Hi Peter

And dont worry am sure my hair is longer darker and thicker than it looks on the photo ha ha it must be the Light angle he he.
And the Pint sounds good to me 😀

Hi Emma and Cathy

Will you Cathy be joining the forum? am sure it will do you good.
Hope your Mum is son out of Hospital and you yourself Emma soon better.

Tom…[Read more]

Hey if am wrong am sorry BUT I think this newbie should be banned. am sure they have mad a mistake and joined wrong goup he he

Tom "Onwards and Upwards" 😎

Hi Mavis
The nurse phoned this morning as I was a bit concerned about starting more treatment,not knowing side effects the tablets will have.my 100 days aren't up until 28 nov and then I go on holiday on the 7 th dec for five weeks so I don't want to start anything until I get back. The nurse said she will send some info to me as the side…[Read more]

Hi Mary and Charlie

Hows things? hope your both well, tell Charlie I have just had a week end away with the grandkids and its some thing I didn't think I would be able to do a few years ago 😀

What to do or not to do? well this is for both of you "Dont do too much" it will all save till later when Charlie is tired let him sleep and when…[Read more]

Hi Vicky

So Sorry to read about your Dad, 50 years is some time for your Mum and Dad and am sure they together have great memories which am sure loads of those are on Photo's ? I would use them to remember Dad in his Good Days prior to and during his treatment and try to push the bad times to the back.

I have heard people say to "Open new…[Read more]

Hi Keith

Well Thats Looking Good ? even if the Nurse want to give you more Blood?? am sure our Blood go up and down and its just luck that mine are taken on a good day Lol.

Am sure you will wake up with a Zest for Life and I hope am up with the same first Lol.

Argument Over 😎

Tom "Onwards and Upwards" x

Hi Emma and Mum (name :-))

Well like all the others am sorry you had to join us, and hey reading your first post you klnow more than I and thats over nearly four years down the line 😎

Your Mum sounds like a strong Lady and will get through it all with your help.

I was first started on CTD in Feb 2009 for 5 28 day cycles, then SCT in…[Read more]

Hi Peter
I never noticed about my hair till you said? then i had a wee look? and to be fair you are correct I seem to be going Bald ;-0 , Now I wonder why my Young Bride didn't tell me before ha ha, and am sure the dentist could have given you your three teath so you could have saved them in a tin for your old age 😀 in many a year to come…[Read more]

Dear Emma

So sorry that you have had to join us but you are very welcome. My hubby has Mm and is just starting his 6 th cycle of CDT with the hope of going for a stem cell transplant. Emma it will take you some time to get your head around it but you are in the right place. This forum and the Myeloma Beacon (USA) are great sites for…[Read more]

Dear Rachel

am sure you know how sorry and sad I am to read your Post about Paul, I was sure he was going to have a long remission and be fit and well for many a year.

I hope you can take comfort in that in the short time he was with us in the group he helped mamy a member with his strenth and determination.

Love and Hugs for you and…[Read more]

Hi Kerry

Hope your Mum is doing Ok. I was told Zometa only for two years and that is now complete so far Jaw intact and teeth still good (check out my smile Ha ha)

I do hope they can control the pain for your Mum.

Love Tom "Onwards and Upwards" xxx

Aww RIP John, and thanks for letting us Know Mavis.

Thoughts and Prayers to his Wife Su

Love Tom xxxx

Hi Everyone

Well am back and had a great time with Elaine(the young bride) and two Grandsons (Alex 9Years and Liam 7 Years, Lord knows i wasnt ready for a zimmer frame before I went to Thorpe Park" but I tell you I could use one today Ha ha.

Dai Am pleased to see your getting better 😀 am my you have been through the wars, The NHS is…[Read more]

Hi Pat

Take this trip to hospital as a big learning curve,it is such a worry to a carer when temp goes up and BP goes down,steroids mask infections,so are very hard to spot,I now go on Slims BP,when he had pneumonia his BP went right down had him in A&E,and even they failed to spot it,although I pointed out his BP which was 60 over 45,Pat next…[Read more]

Hi Dai

Oh boy you have really been through the mill!! But I'm so glad to hear that you are on the mend. We all missed you here. Dai I think it might be my fault about Janet being in contact. Tom had told me what had happened to you and I made the assumption that he had been 'talking' to Janet. Sorry for any confusion.

It's really great to…[Read more]

Hi Dai
Well as you know we have all been worried about you,this forum just did not seem the same with out you,Tom in his wisdom managed to get info on you,clever block that he is,when someone goes missing who usually post,it becomes a puzzle why they have not posted,do they need a break!!! are they ill!!! or worst still pushing up the…[Read more]

Dear Dai

Well done on getting through such a rough patch. It makes my cold/cough that I'm coping with seem so trivial!

I really hope things will be on the improve for you again now.
Take care of yourself.
Love
Michele x

Hi Mike and Girlfriend

Another welcome to this exclusive site,were everybody is a patient,carer or friend,and we try to help each other out as much as possible,were here for you when you want to rant or need support.We have all been there before you and some are still here now.

Everything is do able,you must learn as much as you can,we are 2…[Read more]

Hi Etta

Treatments Zolinza or Lenalidomide or no treatment randomised,Slim go t no treatment.They are testing the new drugs as a maintenance treatment. Zolinza has been doing well treating other cancers and it is a prohibiter,no results are available as a maintenance drug as this is first time,Lenalidomide has been in use for some time and…[Read more]