Hi Gill

May I say you should be very proud of your self,because you not only gave Stephen a good send off,but you did it in style,

I have enjoyed reading your post,I did not cry but smiled and laughed,I can only say,it was like hearing you talking about Slim,even to Rod Stewart. If there is another life,you can bet he will be looking down on…[Read more]

Dear Gill

By no means was your post waffle. I read it a few time with tears on my face. I had followed your and Stephen 's journey for some time. I loved your trips to France and your wee dogs. Stephens farewell sounded so good, although sad, it was a celebration of his life and in a contradiction of terms -happy. I would love to have seen the…[Read more]

Hi Joanne

Sorry your Dad was poorly but am pleased he is getting better and in his own home (you cant beat it) its all about rest and recuperation now for you and your dad (yep I bet you forgot about your self??)

Hope Velcade is started soon, and please no need to apologize for not being on for some time as this site is for when you have…[Read more]

Thats great news David and a well done to you and your team 😀

I hope after your X Ray you get the byeeeeeeeee. from them and go out and enjoy the three months respite.

Am sure am due this month some time?? but hey ho am sure My Doc will be smiling 😀

And Gill am sure you dont sweat am sure if anything you would perspire Lol.
Week…[Read more]

Hi Mary and Charlie

Where do I get my positivity from?? well I get it from this forum yep this forum every one drops a bit of it when the post good news and I just go along and pick that little bit up and my Young Bride (Elaine) knits it all together for me and that way I have loads and if you look I have dropped a little bit for you all…[Read more]

Hi Mary and Charlie

I am sorry to see you are both having a rough time, and I hope nay am sure they will soon have it all sorted, trouble with this darned MM not one treatment fits all, so once they find what Chrlie fits it will all fall into place.

Now as for the roof lark oh gi ower Charlie save your strenth and energy for fighting the MM…[Read more]

Hey Tina

Well Girl now is the time 😀 and am sure you will look great wig or no wig (I never used one lol)

Wishing you a fast and trouble free Transplant.

Dont forget Tina The mouth wash please use it every time you pass or go to the loo and even when you think you might want to go to the loo, the more often you use it it am sure the…[Read more]

Hi Tina
Well that is good news,it means by Christmas you will be home and recovering,have to get your christmas presents before you go in.

Slim was sorry he did not take a mug for tea in with him,so if you have a favourite,I would take it in.It will be over in no time,ask any questions you want about the SCT more advice you get helps you to…[Read more]

Hi Tina

That is brilliant news. I'm sure you will look great in your wig. Best of luck
Love Jean x

Hi Mary

Well everyone is saying the same you will get over this hurdle,as for felting the garden shedddddddddddd,he is going to have to slow down a bit.:-P

Mary I never take pills,but at one stage I found my self tearing a piece of a complete stranger,so that little white pill keeps my emotions under control,nothing worst than crying or…[Read more]

Hi Mary i'm so sorry that Charlie is having such a terrible time and wish him a a quick recovery. I used to say "the light at the end of the tunnel is another blo**y train coming. But it's not its a light. Come on rant, rave and scream if you want , most of us have been there. As Vicki says take care if yourself

My best to you both
Love Jean…

Hi David
IF you can get a PET scan out of them,it will show any form of Cancer outside of the bones,but they cost a lot of money.
I do not know how they will decide if Slims is coming back as they have told us only way is BMB.
Have another holiday ,then you might forget about the 3 months again.Eve.
Dai is very quiet anybody know if he is OK?????

Hi Mary

Sorry to hear about Stan,Slim was about 4 cycles on CDT,when he was rushed into hospital with septic pneumonia ,9days ITU 22 all together in hospital a weeks rest then back to next cycle tough but doable.Lot of damage to lungs holes and mass blood clots,only to be told at end of 6 cycle it had not worked and his condition was worse,then…[Read more]

Hi Mary

If your MIU is as good as the one in Poole Hospital, Charlie's in a good place as they will definitely keep a beady eye on him.

It will be good to find out more tomorrow. Make a list of questions you want to ask because when those doctors do their rounds they're fast. Keep them there until you're happy with answers and don't be…[Read more]

That's good news David. I'm glad to hear you've been "bailed" again.
Enjoy the autumn!!!!!!!

😀

Hi Mary

I wondered how you and Charlie were getting on.

It must have been very frightening for you and I'm glad Charlie is a lot better now. Had he been having any "funny turns" prior to collapsing?
It could be his body rebelling against the CDT cycles but you've also got to consider that it may be something not connected to his Myeloma at…[Read more]

Nicola Sorry about that txt – this predictive text can be a curse. After I re read it I wondered how you could understand it!!! Frank at last is feeling good. He even made breakfast this morning. Takes the chemo on Monday and he feels bad for about 18 hours. He was taking them in the morning but changed to take them at night so he could sleep…[Read more]

Hi Ann

Re swollen ankles yep I got those, numb toes well let me tell you I have in the past the most sensative toes ever, that bad i could not cut my onwn toe nails so my young bride used to cut them and had to sit on my legs so i didn't pull away Lol, but during CTD toes went numbe (still are) to me it feels like my socks have slipped down and…[Read more]