Hi Mari

Poor Steve is having a rough ride. I hope things start to improve soon. It must be awful for you watching him go through this. Try and keep your spirits up. Will be thinking of you both
Love Jean x

Hi all
Whoops I forgot to say we're on the lovely island of Kefalonia. Thanks David for the reminder 😉
Tom I'm not rubbing it in 😉 just the sun cream and lots of it because it's very sunny here. How's the weather in sun scummy?
:-0
I'm keeping well hydrated with the local brew and the occasional bottle of water.

Take…[Read more]

Your More than Welcome Sue, you are the one that knows what they need and i for one hope you find it.

Good Luck with the "Way Up" I hope its good for you, Keep us informed and we are here when you need to chat.

Love Tom xxx

How is the Coffin going David? I was looking at the photo's you posted the other nite.

Well done on the saving Money lark Ha ha, but am sure it will be years before its needed 🙂

Tom "Onwards and Upwards" x

Well I have seen your Photo's on "Face Book" and I think you are trying to rub it in Lol.

Have a great Time you two, and dont burn 😎

Tom xx

Hi Mari and Steve

Well I for one knows what your Steve is going through and am sure my young bride Elaine knows what you are going through, the struggle to eat was a worry to Elaine but for me I just didn't care if I ate or not 🙁 But in the end I have ate wayyy too much now am up and running and I know that Steve will be getting to that…[Read more]

Hi Ray

And a warm welcome to you, Just wanted to tell you ask Away no Q is too silly for us lot ha ha.

Good Luck with your Road to remission.

Tom "Onwards and Upwards" x

Hi Andy and Steph

Just what the doctor ordered. Hope you have a brilliant time – you both deserve it
Love Jean x

Hi Sarah and Henry
It is nice just to have that result from the BMB,so we know how you felt,here is were you start doing all the things that you keep putting off,have those holidays,and days out,and just enjoy your second chance.

Live your life,for all those people who are fighting this disease,enjoy it to the full.Love Eve and Slim.

Hi Sue

All the things you say in your post are so true but trust me Sue you will get through it and the counselling is a good way to start, I had a bit after my SCT didn't think I needed it didn't think I was weak to need it? DID I NEED it ?? too true I did, started to feel better before he stopped for coffee 😀 had a couple and if I felt the…[Read more]

Your More than welcome try and stay strong Hugs for you xxxx

Morning Mari and Steve

Well lets hope its faster on the way back up for Steve, its a long wait (or seems it) waiting to get ill before you can get better :-S strange as it is, the sooner they work out how to make you better without making you Ill will be a blessing for everybody 😀

Thinking of you on the Road to remission.

Love Tom…[Read more]

Hi Min

This little one will be for my daughter,her thoughts are never far away,from Matty,she is strong,but at times finds she is over whelmed,It is usually when she does not expect it. Thanks again Eve

Hi Dai and David

Yes Dai you are right,I am impatient,it just seems to go on for ever.

David this maintenance treatment is part of the Myeloma X1 trials,after SCT you are randomised for revlimid or Zolinza,or not treatment,Slim got no treatment.

How are things going with you???? Love Eve

A very interesting and encouraging little film.

Thankyou Jean.

Hi Keith
Good to hear you are feeling better after the large doses of Dex,Slim never had massive doses of Dex,in fact after the pneumonia,they reduced it to 20ml a day on a four day cycle on the trials,so weight loss on heavy steroids still seems iffy.

Slims in remission,and on trials is now receiving no treatment,would love to say he,s…[Read more]

and if this works I copied (am sure its Ok 😀 ) the why the "Way Up" was started.

[b]A brief History of Way Up

In the Spring of 2009, I asked the then Chairman of WAY, Caroline, if there was anything I could do as a WAY volunteer.
Being over 50 myself, it seemed a good idea that I look into doing something for the chronologically…[Read more]

Hi everyone I done the google for you as Min suggested and here is the Link http://www.way-up.co.uk/ just click the link or "Copy and Paste"

I hope it helps for those that need it.

Love Tom