tom replied to the topic Paraprotein news in the forum General 13 years, 2 months ago
Hi Andy
You are getting their slowly am afraid but getting their non the less 😀
Keep them going the correct way and Trust me you wont need a brollies as I am told you dont get wet inside a Pub??? well I do but it is the inside 😀
Have a great Time and relax with a pint or two.
Tom "Onwards and Upwards" x
tom replied to the topic Good News in the forum General 13 years, 2 months ago
Hi Eve
Well am pleased you will be in contact so you can sort me out if I get Nawtry Lol.
You two have a great time and I promise I will behave (fingers crosssed he he)
Catcha Lata
Iccle ole me xxxx
jmsmyth replied to the topic 12 months since my stem cell transplant in the forum General 13 years, 2 months ago
Happy anniversary Wendy and thanks for the link. Frank hopes to start STC in new year. So will read with enthusiasm.
Love Jean x
jmsmyth replied to the topic Colin SCT plan b! in the forum Treatment 13 years, 2 months ago
Hi Vicki
I have not replied to your posts as we are not at your and Colin's stage yet and dont know that much about STC but I have been following posts very closely. I was devastated to hear that it failed. Vickie can Colin's consultant be able to tell you what plan c can be. you must be so worried and hopefully someone else will be able to…[Read more]
jmsmyth replied to the topic Zometa – is this available on NHS in the forum Treatment 13 years, 2 months ago
Hi Gill
6 years ago my husband had Zometa every month for 2 years. He has just started treatment and is back on Zometa. Hope you get it sorted out.
Jean x
jmsmyth replied to the topic RE: Newcomer… in the forum Newcomers 13 years, 2 months ago
Hi Jennifer
Welcome to the club no one wants to join. My husband has SMM for 6 years. MM diaganosed while looking for something else. Frank was monitored every 3 months and his PP rose to 34 ( I think). Lesions were found in his ribs but radio therapist decided radiotherapy not necessary but consultant decided that treatment was necessary so in…[Read more]
Michele replied to the topic 12 months since my stem cell transplant in the forum General 13 years, 2 months ago
Well done Wendy.
I'm coming up to 7 months on 10th September.
It's great to feel well again isn't it?
Carry on celebrating!
Michele x
Michele replied to the topic Another joining the Stem Cell Transplant Brigade! in the forum Treatment 13 years, 2 months ago
Hi Lyn
Your husband Pete is entering territory that I was in last December!
The only advice that I can give is; take each procedure a step at a time. The initial priming and run up to harvesting as one, harvesting as the second and the SCT as the third. 🙂
The day Pete goes in to have the chemo. infusion will no doubt be a long, boring,…[Read more]
Michele replied to the topic Zometa – is this available on NHS in the forum Treatment 13 years, 2 months ago
Hi Gill
I have been receiving Zometa on the NHS since June 2011 and have been told that I'll continue having monthly infusions until it stops working.
My father was treated a few years ago as a private patient (PPP) and was told that once he started along that route he wouldn't be able to switch to the NHS.
It was a continuous battle for…[Read more]
jmsmyth replied to the topic Another joining the Stem Cell Transplant Brigade! in the forum Treatment 13 years, 2 months ago
Hi All
Frank is due (all things going well) for SCTin the new year. I went to a meeting last week on SCT and to be truthful at the time I was sorry that I went. I felt i got more info from the forum and in a more encouraging way. The one thing I did get out of it was, there was a man who had a SCT 3 years ago and told us what it was like – it…[Read more]
tom replied to the topic A BIG Hello in the forum Newcomers 13 years, 2 months ago
Hi Amanda and Bob
Welcome, I hope you get out of this site what I have over the years 😎
Let us know where Bob is being treated as am sure we will have some in here that are have been treated their and can give you more advice.
Ask away and hope your road through the MM is a smoth one.
Tom "Onwards and Upwards" xx
eve replied to the topic Revlamid infection in the forum Side-effects 13 years, 2 months ago
Hi Bill
Just been catching up on site and noticed your posting.
I do not know about infections with Revlamid but I do in general once you start chemo,you do have more chance of infection as your body is at low ebb so more prone to infections.
My husband contacted Septic Pneumonia,that put him in hospital for 22 days 9 in ITU ans left him…[Read more]
jmsmyth replied to the topic A BIG Hello in the forum Newcomers 13 years, 2 months ago
Hi Amanda and Bob
I am sure you don't want to be here but your are both very welcome. Feel free to rant (it's great to get things off your chest) but you will get great support, help and advice. They are a great bunch of people here who you will meet over time. Take care and best wishes to you both
Jean
eve replied to the topic Good News in the forum General 13 years, 2 months ago
Hi Jo
I was so fed up with not having a break,and waiting on the results,I thought good or bad we will do something.So we went to France in the Motor Home only down to Le Treport,came home Thursday,saw consultant Friday,had booked a last minute cruise last week to the Fjords in Norway,leaves Dover Sunday just 7 days,So happy days.:-D 8-)…[Read more]
eve replied to the topic Myeloma XI Trail in the forum Treatment 13 years, 2 months ago
Hi Amanda
Welcome to the site,this site can help in lots of ways,at the moment both of you must be in shock and information coming out of your ears.
As your husband starts this journey,my husband has just finished the first part after having a SCT and is in full remission.which we hope to enjoy for as long as possible.8-)
My husband is on…[Read more]
Michele replied to the topic A BIG Hello in the forum Newcomers 13 years, 2 months ago
Hello Amanda and Bob
Welcome. I'm so glad you found the MM UK forum. It's very friendly and very useful. No subject seems to be too much trouble for the folk on here to discuss.
I look forward to chatting to you as well.
Best Wishes
Michele
eve replied to the topic second Sct – funding in the forum Treatment 13 years, 2 months ago
Hi Mari
I have not been on for a while and you soon loose touch with present day situations,so I did not know how things were going.its a pitty it was not done during the school term as this would have been far better for you,but who gives a s–t about the patients not the men in the grey suits,they do not even give a s–t about there staff,It…[Read more]
jmsmyth replied to the topic Not Looking Good in the forum End of Life and Grief 13 years, 2 months ago
Dear Gill
My thoughts and prayers are with you and Stephen at this time. Gill, Dai, Eve and Tom have said it eloquently, I am not good at words, but I just wanted you to know that I am thinking about you. I have followed your and Stephns journey with this awful disease and you have been there for me and many others and we are here for you. You…[Read more]
eve replied to the topic Paraprotein news in the forum General 13 years, 2 months ago
Hi Andy
I would love you to come on here and say my pp are down I can look forward to SCT,and I can understand your frustration,Slim has taken a long time to get were he is now.We have the added problem,that month by month we could not tell if it was working,only the BMB were giving us a true reading,with the experts telling us this is very…[Read more]
andyg started the topic Paraprotein news. in the forum General 13 years, 2 months ago
Hi everyone.
I haven't posted much lately as I haven't had much news to share – I still don't – but I have been keeping up on everyone's news. Most of the news lately has been good though there has been some struggles. It's a strange sort of place I'm in a kind of limbo with my emotions at times swinging from jealousy of those who are…[Read more]