Mari really good news – well done Steve. Have a brilliant break you both deserve it. Enjoy

Love jean xx

Hi Dai
Have a nice weekend,summer is suppose to be on it,s way;-)Eve

Hi Mike
Just a welcome to a exclusive club,be it that you are a patient carer family or friend.It is mind blowing when you are first told even if you are expecting it,I could tell you not to worry,but you will,your mind will still be awake in the early hours of the morning,but you will over come all this,and find out it,s not the end of the…[Read more]

Hi Everyone
Well its week end again 😀 and am told that the sun will be shinning this week end :-S 😎

Eve you know i have your sense of humour and i think some one has mine :-/ as my young bride (Elaine) says I have no Sense :-S ((am sure she dunt mean it lol)

Now as for kids, I think kids know more than they let on, when I had my…[Read more]

Hi Alison
Kids are lovely,I could use a few sayings to describe Slim at the moment,but I do not think it would go down well on site plus,I do not think people (except Tom ) get my sense of humour,what I found very funny is my 2 granddaughters came to see Slim,and on the way out,asked there mum could they kiss him,they are 14 and 10??.I thought it…[Read more]

Hi Everyone

Looking back at Slims time on Dex during ctd and velcade,he started with 40 reduced to 20 after pneumonia and blood clots on the lungs.

Dex 40,hell to live with,played tricks with his mind plus hid how ill he was!!!
Dex 20,I had my Slim back,would have liked him with more energy and the will to eat!!!
Keith 4 days on 40 of Dex…[Read more]

Hi Everyone

Well all this is thought provoking,even in the middle of the night or in my case early in the morning:-P
I think you have two different levels of people with Myeloma here!!!!
Dia can I put you in the latter group of a very limited life span!!!{ no offence is intended}:-)
Then Helen who has taken CRD as first line…[Read more]

Trish I intend to do this one and the next cos my young bride (elaine) told me I was 😎

Let us know what you are told re vaccination

Love
Tom "Onwards and upwards" xx

And a well done to you Stephen I also was a 16 dayer 😎

Now you keep fit healthy and bug free

Tom "Onwards and upwards x

Hi Everyone
Well I for one am glad that this subject is being openly talked about.
First may i say Amelia on Myeloma Trials which you should find info on this site,after SCT you are randomly picked for maintenance or no maintenance,Helen was luck to be picked.
Helen we need more people like you to get on your soap box,because with it comes…[Read more]

Hi Mari and Ali
I hope you do manage to get away,will do you both the world of good,school brakes up soon,so that will be a rest for you Mari.

I agree Ali your mum is very brave,must be holding a lot of those emotions in,SCT is not only body draining it takes you in to another world of emotions,so your mum is holding her own,by taking control…[Read more]

Hi Dai
Sorry to here your going through a tough time again.
I'm with you on looking ok whilst on the inside we are fighting MM. If I had a pound for everytime I was told I looked well I'd be a rich man. Sometimes when I'm not so well I want to shout 'I may look ok but inside I'm dying' but I don't and just smile. I think everyone is well…[Read more]

Hi Dai
Well I would agree,and can see what you mean concerning damage to the skeleton,as you are aware Slims skeleton damage is extensive,but at least no compression,so the ability to put one leg in front of the other is there,even if there is pain.

My concern is you attend the hospital,bloods show no markers of illness,but as a carer I see a…[Read more]

Hi everyone.
Thanks for all your good wishes
Here I am a day post radiotherapy with no major side effects as yet. Just a pleasant warming in the small of my back.
Helen I did have a numbness in my left leg and foot but it wasn't too bad – that has gradually reduced since I started on Revlamid – my nurse said the Revlamid sales person said…[Read more]

Hi Helen
Well to some extent I would agree with your outlook concerning second cancer,but I also think it depends on what second cancers are rearing there ugly head,for example percentage wise are they blood cancers,they must have some dater on it ??????
If for example it was causing (PCL) using that as an example!!! as we know of at least one…[Read more]

Hello Dai
I like the old saying ( you are as old as you feel ),I think this should apply to health, (you are as good as you feel )
Your bug or what ever just might have been that, a bug,that even without the MM might have knocked you off your feet anyway.I have just had the same with all the symptoms you mentioned.
As a carer I look at…[Read more]

Hi Ian

Yes there has been discussions about curcumin on the forum maybe a year or so ago and I know some did and do take it and If I remember rightly there was a blogg I think it was called Margaret's blogg and if I remember she was a great advocate of it. Somone else with a better memory will be able to tell you more. If you do a search on…[Read more]

Thank you Helen 😀

Love Tom xx

Hi Trish

this is one Q I asked after my SCT in dec 09, I was told that I dont need to have any just the flue and they gave me a phnumonia one (check me spelling lol)in 2011 and said that would last ten years?? so me being me I said your husband (my consutant and my Dr are married to each other) said MM has a five year life expentancy in 2009…[Read more]