Hi Cathy
Nice to know Ivan is on the mend,time for you to take a rest before the hard work begins at home.
It is hard for them to eat and drink,there taste buds are non exsistance,takes a long time for the gut and bowels to regain any order even months after Slim is occasionally sick and bowels controlled with powders,its so easy to get blocked…[Read more]

Hi Ann
swollen ankles and numbness are some of the symptoms,both will go with time.
You can buy socks that have more give at the top to make it easier to get them on,he needs to keep his feet elevated when sitting,i use to use coco butter milk from boots and massage Slims feet it does help with the feet being swollen.Helps circulation .
Eve

Hi Ann. It could be medication as everyone seems to have different side affects but every time we go to see consultant I always bring it up as its always better to be safe than sorry. I'm sure consultant is sick of hearing the same thing but I just want to be reassured.

Frank is scheduled for SCT December/January bur there is only one hospital…[Read more]

Hi Ann

Sorry Pete having problem. Frank is on cycle 5 of CDT. He has had sligntly (!!!) numb fingers the whole way through treatment. Consultant doesn't seem to be concerned. He had to go two weeks for heart tests and last week for lung tests. This we are toldi s to ensure heart and lungs ok for SCT.

Maybe someone else will have more…[Read more]

Hi Vicki and Colin

Hope you have a fantastic weekend and that next weekend you are both very busy

My love and prayers are with you both
Love Jean xx

Hi Nicola

Frank takes Dex on the Friday and finishes on Monday. He feels terrible when taking it but its when he stops that he feels so bad. Everyone is different – Keith feels unwell for 2-3 days, Franks stopped on Monday and its just today that he says he feels human again. While withdrawing from Dex he feels wobbly, and has to be careful…[Read more]

Hey Vicki and Colin

Am sure you will find the resolve to get that Moral breakthrough we all need at the time of treatment Clin is going through, I found it and am sure Colin will, As for the head/chins up if thats a wee bit hard at this time I would go with a head down and a good "Shoulder Charge" it works just as good I aslo had to use that…[Read more]

Hi Nicola

Sorry your dad is having such a hard time with the Dex. My hubby is on 5th cycle and was having such a bad time that the consultant halved the dose. It seemed to help a bit. I know it's hard, but I think it's Dai that says "whatever it takes". Hope your dad starts to feel better soon

Take care
Love Jean xx

am on that same stage as you Ali letting the two of them knmow i also am thinking about them 🙂

Love that Onwards Man Lol xxxxx

Hi Pia

And a warm welcome to the site, sorry to hear about your Mum am sorry I cant help with the treatment as all I have had was CTD then SCT.

Just wanted to wish your Mum well in her road to remission.

Love
Tom "Onwards and Upwards" xx

your more than Welcome its a hard time for anyone thats told they have MM and worst for those that are on the the sidelines watching Us MM'ers going through what needs to be done to get into Remission 😎 its a dooable but its uphill am afraid, but you now know where we all are 😎
Ask away and if you feel like a rant well tis is the place 8-)…[Read more]

Hi Nicola and Dad

I am fortunate enough to have No bone damage but I was having Zometa infusions every four weeks 😀
As for the exhaustion I suffer that and am not on treatment so I put it down to having MM and change my life style.

Give your Dad a big Hug from me and tell him to rest and not fight the tiredness sleap when his body tells…[Read more]

Hi Alan
And a warm welcome to you, as for the "Twitter" I am on it and as for Face Book am also like a few more on her On it 🙂 so go on Alan you have got this far Ha ha.

I am on No treatment now 🙂 but I got a Rash after My SCT that was soon sorted, but I suffer bad skin prior to MM and used E45 and had to rush up stairs and wash it off as…[Read more]

Hi Nicola and Dad ?

Welcome to you Both, and it will get better I was on CTD in 2009 then SCT dec 09 now am drug free and doing Good, I want be as fit and as well as i was Prior to getting MM but its good enough for the moment (I am now 57 years young) still working and blessed that my company have gave me a light duty job and am still on it…[Read more]

Hi Vicki & Colin
Hoping everything is going well.
All the best from Andy & Steph lazing in the Greek sunshine xxx

Hi Mike

My husband was diagnosed with SMM in Sept 2006. Straight away consultant started him on Zometa once a month for 2 years. She then stopped it. Years later I asked her if Frank would go back on it and she said that as he was still smouldering he would not have it as thinking had changed about giving it to SMM patients. He is now back on…[Read more]

Hi Ian
And a welcome from me, and Lurk and ask anything you feel you need to, pull up the chair and get comfy.

Tom "Onwards and Upwards"

Aww Andy and Steph you two are Nawty telling us all how Hot it is and how cold the bears are 😀 Its been Persistant here in Sunny (thats a laugh) for a few days and no hope of a let up. Why oh Why dint we go with you Lol.

Have a great time and dont worry you will soon be home Lol

One Cold "Onwards and Upwards" Tom xx

Hi Mari

Well av done that stage also he he it aint good ? but trust me you can get a few laughs out of it when Steve is better, Pleased the rash is calmer (thats a bugger) Steve if like me will get to the stage where he wont care if he gets anyone to visit as he (I did) will sleep most of the time.

Tell Steve to try and eat a little bit as…[Read more]

Hi all

Am sure you jave no rush to be using it David Lol but the postcard bit those that cant attend could send a postcard that is stuck on and you can read it at the other sided (pearly Gate End) 😎

Now this rent thing I just might google that tonight 😛

Tom (not ready Yet) "Onwards and Upwards" x