Hey Tom there were two lots of spam this morning – oh boy I'm on the ball!! When I read it I had no idea what to do about it.
Love Jean x

Hi Pat

Your more than welcome and I hope all goes well today and things are soon sorted

Keep well

Tom "Onwards and Upwards" x

Hi Tina well done and Good Luck girl

Love and Hugs

Tom "Onwards and Upwards" xxxx

Thanks for that Stuart, but I aint noticed any? (unless its mine lol)

Cheers Tom "Onwards and upwards"

Hi Chris

Well done to you and your team for getting the funding, and as for the hair I lost mine in bits and bobs so decided to shave it all off and keep it off til it felt like it was gonna grow? but it still misssed the middle when it grew back lol.

Enjoy Marriage I do (just daren't ask the young bride if she is lol)

Tom "Onwards and…[Read more]

Tina I wish you all the luck in the world. Hope it all goes well. 🙂

Live jean xx

Hi Jacqui

I became aware of how "toxic" aspartame was a few years ago and never buy a product that contains it.
Loads of drinks seem to list it as an ingredient as well as some yogurts.

It seems to accumulate in the body too.

I've never thought of it as a cause of my mm but definitely think it's not a good chemical to be adding to the…[Read more]

Hi Chris

Well let's hope this does the trick and your body responds by releasing millions of stem cells. 🙂

I was as bald as a marble from February to April! My hair started thinning out after I'd had the chemo. for stem cell harvesting in December and finally expired when I was in isolation a coulpe of days after the STC. I woke up one…[Read more]

Vasbyte………What an excellent word!!!

😀

Hi again Pat

I've now had a look at what AL is and can see why you want to stay on this forum. It sounds very similar and so is the treatment for it. Seems to affect the organs rather than bones though, particularly the heart, liver and pancreas.

Good job they did all those tests on you to pinpoint the AL and that they've probably caught it…[Read more]

Hi Vicki & Colin.
I really hope you get the prelixalor funded and it does the job. I've been told my bone marrow is not up to producing enough stem cells for a sct due to the battering it has taken through all the different chemo drugs I've tried. If I remember right Colin has only had one type of chemo so hopefully his bone marrow won't be too…[Read more]

I'm so pleased for you David. What a rollercoaster ride your emotions have been on!

Take Care of yourself.

Michele x

PS Sorry to be ignorant, but what is this thing called "vasbyte"?
😐

Hi Peter

I love your specialist (b)

Its great no have no bone damage when first told you have MM, I still have none but have the ache's and pain's but am told not mm related (just older age)

BUPA is good my young bride (Elaine) was in a private wing at our local hospital (Scunthorpe General) after an op due to no beds in rough end :-/…[Read more]

Well Thats great News David and a well done to you (red wine works on all lol)
I bet you take those pills with a little smile knowing thats its on the outside (bad enough though) 35 doses of R/T is a lot (my young bride had 25) but it will be well worth it 😎
Having Prostrate problems has also checked your bones so you got a two for one…[Read more]

Brilliant brilliant news David. Well done. Keep,up the good news

Love Jean x

Good Evening Pat

And my vote is of course you can stay 😀 you opened the Group door you made yourself known an I for one Like that 😎 so pull up your comfy chair and let me and folk like me what "Just AL" is all about.

I wish you a trouble free journey with AL (note to self go check it out)

Tom "Onwards and Upwards" xx

Hi Vicki and Colin

Am pleased for you both that it was An "OK" Day 😀 I bet you did have those extra Q's to throw at them and well done yopu for doing so 😎
Fingers and anything else that I can cross will be crossed.

Love
Tom "Onwards and Upwards" xx

Hi Peter

Yes 3l min of fluid i add vodka red and beer to mine and so far it aint done me too bad Lol.

I was told I had a bruised rib or a pulled muscle ? which turned out to be MM am pleased I asked for a 2nd Opinion and got that same day both Dr's said same and I said I didn't thin k I did so Xray/bloods and as they say the rest is…[Read more]

Morning Pat

I won't pretend to know what AL is at the moment but shall go off and have a read about it.

Thank goodness you know what it is now and that treatment can start.

Hope things continue to slot into place now and that you can share your experiences with us.

Take Care
Michele 🙂

Hello Joanne

I'm so glad you "plucked up the courage" to join us. I must admit, I was one of those lurkers for several months before I joined and now find myself chipping in regularly!

I was diagnosed in May 2011 and like your dad was on what we abbreviate to CDT for 6 cycles.
The drugs forced a change of lifestyle on me and my husband.…[Read more]