eve replied to the topic A Postcard from Venice in the forum Off topic 13 years, 1 month ago
Dear David
I think you have cracked it,something for everyone,just watch your back when throwing those balls,have a lovely anniversary,love Eve
eve replied to the topic Sad news in the forum Under 50s 13 years, 1 month ago
Dear Rachel
I am so sorry,Paul seemed to be doing so well,and if any one should have been able to get extra time,it should have been Paul,as he was one of the younger and fitter one,s on this forum,my thoughts are with you and his parents.
I lost my grandson with an infection all so unexpected,the shock and numbness,leaves you drained,I…[Read more]
tom replied to the topic Has anyone heard from Dai? in the forum General 13 years, 1 month ago
Hi All
Yep our Dai is going through the mill of Late I got these to inform me how he is doing 🙂
::::::::::Hello Tom, Dai is quite poorly at the moment he has some sort of stomach bug, but he also had DVT in his other leg and it has travelled to his stomach, they are considering surgery but allowed him home yesterday. Good news is his…[Read more]
jmsmyth replied to the topic Sad news in the forum Under 50s 13 years, 1 month ago
Rachael I am so sorry to hear of the sad news of the sudden passing of Paul. My deepest sympathy to you and your family. God bless
Jean x
Etta replied to the topic Sad news in the forum Under 50s 13 years, 1 month ago
So sorry to hear this sad news thinking of you god bless Etta
jmsmyth replied to the topic Has anyone heard from Dai? in the forum General 13 years, 1 month ago
Hi Ann
Last I heard he still had that pesky infection but was out of hospital. Tom has been in touch with Janet so he will be able to tell us more when he finishes work
Love Jean
jmsmyth replied to the topic Colin SCT plan b! in the forum Treatment 13 years, 1 month ago
What great news. 😀 You both had a terrible battle but YOU WON. Come on SCT!!!. My best wishes and good vibes to you both. Have a great weekend
Love Jean x
tom replied to the topic Just Diagnosed in the forum Newcomers 13 years, 1 month ago
Hi Mary
Am pleased Charlie is home and am sure he will stay at home for some time 😎
Its a roller coaster ride getting treatment for MM it has its ups and downs am afraid 🙁 but its as we say Doable 😎
Give my Best to Charlie and wish him well, tell Charlie mine also had its ups and downs but after this lenth of time I (and he will be…[Read more]
tom replied to the topic Just Diagnosed in the forum Newcomers 13 years, 1 month ago
Hi Mary well it is an Uphill struggle 🙁 but it will be worth it am sure, they will find out why and sort that out so as you also say Onwards and Upwards, Stay strong and stay focused.
Good Luck on the road to remission.
Love Tom "Onwards and Upwards" xxxx
tom replied to the topic Hair in the forum General 13 years, 1 month ago
Hi Peter and all
I lost all Hair cept my eye lashes but I gould feel those falling out as the time went, but me I was balder than a Coot (if a coot is bald??)
so no more nasty Nose hair nor ear hair that needed trimming lol
Nettie I trid the The L'Oreal oil and it was great folk could see the shine in the dark Lol.
so for all of us that…[Read more]
tom replied to the topic Zometa – is this available on NHS in the forum Treatment 13 years, 1 month ago
Hi Peter
Well I felt like I had Flu a few days after my Zometa aches and Pains you know Like flu, it soon passed then after a fair few month my veins fought the needle each month and used to play hard to get and when they did find one and blood was flowing it would Collapse and Nurse (bless) would have to have another dig in Lol.
Go ahead…[Read more]
tom replied to the topic Colin SCT plan b! in the forum Treatment 13 years, 1 month ago
Aww you two thats great news 😎 And just to let you know I had a few tears after reading your Bags are Full, am that happy for you both I cant smile wide enough, but i am gonna have a vodka for you two.
Love Tom "Onwards and upwards" xxxx8-)
tom replied to the topic My dad in the forum Newcomers 13 years, 1 month ago
Hi Louise
Hope its all sorted now and i wish your Dad Luck in the treatment that has been given, it will have its rough days but it will be well worth it
Tom "Onwards and Upwards" xxx
andyg replied to the topic Colin SCT plan b! in the forum Treatment 13 years, 1 month ago
Hi Vicki & Colin
I'd just like to add my congratulations. It's been a uphill struggle but your up there now. Let's hope it's all down hill to a successful sct and on to full remission.
Wishing you all the luck in the world
Andy & Steph xx
eve replied to the topic teeth and gums in the forum Newcomers 13 years, 1 month ago
Hi Kerry
Welcome to the site,14 years is a long time,so your mum is doing very well.
What little I know about Zometa is Slim having a tooth out,was not a problem just had to be 2 weeks clear of having Zometa,told only 1%| of people get osteonecrosis very rare,so nurse or computer your best bet.I do know as time goes by Zometa does not work…[Read more]
eve replied to the topic A Postcard from Venice in the forum Off topic 13 years, 1 month ago
Hi Helen
I was wondering were you were,good holiday shame about chest infection,i think there part and parcel of having a SCT,leaves your immune system so low,I think with winter coming on,I might just dose Slim with vitamins although he will moan about more tablets.
I enjoyed Venice when we went,but not to Slims taste hated the queues,went…[Read more]
jmsmyth replied to the topic Colin SCT plan b! in the forum Treatment 13 years, 1 month ago
Vikki and Colin
Great news and tomorrow there will be loads more of the little blighters 🙂 good luck for tomorrow will cross everything
Love Jean x
tom replied to the topic Colin SCT plan b! in the forum Treatment 13 years, 1 month ago
Hey you all hope you dont mind me tagging in here to wish you all the best for the SCT xxxx
jmsmyth replied to the topic Colin SCT plan b! in the forum Treatment 13 years, 1 month ago
Vikki sending you loads and loads of positive vibes for tomorrow. Thoughts and prayers for Colin. 🙂
Take care
Locke jean xx
tom replied to the topic teeth and gums in the forum Newcomers 13 years, 1 month ago
Hi Kerry try this
http://www.myeloma.org.uk/patient-services/ask-the-nurse/
this should open up a page on here so you can ask the Nurse.
Hope it works
Love Tom xxx