked out of and into my room many a time during treatment with that heavy heart al ask ang on ??

Am Back yes she said she felt and did the…[Read more]

Hi Debbie

My husband was like Wendy. He's coming to the end of 6th cycle of CDT and for abouT 4 days after coming of Dex he was very shakey and could not drive. As to going on holiday while on treatment I would say it would have to be cleared by consultant but with Franks experience – out of the 6 months we had to go to the hospital on 5…[Read more]

Hi Sue
As with Myeloma every person is different when in your situation,and also react differently,You have to do what is best for you.

I have a friend who use to be in the same position,she used to be worried how she would cope with the practical side of nursing,her husband chose to stay at home,he did go to respite,to give her a break,but…[Read more]

Hi Vicky
It will soon be over and Colin will start to recover so fast,it is heavy going,for both of you,I went in to the hospital every day except once when I went to a funeral,the funeral seemed light relieve compared to going in every day,

When Colin comes out the hard work begins,so you must try and rest now.
You soon forget,they do…[Read more]

Hi Vicki
Well it is what it is am afraid and no one escapes the great Run(s) ha ha, I also hope its only two days??? for you Chris (mine was months) lol:-0

Colin is doing well getting the sickness under control but I think on reflection I didn't get the anti sick tabs as often as i should have :-/ good to see Colin eating a bit now.

All…[Read more]

Hi Keith
Sorry to hear your struggling with your bloods. My last blood test showed everything had recovered to acceptable levels except my neutrophils which were 0.6 I will have to see what they are on Fridays test. I'm assuming it's the Revlamid but the consultant is guessing it maybe the cyclophosphamide. It may also be a result of all the…[Read more]

Hi Pat

Well am pleased the "Onwards and Upwards" keeps yopu going but dont get the tattoo as it hurts honest he he.
And Mind those Pigeons, better of in a pie than gave to cat 🙂

Love Tom "Onwards and Upwards" xxx