Morning Vicki and Colin

I hope you both slept well? Four Injections per day sounds good enough.

Hope all goes well stay strong.

Love to you both

Tom "Onwards and Upwards" xxxx

Hi Michele.
Welcome to the forum that we'd all rather we had never heard of.
It's good you have come through your treatment well. As you'll know by now nearly everyone ones journey with MM is different so the more contributors we have the better the MM journeys are covered.
I look forward to reading your posts as you enjoy your long and…[Read more]

Hi all.
Just thought I'd add to the benefits discussion. I get the higher rate DLA and mid rate AA and I also get ESA. Just got my blue badge too. I had help with the DLA form from a charity at my hospital. My specialist nurse and consultant both told me about them. So I would advise everyone to ask for help with the form because it's a…[Read more]

Hi Vicki and Colin

Sorry its still not worked out and I do feel for you and Colin, we all want it to happen yesterday when we try and Mobilize the cells and not drag on longer 🙁

When I had my GCSF's I had two injections every morning is Colin having two injections or just the one??

Sending Love and Hugs for you both.

Love
Tom…[Read more]

Hi Vicky
Sorry things have not gone to plan,at least you know he might be able to try the other injections so do not get to down.
As for the Hickman Line,Slims went in on the 23 April and its still in!!!!! originally they said it will not come out until his platelets are over 75,and they are only 50 odd.Its just the flushing through every week…[Read more]

Hi Charlie

I live not far from Dover and my husband is treated at local hospital,we are lucky that we have the trials in SE Kent.Slim had to go to Kings for his Stem Cell Transplant it is the nearest for us.
I can only tell you the care was excellent,they are very experienced,and have some of the top myeloma specialist it seems to me a good…[Read more]

Hi Tom and Helen

I know people fall into different degree,s of MM and Slim started off in a very bad place,It still took time to get AA plus disabled badge,Which I thought at the time was bad.IT did eventually come through,and helped us in many ways not as an extra perk,but money spent making like a lot easier for Slim.

As a lot of you know…[Read more]

Hi Eve

I get nowt zero zilch I am just pleased my company has gave me a job I can do and that brings in some money 😎 oh got blue badge and a bus pass and am only 57 years young :-0 the bus pass gives me free yep free train fare from Scunthorpe to either Cleethorpes or the other way and that is as far as Doncaster:-D and free bus rides :-D…[Read more]

Hi Tom
Just a quick question do you get DLA.???
Were would we be without your cheerful face,I am sure you are going to be one of the lucky ones and still going down to your club until your 100 years,They might give you free drinks by then .Love Eve

Hi All

Eve I applied for AA in 2009 whilst I was still bald(er) and still having treatment not long after my SCT mine was refused :-S and I thought How Bad do I have to be to get AA if I am diagnosed with a terminal Cancer and they say No Thanks you can walk and cook Etc Ext >:-(

But trust me Folks that Pension Will be mine am not letting…[Read more]

Hi Michele

A warm welcome to your Forum.

And you have been through it all and on your own well done. and you and hubby are correct positivity is best (well it is for me).
Good Luck and may your remission be a long one 🙂

Tom "Onwards and Upwards" xx

Hi David and Charlie
may be i should have said you are entitled to apply for AA,but you have to make sure you fill the square boxes with square pegs not round ones,8-)

Attendance Allowance is what it says if you need someone to attend you because you can not do things for yourself,may be just in the day or during the night.there are 2…[Read more]

Hi Di
The person I was thinking of goes under Clucky,so if you find the posting it should tell you a bit more about his treatment,its his wife who does the posting Eve

Hi Paul
The smell is enough to put you off sweetcorn for life,the funny thing was Slim could not smell it.
Eat as much as you can as it will not take long for you,to go off food and drink:-(
Lots of under wear you can just through away,its just so much hassle trying to drag you drip to the loo,so if you can get enough fluid inside you,it will…[Read more]

Hi Gill
Have to reply this way as no E mail address,So glad things are as well as you can expect them to be.
Hope you manage,what you both have planned.
You were just constantly in my thoughts with not posting,and you often see on here people just fade away.
Due up at Kings on the 8th.Not looking forward to the journey.EVE

Hi Dai
I can only comment about when Slim was on CTD,then VCD.
No outward effect at all,never even put on weight,but as you know taking large doses did disguise infection,and made him think he new best,insisting he was going home,when he was on his way to ITU!!!
Once I new how they effected him,I was able to relieve some of his side effects,by…[Read more]

Hi Dai
We are new to the Dex. Frank is starting the 3rd cycle tomorrow. He is ok while taking the Dex (touch wood -has been first 2 cycles). His problems starts when he stops. First cycle he was off the planet for about 4 days. On the second cycle consultant suggested that he was weaned off it – that did not work as he was off the planet for…[Read more]

Hi Dee
Just popped in to say hello,and wish you well.

I cannot help you with this there are a few people on here who have had kidney problems,I think there is a chap in the west country,who plays in a band,I know he had SCT even though he was having treatment for kidneys,if i am right he went on to have a machine at home for his kidneys.So do…[Read more]

Hello Joe
Glad to see you are getting on with your life and hope you are not working to hard at uni,that is what your mum and dad would have wanted for you,how is your mum coping,bet she misses you both.!!

I hope its your mum cheering you on at the finishing line,and remembering your Dad,Its very hard the first year,so keep your chin up and…[Read more]