andyg replied to the topic Stem Cell Harvest & SCT in the forum Treatment 13 years, 4 months ago
Hi Paul.
Well done. Glad to see DT PACE did the trick for you. I hope the SCT goes smoothly and you have a long and successful remission.
All the best
Andy
tom replied to the topic My husband has just been told he has got myeloma!! in the forum Newcomers 13 years, 4 months ago
Hi Dee
I am sorry to hear your dads going through a rough time with the treatment, I do hope your dad isnt giving up and am sure its hard for you all at this time.
Stay Strong not only for your Dad but yourself.
Love and Hugs to you Both
Tom "Onwards and upwards" xxx
tom replied to the topic Colin the sequel SCT in the forum Treatment 13 years, 4 months ago
Hi Vicki and Colin
Well thats a bugger am sorry to hear Colin didn't get any 🙁 but I know its easy for me to say but dont worry it will all come to fruitition soon, they just wont stop and it all adds up and will stay in the blood stream waiting for the rest to mobilize 😎
All the best and hope the little blighters are soon out.
Love…[Read more]
eve replied to the topic Colin the sequel SCT in the forum Treatment 13 years, 4 months ago
Hi Vikki
Hope Colin is home and resting,I think we all go a bit over the top when we realise,some one you care about could become seriously ill,so we do are best to keep everything clean.It is a bit of a worrying time,just do your best,and make sure food is thoroughly cooked.Love Eve
tom replied to the topic Colin the sequel SCT in the forum Treatment 13 years, 4 months ago
Hi Vicki your more than welcome 😀 gosh I wish I could Blush?? Lol.
I hope Colin got home today? as for the paranoia about infection and stuff I went out and about the same week I came home after my SCT and folk knew not to come near me if they were diseased ha ha.
Keep fit and rest often Vicki am sure you need it also
Love and…[Read more]
tom replied to the topic Just Diagnosed in the forum Newcomers 13 years, 4 months ago
Hi Charlie
A warm welcome this site is now yours so use it when you want 😀
I know nothing of the trials I was Diagnosed in Jn 09 had 5 Sessions of CDT then straifgt into SCT and now am pleased to tell you I am still in remission 😎
Good Luck in your Road to Remission.
Great Photo BTW 😉
Tom "Onwards and Upwards" x
jmsmyth replied to the topic Stem Cell Harvest & SCT in the forum Treatment 13 years, 4 months ago
All the best Paul for your SCT. Good luck and good vibes are with you. Glad you were able to get away for a dew says.
Love Jean x
eve replied to the topic Stem Cell Harvest & SCT in the forum Treatment 13 years, 4 months ago
Hi Paul
It might seem like a long time to you,but if you look at the big picture its just a blip,I think you will sail through you are young healthy and fit,but do not forget to listen to your body.
As Debs says its not a walk in the park but it,s do,able.
The hard work will be when you get out,mind over matter,but you will do it Paul,Good…[Read more]
tom replied to the topic Stem Cell Harvest & SCT in the forum Treatment 13 years, 4 months ago
Hi Paul great news M8 good position near ready for transplant 😀 I had my collection in Leeds Seacroft Hospital I think it was.
Good Luck with it all
Tom "Onwards and Upwards" x
tom replied to the topic running my second marathon for myelomaUK in the forum Off topic 13 years, 4 months ago
Hi Joe
Great Job M8 I hope you run it in record time. I am same as you your Dad will be with you all the way
Tom xx
eve replied to the topic Just Diagnosed in the forum Newcomers 13 years, 4 months ago
Hi Charlie
Welcome to the site,Its my husband who has MM.
Yes it is very confusing to begin with,but you soon get use to all the information,you have got books on Myeloma my advice is read a bit at a time,it will become the norm soon.
Lets start with transport,you can get financial help,also you do not say your age,but you will be…[Read more]
tom replied to the topic Dizzyness in the forum Side-effects 13 years, 4 months ago
Morning Tina
First it wasn't with me I never had dizzy spells at all, I would get that checked today at your Dr's
Hope it turns out to be nothing.
Love Tom "Onwards and Upwards" xx
tom replied to the topic CTD Second time round in the forum Treatment 13 years, 4 months ago
Hi Kevin
Well for my ten pence I think you are going the corect way you had a good remission with it first time around so it should work this time againn and hope it gives you a longer remission, Like I tell my Kids "Save some till you aint none then you will never be without"
I done CDT ion Feb 09 SCT Dec 09 and am still in remission and if…[Read more]
tom replied to the topic Just got back from the I.O.W in the forum Off topic 13 years, 4 months ago
Hi Jo and welcome home 😀 am pleased you had a great time and am sure you made sure that Adam had the best time of his life (till next holls) And I thank you for chasing that sun our way also
Love
Tom (now you start to plan next one he he) xxx
eve replied to the topic Just got back from the I.O.W in the forum Off topic 13 years, 4 months ago
Hi Jo
Never been to the IOW but looked at it across the bay,have some friends who have lived there for years,they chose there because of the sailing.
Glad you had a great time with your grandson,I bet it,s home for a rest now.I just love to hear about you planning your next holiday,I am sure it,s not too far away. Love Eve
eve replied to the topic Is there anything we can do? in the forum Treatment 13 years, 4 months ago
Gill
How are you doing???
Have had you in my thoughts did you get to France for that holiday Eve
eve replied to the topic CTD Second time round in the forum Treatment 13 years, 4 months ago
Hi Kevin
Let us know how you get on,it is interesting that you are having CDT again!!!. I suppose the fact that it was 2006/7 since you had it last time.might make it work again.As you say it will leave you Velcade for another time.
Slim used up CDT plus Velcade just to get to SCT.At the moment waiting for BMB,to see if it has worked.
As…[Read more]
tom replied to the topic Is there anything we can do? in the forum Treatment 13 years, 4 months ago
Dear Sue
I am so sorry to read about your partner going downhill so fast.
Please accept my deepest sympathy to you and yours at thia sad time
Love Tom xxx
eve replied to the topic Is there anything we can do? in the forum Treatment 13 years, 4 months ago
Sue
It,s the other way round,everyone on here will be thinking about you,It is so hard to accept and it should have been your consultant telling you there was no hope,it might have given you time to accept and come to terms with his death.
I hope you both had a time to yourselves and a peaceful end,accepting that some times,there has to be an…[Read more]
eve replied to the topic John's 2nd sct in the forum General 13 years, 4 months ago
Hi Helen
I think a lot is post code lottery,in one way we are lucky because we do have the trials in SEK.and there are lots of trials going on from here at the moment.As a cancer patient Slim has the usual 24 hr number to ring,They in turn ring doctor and everything goes from there.So no problem:-P
If you look in the carers section subject 100…[Read more]