I had my SCT in February 2012 and was told by my specialist that she would be writing to my doctor in February 2013 regarding vaccinations.

As far as animals are concerned, I did let my husband see to our chickens for a few weeks following SCT but soon started handling them again with no problems.

😀

Kevin

I'm quite surprised by your comment about finding it hard to find anything about "how I can expect to feel when I get through the CTD and STC".

There are plenty of good-news posts on various threads!

Fortunately the general answer to your question seems to be "I feel it was all worthwhile as it's made me feel so good…[Read more]

Hi Tina

I hope you enjoyed the Great Dorset Steam Fair. We went to the Dorset County Show instead this year. A great day out where normality reigned!

I had my hickman line fitted 2 days before my actual SCT and not for priming.

I was given a choice of "being put out" or just having a local anaesthetic. I chose a local so that I could get…[Read more]

Hi Jacqui

Good Luck with the trial and I think same its a treatment that they aint sure about ?
Good Luck for your start on thursday.

Tom "Onwards and Upwards"

Hi Scott

I cant praise My Company hard or long enough, started my treatment in Feb 2009 (CTD leading up to SCT Dec 09) went on sick May 09 till May 2010 decided I wanted to go back to work (I work on a docks forklift tug driving ((hard graft)) and that) seen our MD and he said he found me (made a job for me??) and that was as a "Gateman" yep…[Read more]

Hi Vicki and Colin

Well am sorry its a none starter again 🙁 I do feel for you both and wish I could get hold of some one and give them a good shake for them to get a move on.

I like you two have sat back and let it all take its course but it has worked for me so far BUT I would be up in arms if I was same as Colin camping out in the…[Read more]

Hi Vickie
Sorry to hear that things are no better. I know it can be difficult with some consultants, they seem to be "the all powerful" but they are human. So as you say be assertive Vickie, have a written list of questions so there is nothing left out. When we visit consultant I take a little recorder to record the consult, as I have the worse…[Read more]

Hiya.
I think you'll find we all struggle with sleep at times. I'm not working so I can nap during the day if need be. Fatigue is also a side effect of mm and you need to listen to your body and rest up when it tells you. Steroids are especially hard on sleep. You need the support of family, friends and work to help through the difficult mm…[Read more]

Hi Eve.
It's great news that Slim is in complete remission and you can think of trips away rather than trips to the hospital. With all that you have both been through recently you deserve some good times. Have a great time on your trips away.
All the best
Andy

Hi Vicki & Colin.
I'm so sorry to read your post. It must be heartbreaking. Hopefully tomorrow will bring a big change. I know what a big blow being told something isn't working is. I hope they allow you to use plerixafor to boost Colin's cell production. I've not been down the sct road but I'm sure there must be another plan. To get so close…[Read more]

Hi everyone.
Thanks for all the posts. It's a strange old disease this mm if it wasn't for my back I wouldn't know I was ill. Oh and besides the drugs side effects which luckily I don't suffer too badly from. All my fiends say when I meet them that I look well! I'm even getting my taste for beer back – though the hangovers are a little to easily…[Read more]

Wendy I understand where you are coming from, there has been some bad news from our friends. But I agree it is very uplifting for people like me to read stories like yours and Eve's, it makes me feel like there is light at the end of the tunnel and not another blo*dy train coming. Thanks for sharing
Love Jean x

Hi Vicki

Are they trying again tomorrow? Oh I really hope that it works this time. It really makes me sick with this post code lottery. If someone needs medication it should not make a difference where the h*ll they live. I am like you Vickie I worry if I'm not worried. I questioned the SCT co ordinator if the Belfast trust funded prelixfor.…[Read more]

Hi Lyn and Pete

Your More than welcome, but bare in mind its not a walk in the park but it is "Paine Free" cept having the GCSF Injections and the BMB and I put the rest down to "Just Stuff" its a doable and as I said I would go through it all again 😎

If you need any more info ask away I aint shy 😉

Love Tom "Onwards and Upwards"…

Thanks Lynn will follow your posts with interest. Will have everything crossed for Pete in October. Best wishes to you both
Love Jean x

Hey you two a good row is good it clears the air (think of thunderstorms, how good the air feels after one)

My Young Bride and I have struggled a fair few time of her trying to help me up of the floor many a time.

Good Luck with the Pain relieve hope that is soon sorted out.

Love to you Both

Tom xxxx

Hi Lyn and Pete

Trust me you two the light is at the end of the tunnel I had my SCT in December 09 not a good month even if i did miss Santa ha ha, but it was well worth it.:-D

Would I do it again No problems as it has made me fit (ish) and in remission and drug free in a couple of years still down the line 😎
Just take one day at a time…[Read more]

Hi Jennifer

Mine is just a welcome as I went straight into MM 🙁 dint have chance to smoulder (or I dont think i did)

Stay Strong and Good Luck on Alan's road to remission.

Love Tom "Onwards and Upwards" xx

Hi Gill

I had Zometa for two years after my SCT then it stopped so I think two years was/is the norm and I have never paid for any treatment even before it became free for cancer sufferers. My Dr had a Nurse fetch my stuff up to the clinic and if i needed any thing else my Nurse Heln woulg go and fetch it 🙂

Hope its soon resolved

Love…[Read more]

Gosh Wendy now where has that 12 month gone??

Happy Birthday Stem Cells, you have a great host so behave 😎 Long may it last Wendy.

Love and Hugs to you and those iccle stem's

Love Tom "Onwards and Upwards" xx