Hi Keith

Read your post abouth the Dex with interest. Frank started the first cycle of CDT last month. He was taking 20 x40 mg on the first day for 4 days. The withdrawal was not nice. He felt so peculiar. When we told consultant she decided this month to wean him off. He took 20,20, 20,20,5,4,3,2. Frank said that he is going to,tell her that…[Read more]

Hi Stephen

Found another song that is fitting,WE got to get out of this place,by the Animals,takes me back to my youth.Eve

and if you got here the link worked lol now off for a pint 😉 xx

I have found it here :::::
http://www.myeloma.org.uk/patient-services/discussion-board/general/hi-ho….-hi-ho…-its-off-to-work-we-go…/#17651

Hope the link works xxx

Ho ho I found it Helen and I hope it kicks it back to the top for you xxx

Hi Sue
I think you have to ask yourself if it had been your own consultant would you feel the same.If the answer is yes,then ask for a second opinion this is your right.!!!!
The consultant is not yours and may be did not feel comfortable having to tell you,it is a decision that is usually made after consulting other people,You need to talk to…[Read more]

Hi Keith
I think I have come out in sympathy,think there is a bug going round,thought i was getting better then went down again,doing my best to keep away from Slim
With both of us being ill,I feel quite vunerable,as not use to this,we are both walking round like two old codgers,moaning every step of the way,dehydration makes your bones ache…[Read more]

Hi Jen
if I am correct your Dad is on Velcade,There is a long list of side effects,so don,t worry to much,when he goes into clinic they usually real off a lot of questions,anything that is abnormal is looked at.
The Dose of Velcade can vary its usually decided by blood test,its a good thing as they check the bloods each time.If any of his levels…[Read more]

Hi Tina

Frank is on 2nd cycle Of CDT. He is worse on Mondays when he takes the Chemo and the Dex together. The Frank we know disappears and a short tempered Frank appears. I know what you mean About the burps he is plagued with them. We are now in the 12th day of 2nd cycle and we have a tired Frank back – with burps and all that it brings.…[Read more]

Hi Helen
Well done ! You had a productive day. I loved
the Bit "booked a holiday " where and when? Good on you!

Love Jean x

Hi Tom, Craig here (she's fast asleep so snuck on)

That was the first question she asked the consultant at Blackpool when we went to see him!! Never mind the treatment plan, can I fly? LOL

He said as long as she was fit enough to travel he had no objections, I think she's determined come hell or high water that we're off down under at Xmas…[Read more]

Hi Tina
Well i would agree with helen, if you are managing a Motor Home, thats good,Slim cannot manage ours.
As for the burping or hiccups,just keep explaining its because of the drugs people will understand,18 months and SCT Slim still hiccups like a gooden!!:-
P
You are an eager beaver!!!!,just look at it as part and parcel of the course.
Love Eve

Hi Pennie

I have to say I never fail to be amazed.
First as your brother has the knowledge let him help you,,he will be able to tick all the boxers,plus apply for disability blue badge.

It will be nothing like your wages,but you might be able to work from home,plus it will pay for some one to clean,and you can earn more money.
You and your…[Read more]

Helen

You did it.Eve

Lolol well done that Helen Lol.

How many folk can say that they are whacked """with a capital F""" lol and get away with it he he well done that Girl 😉 sent home suspended for tidying your desk dunt sound good ha ha 😎
And am with Vicki and Colin you have beaten this MM with a great big stick 😀

Love and Hugs

Tom "Onwards and…[Read more]

Hi Vicki and Colin and all you others on this thread 😉

Please take a look and see if I posted on here?? am sure I did but did I click send or just move on to another post?? or is it in cyberspace?? hey ho al do another for you Vicki and Colin 🙂

Great news that you have dates and a plan for when it all should/will get done and I hope it…[Read more]

Not a problem Ian, and the 25 sessions were done with dignity and plenty of drink after lol. we used to travel to the hospital book in then seconds later Elaine would be called in and by the time I picked a book to read Elaine was back out again, yep it is that fast, back to Sunny Scunthorpe drop car off and down to the local club, we were in…[Read more]

Hi Etta

Just a thought ? I had my SCT in December 2009 and I was told not to fly for at least 6 months?? so the first holiday abroad my Stem Cells had was end of July.
I know a lot of Consultants and Hospitals differ in treatment and care but just thought I would let you know?, dont know when others have been told when to or when not to…[Read more]

Hi Ian

As I said on Face Book My Friend it will be the only Tan you will get this year in the UK.

Hope all goes well with it My Young Bride (Elaine had 25 sessions of RT in 2009 and Elaine got a bit of a Tan 😉

Good Luck with your Velcade am pleased it worked last and am sure it will work this time again.

Tom "Onwards and Upwards"…

Hi Mari thanks for the post I think mid August I will be back at Blackpool so all being well all off us will get good results,good luck to Stephen ,Colin and Alis mum. Love mum