Dear Gill

You know we are all thinking of you in this bad time,so have a go all you like we do understand,you are in a position were no one wants to be in,and we all just feel for you Gill.

I hope the radotherapist can easy Stephens pain,I cannot imagin how you are coping with that,they can do wonders these days,they have machines that can…[Read more]

Hi everyone.
Thanks for all the good wishes for my appointment on Tuesday. I must admit the closer it gets the more anxious I'm becoming 🙁 Anyway as they say worrying never changes anything so I'm trying to be as positive about it as I can be.

Dear Teresa my back pain has eased off since my radiotherapy. So as long as I don't overdo…[Read more]

Dear Gill

You have nothing to apologise for, that's what the forum is for. I know if I didn't rant I would go mad. I hope the 'wizard' can work some magic and help ease Stephen's pain. I know it's hard to watch someone you love in pain but I hope Gill that things get easier for Stephen and that you can take things a bit easier. My thoughts are…[Read more]

Hi Ali
Am pleased to read your Mum is doing Ok as for the sore mouth keep on using the mouth was more than they say (when its empty they will give your mum a new one ) when your mum has a spare min and or nips to the loo get that mouth wash used 😀 Oh and keep taking the anti sickness tabs often :-/ . The water intake I just couldn't do it…[Read more]

Dear Gill

I can only say again what the others have said (but not as well). I just wanted you to know that you and Stephen are in my thoughts and prayers. I send you love and hugs as well and please know that you have lots of friends here that have you in their hearts

Love Jean x

Lol yes it would help if the details are posted also lol.

all great here Nicola thank You and yet again its sunny in Sunny Scunny 🙂

Tom xx

Hey Gill

Denial is Ok but am pleased the 14 specialist are not in denial and are on it, but what did they say??
As for the temper thing I also am like Stephen I genually dont have one BUT have told The Young Bride (Elaine) that as and if it comes to me losing the plot so to speak I certanly dont mean what I say.

I also cant give you that…[Read more]

Dear Gill

What can I say???

Reading between the lines I have been waiting for you to post,as you say in denial,but it keeps you going,if it did not everyone would give up at the beginning,and at the end of the day Stephen and you are fighters,but some times enough is enough,it's being able to see it and accept it.

What matters now is…[Read more]

Dai what is it with you and week ends? Bless it always happens at w/ends.
Hope it soon settles before the 5pm mark? and that aint long now??
Good Luck Dai

Tom "Onwards and upwards" x

Hi Judy
I am sorry about you husband,you do not say much in your posting and have seemed to carry this burden with your family,but your husband was one of the Myeloma victims as well,so my thoughts on what you have endured go out to you.

I replied on Teresa,s thread because,you did not put your own,thread on,and I can only guess that you are…[Read more]

Hi Chris

Its sad we do not have something like the Myeloma Beacon Survive,s Site,
then we would know how many people are doing well after so many years the longest I heard about before you was 18 years,lots of 10 to 12 years and still going strong.

When I am feeling a bit down,and I am only the carer,I go to the American site,and it makes…[Read more]

Hi Teresa

How are things going,I should imagine the last few days have been very busy,I do hope you have had time to look in here and realise how many people have you in there thoughts.

Take that walk down the garden,I hope it will bring you some comfort,look forward to the grandchild Peter would want you to find that strength,Love Eve

Hi Ali

Your mum knows her own body best,but I would impress on her about taking anti sickness pill 15 min before she eats,mainly because once you have been sick with a certain food,it puts you off it for a long time,so a food you enjoyed becomes a food that made you sick:-( Love Eve

Dear Teresa.
We're so sad and sorry to hear about Peter. We hope you are managing to cope with your sad loss. We hope you have your family and friends support in this difficult time. It's difficult to find words of comfort for you but please know that we are thinking of you and your family in this time of sadness.

Lots of love
Andy & Steph…

Hi Nicola

Good Luck for your Charity Event am not sure if I am Local as I dont know where it is going to happen??

Love
Tom xxx

Hi Carol

Am Pleased that on both things 1) you are doing great after your SCT and 2) you know that you cant do as much as you used to, and i think that is the hardest thing "the not being able to"?.

And Happy New Hair Brush 😎

Stay fit and well Carol.

Love
Tom"Onwards and Upwards" xxx

Hi Eve and Slim

Am pleased to read Slim is getting better, and trust me you never stop the worry when you have been told you have MM Eve its something that we all have to cope with these days.
Slim will be better when the line is removed less to get infected so thats good 😎

Hope Slim is up to going on the train to London as it will make…[Read more]

Hi Everyone

Well Slims getting there,as he improves I worry less,will be happy once he has BMB and results as we have been told this is now the only way to tell how the myeloma is in the bones:-P so it will always be a bit of a worry.

He has his line out on Monday and Wednesday it,s up to London never ending'

We thought once the 2 days…[Read more]

Hi Dai
You sound like my grand daughter,her exercise is keeping her eyes open to watch the Olympics.:-)Eve

Hi All

Penny watch out for the Dex as it can hide infections,its no fun if it gets serious.As for AA there has been a big discussion in the new comers section,might be worth a read.

John I am amazed you are working at all,with that combination of drugs,but if need must you always find away,when you are self employed you cannot afford to be…[Read more]