Hi Mari and Steve

Well done on the collection 😀 but its a shame to hear that to help stay alive after the first fight you then have to fight for money? gosh I wish I could Spit on here Yes Spit as thats what I want to do, the money we throw across throw across the world for half of that money to end up in corrupt hands? oh Rant over :'-(…[Read more]

Dear Gill and Stephen

Well you Know I am truly sorry it has come to this stage, and as sure as eggs are eggs My young bride (Elaine) and I will have to go through this 🙁 I just hope as and when it comes we both can face it with the strenth and dignity that you and Stephen have and are facing Head on.

I admire Stephen for his decision and…[Read more]

Dear Gill
What can I say,drinking champagne last night,with are good news,that no Myeloma cells have been found in Slims bone marrow,and reading your news on Stephen,we are not so many worlds apart,I know you are my future,which I intend to leave behind as long as possible,and Min is your future,a year down the line.So this is are Myeloma World…[Read more]

Thank you everyone for your good wishers,we are so looking forward to going to NZ and going off in are motor home,and of course the cruise which will be a first.

When this Myeloma struck it took so much away from us,but I still felt lucky that we had done so much with are lives before Myeloma Land.
I always feel that some good must come out…[Read more]

Hi Mari

Hope all goes well with Sreve's SCT. I didn't know 2nd STC has to be funded. Keep well
Love Jean

Hi David
What a bummer,I have thought for a long time,you were preparing yourself for something,but I did not think this!!!!,do you think there might be someone sitting up there looking down,saying well you are having things to easy,I,ll give you some thing to think about?????

Well you show them David,if you can get through the Myeloma,the…[Read more]

Nearly there then Pat.
You do seem to be having lots of tests done. No wonder you're a bit fed up!

But, look at it another way….they're being very thorough and at the end of the day if it helps them pinpoint what's wrong with you it can only be a good thing.

🙂

Your More than welcome David but I think I must be the rough cut one he he.
Good Luck with the scan and the heavy drinking sesh and am sure I have seen many a over 65's drinking and dancing way past when the young uns have gone to bed 😎

Stay Well and Vasbyte 😎

Tom "Onwards and Upwards"

Dear Eve

What fantastic news 🙂 . I'm so pleased. I admit to having tears in mye eyes reading it as Slim has had such a tough journey and to have this outcome is really brilliant. We seem to have been getting a lot of new members recently and I'm sure reading yourr post will be the best tonic for them. Eve have a brilliant time and a good…[Read more]

Well done that Eve and Slim 😎 way to go folks, and Thanks for sharing that great news it is great to read good news as often as you can, yes we are sorry for those that have sadly passed away and our thoughts are with them.

Well done you two now get orf and Enjoy 😎

Lots of Love and Hugs

Tom and Elaine xxxxxx

Hi Cathy

7 days into SCT,sickness is what you can expect,have they not given you books to read about the procedure????.
It is not very nice to watch,but your husband will come out of this ok.
The reason the nurses have little contact is they try to keep him and other patients germ free,going from one isolation room to another,brings its own…[Read more]

Hello Pat

I think I was very fortunate to have my MM diagnosis made very quickly owing to my brilliant doctor. I'd had 2 bloodtests done with a 5 week interval between the 2 looking for something else. When she saw the 2nd result (and a bence jones urine test that she'd ordered too) she immediately booked me in to see my specialist and 48 hours…[Read more]

Hi Sandra

The only thing I can remember with my teeth was that when I was on CDT, they seemed to "rattle" a bit and made little clicky noises!

I didn't lose any though fortunately. My dentist is fully aware of all I've had done and knows I'm having Zometa.
Tom's right, fillings etc. are OK, it's just extractions that are risky.

I'm…[Read more]

Hi Cathy

Unfortunatley the high dose of chemo. your husband was given nearly always has sickness as one of its unpleasant side-effects.

I was sick on and off for about 2 weeks. The SCT also made me feel as though a barrier had been placed between my mouth and my stomach and I totally lost my appetite for 4 days. Fortunately it came back…[Read more]

Morning Sandra the only problem I know about is when you are haveing Zometa and you cant have teeth taken out at dentist have to go to the hospital (think fillings are OK but always worth a check with dentist.

Love Tom "Onwards and Upwards" xxx

Morning you two 🙂

Well My young bride (Elaine ) had 25 sessions of RT and towards the end of it she started to burn so the Nurse gave her some cream for the burns its all good just ask for cream.

Have a great week end

Love Tom "Onwards and Upwards" xxx

Hi Vickie and Colin

Well in the nicest possible way I hope Colin gets some pain tomorrow not forgetting we all differ and some dont get the "Pain" for some reason or another.

As for the worry Vicki I worry about worrying about not worrying?? if that sounds sense lol, keep off the paint and try and relax

Love and Hugs
Tom "Onwards and…[Read more]

Hi Maxine

Thats not a problem at least your sister has got some one fighting her corner as am sure the whole family will rally round keep as much pressure off your sister and keep her calm.

Dont forget Ask away nothing is too daft for us to answer.

Love Tom "Onwards and Upwards" xx

Hi Keith

I think it is Positive news, I hope the Dex is cut for you am sure that will make your life far better.

The lowest I got with the weight loss was 68 kilos and i was normaly 95 kilos, now back to the 92/95 yep i float from one to the other.

Good Luck Keith

Tom "Onwards and Upwards"