Hi Vicki & Colin
We hope everything goes to plan tomorrow and that Colin sails through the sct with the minimum of side effects.
All the best and good luck
Andy & Steph xx

Hi Vicki

I was always told "If you have it Flaunt It" so here I am near three years on and waiting for you all to be the same as i then we can "Flaunt it" to all the newbie's.

Love One "Three year on (near) Tom "Onwards and upwards" good Luck for Monday, I was out on Day 16 lets see if Colin can match it :-)…

Thanks for the info Eve. I have coco butter so will give that a try. As far as the scrabble – I am playing with an old school friend who lives in Australia, and that is where I get some of the weird words. One game was so unusual I took a photo of it and sent it to my son in Kent. He also had never heard of some of the words. I used to look the…[Read more]

Hi Jean

Sorry can not help with the low temperature, but Slim had swollen feet,as Tom said you can get socks with loose tops it helps,I use to use Coco Butter Milk on Slims feet,a massage ever night use to help,got the circulation going,swollen feet are painful.Needs to get those feet up high a pillow under his lower legs of a night,but make…[Read more]

Hi Vikki and Colin

Just popped in to wish you the best,you do not need it though,you both seem to have the right attitude,will all be over in a months time,and although it will seem a long time to get back to good health,you do get there.Eve

Vikki best of British luck for Colin on Monday. Hope all goes well. Will cross everything

Love Jean xx

Mary I cried most of the way through the counselling. I couldn't (and still can't ) cry in front of Frank. He has enough to worry about without seeing me upset. So when I talked to the counsellor it all just came flooding out. It's great to talk to someone who is not affected with Franks illness who will not judge me about anything that I say. I…[Read more]

Na then Mary and Charlie

Yep we all get it more than we care to let on to be fair 🙁 yep I went to have a bit of counceling 😀 wouls i advise people to go ?? too true i would, I didnt think I (a big hairy ass docker) but yep it was just one of the things i needed and if I felt the need i would go again 😎

Now let me see Scream hell yes…[Read more]

Hi Mary

I have been screaming and ranting for 6 years. I have been to counselling twice and it really helped me. As Frank hopes to start STC soon I am feeling it all build up again (he's had a bad time with the CDT) I will be making an appointment to see one again. Don't know if you have been offered or even tried it but I felt it was a life…[Read more]

Hi Marian

Sorry for the Late reply.
Sory I cant help you with this as i have never done a trial nor been asked to do any research, Just wanted to welcome you to our little group and wish you well on your road to remission.

Tom "Onwards and upwards" xx

Hi Chris
Looking Great My Friend 😀 its not started yet I dont think as and when you cant drink ask for the drip to be put back (I did) its bloomin hard to drink as much as you need and i found it better to use the line for mine for a day or two 😀 Just dont forget to unplug it before you get that need to dash to the loo ha ha I did many a…[Read more]

Hi Jean and Frank
The CTD was not good for me it forced me on to the sick 🙁
Yes I had swollen feet and legs, Kids used to laugh when I showed them the ring around my sock top lol, Elaine got me new socks with no elastic in them real loos at top and that helped :-), the feet/legs will go down but my feet and fingers aint too good lol I still…[Read more]

Hi Chris

Great to hear that things aren't too bad. Hope it continues ad you are up and running soon

Vikki and Colin good luck for Monday. Sending you good vibes

Love Jean x

Hi Andy
You will get there,it sounds like a good idea to me,crack on up wards,might be worth talking to Shirley on hear,I know she has had one.
Look at Myeloma Beacon Survives people on there have been going for many years,they say it,s the nearest thing to a cure.Eve

Hi
I would like to thank everyone for all the good wishes. I must admit the thought of a sct had slipped from my radar and I was just coasting along. The meeting with the Prof. On Monday has brought it back into sharp focus. I knew an auto sct was off the cards for me and that an allo sct was ultimately the only way forward for me. Never the less…[Read more]

Morning Chris
Hope those stems flow in nice and easy and are kind to you during the grafting and growing, hope ur counts shoot up fast.

Tom "Onwards and Upwards" oh my SCT seems years annd years ago 😎

Hi Chris

Good to hear from you and glad that you are feeling 'pretty good'. Hope everything goes great for getting the cells back. Oh Chris I have recorded Dallas and was saving it for bed tonight!!!never mind will still enjoy it. I'm old enough to remember the original Dallas and trying to decide who is the meanest the younger original JR or…[Read more]

Hi Kerry

There are books you can get to tell you all about MM if you ask Ellen the nurse I am sure she will send you some,plus what ever hospital,Melvin goes to should have given you some.

I asked and was told they do not do staging any more,which was completely different from what the books said,when we went to Kings in London,I was told…[Read more]

Hi Kerry

I have just found your original posting,full of so much detail,it does explain why you feel so frustrated and angry,I can only say I am sorry I missed it completely,like so many others.

After reading this,I think you should sit down with your consultant,and ask a few questions,the compression of the spine is not good,I do not know…[Read more]