Hi Michael and Jo

A warm welcome to the forum and am sure you didnt want to join 🙁 but you will find great people in here and will answer any Q you may have and you will have many, make yourself at home and dont worry about making a mistake it will all fall into place soon.

As for the Velcade am sure its not used as a "Front Line…[Read more]

Kerry happy birthday for tomorrow. I know it will be difficult but try and have a good day.
Take care
Love Jean x

Hi Kevin Am sure that will be a help for those that are due or just starting CTD and if i may add that I concur with that 😀 and for you and those like you comming up and due to a SCT I can tell you I had mine done in December 2009 and Like your and mine CTD the SCT is well worth it.

I am here nearing 3 years post Transplant and feel Great…[Read more]

Gosh you two Pat and Peter (must be something to do with the letter "P" but you two just might just might make me blush Ha ha

Love Young Tom "Onwards and Upwards" xxx

Hi Kerry and Melvin

Sorry but welcome, am sure you will probally know us all by now if you have read the posts for months 😀 and feel free to pop in and Vent all you want you and melvin have like us all here been dealt a rough deal but am sure you two will whip it into submission.

Good Luck Melvin on your road to remission

Tom "Onwards…[Read more]

Hi Helen,

The nurse is going to send me some paperwork out for me to read through regarding it. She mentioned she would ring the trial research people and find out if required that I could start it when we got back so I will have to wait and see what happens there.

The only thing I find confusing is how they are certain I am going to be…[Read more]

Hi Ali,

I mentioned to them early in the year that I was going to Oz, and again last week when I went to see my consultant.
Nobody has mentioned that I have to get any more vaccinations though. In fact he even asked about the flu jab, and I told him that Blackpool (who did the stem cell treatment) mentioned not having live vaccines so he's…[Read more]

Thanks for that Megan. The more info I can get the better so I can have questions for the nurse on Wednesday. Hope Phil's side effects disappear. Frank is having ad side effects and withdrawal from the Dex. I think the thought of aving to continue CDT is really upsetting him.

Thanks again
Regards Jean

Thanks for that Lorna. It's a relief to know that they might still do it and I'm glad that Mike is still doing well and long may it continue.

Kevin they said light chains and everything else was good. I did ask the question but it was yet another registrar. I'm thinking of getting a tape and recording answers to all the same questions that each…[Read more]

Hi Kevin

Glad to hear your good news and wish you all the best for SCT. We have just coming back from consultant. Frank just finished his 5 th cycle of CDT. For the past two months his protein has been stuck at 2. Did your protein drop to 0. I'm worried that as its not 0 they won't do SCT. sometime trying to get info from professionals is like…[Read more]

Hi Kerry

Poor Melvin what a terrible experience he is going through (and you too). I cannot offer any advice as I have had no experience of anything like this. Kerry please come on and rant as much as you like. I'm sure there will be someone on the forum who can relate to what you are both going throug and be able to give you advice, support…[Read more]

Fortunately I had enough stem-cells for 2 transplants, so 2 bags of mine are frozen for (much) later use.
When I asked I think they said they'd be stored for 10 years. If I'm still bouncing around at that point without having used them I don't think there'd be any question of destroying them. There's just a "10 year storage space" rule I…[Read more]

Hi Pat

I have just renewed my blue badge (they last three years) and still had to fill in the 70 odd pages lol, never knew about a single page one all I know was she said (lady in blue badge dept) that if I have a Mac Nurse it will come through faster as it was only a phone call for them to make (i dint have a mac nurse and still dont have one)…[Read more]

Hi John

A well done from me and Keep well and strong 🙂

Tom "Onwards and upwards" 😎

Hi John

Well done on the three years and a Happy Birthday Stems :-D, as for coughs and colds well it might be same as i mine is coughs and bad chest 🙁 but hey ho bloods all good so far 😎

Am not sure how long the shelf life is John but am sure you aint gonna need them for many a year 😎 hope some one else can answer that one or E mail…[Read more]

That diagnosis must have come as quite a shock to you Helen!
Just as well you were on anti-biotics. From what I've read about whooping cough, that would have stopped you being infectious to others.

Hope you're better soon. 🙂

Michele x

Well As I said on last post "if am wrong am sorry" BUT this Forum is for people with Cancer more importantly those that are suffering Myeloma and fogive me? but you have posted only two posts and I cant see any mention of a Migrain let alone a alone a terminal illness ?
You dont seem interested in helping/giving advice to those that might want…[Read more]

Vicky

David is correct we all understand your feelings even though we are going through it, unlike your Poor Dad we here on the forum know what to expext to a certain degree :-/ and I also no big worry about leaving my young bride Elaine as I know she is a strong lady and we have some great friends and Family around us, But I aint going…[Read more]

Hi Keith

Your welcome and this reply is a bit later am afraid as I have been to work.

As for the bloods they are a strange thing and yes am sure its not all about bloods this MM as no one can get to grips with how some are doing great and others are always fighting it and its same Illness :-S as long as you feel OK and stay that way its…[Read more]

Hi Etta

Well Good Luck for you 100 day post SCT check, I was only on Zometa and nothing else after my SCT so cant add to your post on your new tabs but wish you good luck if you decide to take it on.

Love Tom "Onwards and Upwards" xxx