Hi Mari and Steve

Soon be all over Mari,but take it easy that journey alone is a horrible one,I was so tired just going up and down all those steps at the station was awful.

Slim had a driver for meds,could not keep anything down,even now he will not touch stuff he was sick on,cold milk and ice cream seemed to help.I just stocked the fridge…[Read more]

Morning Mari and Stephen

Well done on the SCT its now as you know a waiting game for Steve to get it all put together and start the healing part. Good Luck to you Both and dont forget mari you also need to rest 😀

Love Tom "Onwards and Upwards" xxx

Hi Joanne

Sorry to hear your dad is still not getting better, but am sure when they find one that Fits your Dad he will be doing good then its just trial and error for most of the time.
Cant help with the velcade But wanted to wish you and dad Well

Love Tom "Onwards and Upwards" xx

Hi Tina

Well done on that Collection Girl 😀 am proud of you 😎

As for the RT I haven't had any but my young bride (Elaine) had 25 sessions of it due to breast cancer 🙁 and yep she was tired but it went well skin started to burn a little near the end of the treatment but they gave her cream to use. Elaine is doing great now and is…[Read more]

Hi Balders

A welcome to the site I hope your Mum is soon sorted, am sure some one will pop in and say a few things about the treatment and side effects your Mum is having.

Good Luck on your Mum's road to remission.

Tom "Onwards and Upwards" xx

Hi Sarah and Henry

Wished you well on "Twitter" and am gonna do same here 😎

Well done you two you are now "Onwards and Upwards" enoy the remission I am 😎

Long may your remission last 🙂

Love
Tom "Onwards and upwards" xxxx

Hello Tina

I can't help you with your radiotherapy question because I haven't ever had to have any, but I just want to say "well done" for doing so well with your stem cell harvesting.
It's a great feeling to know that there are two SCT's in the pipeline isn't it? 🙂

Great news Sarah. "Remission" is a wonderful word to us MM'ers.

😀

My hair definitely thinned out when I was on CTD but didn't fall out completely until I had the SCT.

In a way, the thinning out prepared me for having no hair at all and what I thought would be the most dreadful side-effect turned out to be no problem at all to cope with.

It's the huge dose of chemo that will ping out every hair folicle. get…[Read more]

Hello Pat
After all those tests it must be a relief to know that you've now got the drugs that will put you on the road to remission! 🙂

Of course you'll be feeling nervous about taking them. I was with my first cycle of CTD.
There's no denying that you'll have a mixed bag of days ahead with aches and pains like you've probably never…[Read more]

Sarah what brilliant news! It is so heartening to read posts like this. Long may the remission last. He has had a rough road and Henry as they say here in Norn Iron )northern Ireland to people on the mainland ) "good on ye"

Love Jean x

Hey Girls as a mere "male" I can only add I was nearly bald before SCT and went Bald then Back to Nearly Bald was my hair brittle/dry ?? I aint a clue (am a male) but Hope you get it sorted and some better answers than I have gave 🙂

Lots of love Girls xxxx

Lovely Min. Thank you
Jean

Hi Mari

I f I am correct that is a few floors up,turn left out of lift and walk down and it is on your left 2 wards through one door.!!!not very good views from windows,but bigger rooms,and from what I remember they would even do cheese on toast,bigger kitchen.It is roughly half a mile all together from Denmark Hill station.Slim was in there…[Read more]

And am Sure it will help others Thans For sharing.

Love Tom xxx:-D

Hi Mari & Steve
Good luck with Steves SCT I hope everything goes smoothly and a long remission is achieved.
Wishing you well.
All the best.
Andy xx

Hi Pat
AL is similar,it is rarer,I think 600 cases a year,last time I looked and only one hospital Royal Free,there are a few people on here with both Amyloyds plus MM,they usually pop up in related conditions.

It is not knowing that causes sleepless nights,so once you do know you feel you have something to fight,Velcade works for MM.

Its…[Read more]

Hi Vicki and Colin

When Colin's Back is not too good then that calls for a lean over and a shoulder charge 🙂 and am sure that will work just as well but it needs plenty of screaming to go with it ha ha.

You two enjoy the week 😎 it aint gonna be warm but it will soon be christmas ha ha

Love Tom "Onwards and upwards" xxx

Hi Mari and Steve

Am wishing all good things for the SCT I hope its a fast recovery and soon out and getting fit.So head up and straight in 😎

Love Tom "Onwards and Upwards" xxx

Hi Etta and Craig

Its No problem Etta and you are Both more than welcome 😀

Etta am plesed you are starting to feel better, when I was getting better (and I could tell) I used to count the days then the months and each day was getting better (still had the odd off day :-/ but then dont we all 🙂 ) stopped counting the "Good Days" after 6…[Read more]