Hi Jo

Sounds like you had a good time' glad you enjoyed it. When the kids are happy makes the weather ok. Did you come home to good weather? I'm thinkinng of immigrating to England!!
Take care
Jean xx

Hi Mike

Well am In Scunthorpe and was treated at Scunthorpe and Castle Hill in Hull.

Keep us informed Keith and dont forget this is now your forum so use it as often as you need.

Tom "Onwards and Upwards" x

Hey Tina have a great time Girl and Try to forget about it all (cept us lot)

Love
Tom "Onwards and Upwards" xx

Now Eve you Know I blush Easy Lol.

And I gave that angle when I filled form in as it asks When would you like to apear on Deal or No Deal if you get through? I wrote as soon as Possible as I have a Terminal Cancer (well if you have it flaunt it I say Lol) ye no probs just do a Character referance and E mail it to t.lappin1@ntlworld.com and I…[Read more]

Well done Mari and Stephen great going and am sure you will kkep it up through the Transplant

Love
Tom "Onwards and Upwards" as we say 😉 xx

Dai
Slims writing home about his HL,4 hour job,veins thinning as HL progressed,then getting it round a bend,head honcho called twice,Slim coming up looking like death warmed up,saying he will never never have that done again.( may be that,s why his HL is still in).
I think it does vary from patient to patient,but as Stephen has had one before…[Read more]

Tom
You do not need luck,I can see you standing there with a big red box in front of you.Got to give them an angle,EG terminal cancer,want to take the wife on holiday of a lifetime will donate some money to Myeloma uk for all the good work they do.Can I fill your CV in for you LOL:-P 😉 🙂
I forgot the best bit,good looking guy with a cheeky…[Read more]

Hi Helen
Just to save any mixup its not Kings I am talking about when I talk about 1 designated nurse.I am talking about the south east England corner,Margate,Canterbury and Ashford if the information I was given is correct they only now have ONE designated Myeloma Nurse,use to be 4 and because of cuts it,s down to one. Eve

Hi Tina

A holiday is what you need away from the Myeloma Bubble,Lets hope for 10 days of sunshine and you coming back in the right frame of mind to tackle the next stage.love Eve

Hi Everyone
Amilea in UK first line treatment for people not on trials use to be CTD then SCT or not,then no maintenance!!!!,do not know if its changed but trial people had a lot more options this is why trials are best.

Helen it is finding out information that is my problem,I do try to do as much research as possible,as nice as the nurses are…[Read more]

Hi Vicki and Colin
Good Luck with the injections and the pain is ???? but copeable (not sure if that a proper word lol) but the more pain the better seems you get more cells the more pain you have 😎 its only intermittant when the cells are shoving themselfs out into the bloodstream.

Hope the collection is done all in one day 8-)…[Read more]

Hi Mike
Think I was 53 when I found out ??
But a warm welcome to the site ask away and if you need to moan winge and nearly cuss feel free this is now your sounding board.

Where are you or will you be treated as some one on here might be having/had treatment at your area and can give you a heads up on that.

Stay Strong Mike and Good Luck…[Read more]

Hi Tina

Well you have a good rest before sept and am sure your face is cute I lost my Fat Face soon after stopping CTD but it did come back more than once lol.
Keep well

Love and Hugs

Tom "Onwards and Upwards" xxx

Hi you all well how Elaine puts up with me?? I ought to get Elaine to start a thread on here Lol

And Thanks for sending me your Luck am sure I could throw the MM into the show and bring it into the forefront:-D

Love Tom "Thank you but No Deal" xxx8-)

Hi Dai well done you and thanks for sending the sun to us here in Sunny Scunny 😎 but I think av burnt me bald head ?

That "Onwards and Upwards" Chap x

Hi Vicky and colin, hey I get tired and I aint having any treatment am sure its just a MM thing or old age (well for me anyways lol) and yep the Nurse is correct she will make Colin Poorly but trust me its well worth it 🙂 as for your cold well Elaine kids and grandkids had all that even when I was at my lowest and thank the lord none was passed…[Read more]

Hi Andy

So glad to see thing are going looking up,I would go for all three big time, I know even without MM back problems in the low spine,cause a lot of problems so I hope this treatment does the job,and gives you some of your life back.

Hi Mari
Yes they do not hang round at Kings,Slim was due the same ,Hickman line day 1,then other events took over and he came out of hospital.

So glad you are managing that holiday,it will be the best thing in the world to build Stephen up ready for his SCT,and give you a well earned break before you start the next round.

A few months ago…[Read more]

Hi Mari.
Great news. Have a fantastic holiday.
Love Andy xx

Hi Mike.
Welcome to the forum. You'll find lots of support and friendly advice here.
Everyones MM journey is different as is their response to treatment and the drugs. Hopefully you'll sail through it to a stem cell transplant.
I was diagnosed at 53 too oct last year – unfortunately my back was quite badly damaged. I'd been on the sick 6…[Read more]