tom replied to the topic Low Blood Counts in the forum Treatment 13 years ago
Ur welcome Keith 😀
I am pleased ur Doc is pleased with you and is keeping an eye on ur Platelets 😎
As you know I am spot on thanks
You Keep getting fitter and soon all will be sorted for you.
Tom "Onwards and Upwards" x
tom replied to the topic Any advise about organizing a fundraising event…. in the forum General 13 years ago
Hi Kerry
Good Luck on that and I dont envy you doing it as am told its a lot of hard work that takes up any spare and unspare time that you have/dont have? i dont want to put you off by the way.
But we have had a few on here that are and have done things for Myeloma Uk and its worked and will for those that are still being done be a great…[Read more]
eve replied to the topic SMM has become Myeloma – immediate treatment in the forum Newcomers 13 years ago
Hi Sarah
They will not use radiotherapy on your spine unless you have compression of the spine and cannot bear the pain,chemo will do the job just as well.
Just concentrate on your tablet regime,it helps to do a board with the days and times you have to take them,as it is easy to forget what day you are on,some hospitals provide a chart worth…[Read more]
andyg replied to the topic I feel so miserable! in the forum Newcomers 13 years ago
Hi Kerry
I think everyone has those feelings as a carer. I'm the one with MM but in a way my wife is suffering more. She has to worry about me, about her job which includes a hours drive either way, cooking, walking the dog etc etc and most of all what the future holds. I have damage to my back so I hardly ever drive now so I require lifts to the…[Read more]
eve replied to the topic REVVING UP FOR SCT! in the forum Treatment 13 years ago
Hi Chris
All sounds good,ask your wife to bring your favourite mug in,it helps with the drinking,rather than have hospital mugs.
It all takes a few days to kick in,do not worry,nurses have seen it all before,you should be able to have a walk round when it is quiet.You will not see them much as they keep away only do what is needed,because of…[Read more]
eve replied to the topic I feel so miserable! in the forum Newcomers 13 years ago
Hi Kerry
I think Tom has summed it up,you are just feeling what we have all felt at one time or another,you will work your way through this,but find some space just for yourself,instead of being a task to walk the dog,make it a pleasure,your own space.
The only time you have to worry is when you are bawling at strangers,or crying in front of…[Read more]
tom replied to the topic Recently diagnosed in the forum Newcomers 13 years ago
Hi Mike
No problem re the reply time as and when thats what this group is all about 🙂
Yes My SCT went great (little uphill) and well worth it, would I do it again?? Too True I would now doing good and drug free, you my friend will be the same.
Good Luck
Tom "Onwards and Upwards"
tom replied to the topic REVVING UP FOR SCT! in the forum Treatment 13 years ago
Hi Chris
Good Luck My Friend and hope its a smooth one.
Keep well and healthy
Tom "Onwards and Upwards"
tom replied to the topic Colin SCT plan b! in the forum Treatment 13 years ago
Hi Vicki and Colin
And a Lovely Looking Couple if you dont mind me sauing 😀
Am sure you will cope with the flurry lord you have been doing it for long enough now He he. I hope its a printing error but ad give them a ring to make sure its not this thursday I would hate you to miss the day after all this time, I used to love Krypton Factor so…[Read more]
tom replied to the topic I feel so miserable! in the forum Newcomers 13 years ago
Hey Kerry That my Girl Is Normal, I am the one with MM so am being looked after by my lovely wife Elaine (the young bride) I was told in Jan 2009 that I had Myeloma, done the CTD then the SCT (all good now) BUT Prior to my MM Elaine (the young bride) was told in Jan 2008 (yep one year prior to mine to the day near as) that she had breast cancer…[Read more]
tom replied to the topic Colin SCT plan b! in the forum Treatment 13 years ago
Wow are we seeing new photo's here 😀 all looking great.
Keep strong you all looks like winter is dragging itself closer for us 🙁
Love Tom "Onwards and Upwards" xxx
tom replied to the topic Two hospitals in one day in the forum Treatment 13 years ago
Hey Andy and Steph
Well you are avin to give this a good fight M8 🙁 but I know you can both do it 😀
Its an Uphill battle this MM when it runs smooth so I do feel for you two, I hope you get a good Match near home.
Keep strong you two
Tom "Onwards and Upwards" x
jmsmyth replied to the topic I feel so angry, frustrated, fed up…blar blar blar….. in the forum Carers 13 years ago
Kerry Frank would not go to the counsellor. He won't go to Info days – just wants to know what his consultant tells him. It is good that Melvin will go and talk to someone. I think it would do frank good but when I bring it up it causes a row. So I don't talk about it. I had to go back to the counsellor about 18 months ago as things were getting…[Read more]
jmsmyth replied to the topic I feel so angry, frustrated, fed up…blar blar blar….. in the forum Carers 13 years ago
Hi Kerry
I am also a carer (how I hate that word) to my husband Frank and I know exactly where you are coming from. Please, you are not being selfish and do not beat yourself up. Myeloma causes an enormous upheaval in you and your family's life. I have had 6 years to try to get my head round it and believe me I'm still not there. It's the first…[Read more]
andyg replied to the topic starting treatment in the forum Newcomers 13 years ago
Hi Polly
Sorry you have to start treatment. I started mine just over a year ago and have been through several different treatments but one thing has remained a constant that is the injections. I self inject tinzaparin daily to prevent blood clots I have from day one of my treatments. It's not too difficult and only sometimes a little bit painful…[Read more]
andyg replied to the topic Colin SCT plan b! in the forum Treatment 13 years ago
Hi Ali
We're pretty boring when we go to Greece we go to the same place, Kefalonia, same hotel, eat at the same restaurant and just laze by the pool reading whilst catching some sun! We used to go for long walks too but my back damage has put paid to that. Holiday insurance is a bit steep but necessary and planes are a good place to pick up…[Read more]
tom replied to the topic Just Diagnosed in the forum Newcomers 13 years ago
Hi Mary and Charlie
Am sure the Drug free will come to you two also mine was over two and a half years before I stopped taking them :-/ but well worth the journey 😀
Good luck for tomorrow 😎
Love Tom "Onwards and Upwards" xxxx and the odd glass of Vodka xxx;-)
tom replied to the topic We lost our dad. in the forum End of Life and Grief 13 years ago
Hi Vicky
Your More than welcome and I hope you are all going through this as well as you can yes I still think about you all after your Loss.
Take Care and be strong.
Love Tom xxx
tom replied to the topic starting treatment in the forum Newcomers 13 years ago
Hi Polly
Sorry you had to start treatment 🙁 but my advice would be "Take one Day at a time,rest when your body tells you, and more important use this site to ask complain and have that moan that I know you will have from time to time" but its well worth it.
Keep well and stay strong
Love Tom "Onwards and Upwards" xxx
tom replied to the topic Low Blood Counts in the forum Treatment 13 years ago
Way to go Keith, Keep well and stay strong 😎
Tom "Onwards and Upwards"