Etta replied to the topic Start stem cell in the forum Treatment 13 years, 4 months ago
Hi Tom they haven't given me the exact date but mid August.said the will get my local hospital Preston to put my line in.
So I will wait for that special letter coming.
If all goes well we are hoping to go to oz to see our daughters.love Etta
eve replied to the topic Proper fed up… in the forum Side-effects 13 years, 4 months ago
Hi Dai
Well one time I would have just done as I have been told,I have had Slim in to hospital twice since he came out on the first on June,both times raised temp,plus visit to DVT clinic,his nuets and plates are still below normal ,so I think best save than be sorry.:-P
I was told if he is ever sick bring him in:-S ,well if i took him in every…[Read more]
tom replied to the topic Revlimid in the forum Treatment 13 years, 4 months ago
Hi Pennie and Andy
Well 12 years is good am expecting to beat that with my first SCT that I had in 2009 😀
After what you both have been through am sure you will cope pretty good to be fair.
Good Luck to getting Andy back into remission
Love Tom "Onwards and Upwards" xxxx
andyg replied to the topic My Dad-cycle 2 in the forum General 13 years, 4 months ago
Hi Jen
It's good to hear your dads kidneys have improved. Sadly fatigue is something us MMers have to but up with – I find if I want to get anything done it has to be done in the morning because by 2pm I'm worn out and only good for reading or watching an old film on tv. You've got to listen to your body and not ignore aches and pains.
Sorry…[Read more]
tom replied to the topic Proper fed up… in the forum Side-effects 13 years, 4 months ago
Hi Dai
Well you sure are fighting this bugger the hard way.
I do hope you soon get the drugs well into your system and they stop beggaring you about.
I think you are correct doing your tem more than the once before going in as am sure it will change through out the day.
Hope the temp is still col and you keep fit My Friend
Tom…[Read more]
tom replied to the topic Start stem cell in the forum Treatment 13 years, 4 months ago
Hi Mari
Yes just the three hours (or was it 5 hours ?? al aks elaine lol) on the bed and got enough (nearly for two) but the beggers put them into three bags instead of two so I was given the lot and i think that why I have done so well I had more than most of cells shoved back in that the fight was easier for me?? 😎
And Honest I have…[Read more]
tom replied to the topic Start stem cell in the forum Treatment 13 years, 4 months ago
And a Good Afternoon Etta
Well done you girl its good to rest.
Just remind me Etta when is your transplant due for??
Love
Tom "Onwards and Upwards" xxx
tom replied to the topic How long before I start to feel 'normal' in the forum Side-effects 13 years, 4 months ago
Hi Tina
Well how long is a piece of string?
1) the weakness well am sure that never leaves you fully :-S or that just might be iccle ole me ??
2) Bloating? mine soon went down (cept me belly lol) when I came off the Dex 😀
3) indigestion and 'burps'? well my young bride will tell you that I have burped and trumped all the way through…[Read more]
tom replied to the topic My Dad-cycle 2 in the forum General 13 years, 4 months ago
Hi Jen#
great news on your Pa 😎 and am sure pa will have a lot of the fatigue over the time and to be fair it aint left me for long before its back and tells me to slow down :-S
Hope your Two Boys are soon better also
Love
Tomm "Onwards and Upwards" xxx
jmsmyth replied to the topic Time for a laugh in the forum Off topic 13 years, 4 months ago
Good one Min. Made me laugh but makes
Me think that someone has been in my house making notes!!!
Love Jean x
jmsmyth replied to the topic My Dad-cycle 2 in the forum General 13 years, 4 months ago
Good news on your dad Jen hope he goes from strength to strength. Hope boys start to feel better soon.
Take care
Jean x
Etta replied to the topic Start stem cell in the forum Treatment 13 years, 4 months ago
Hi vicki and Colin.
Thanks for your message I am being very positive as I want to go and visit my daughters in oz at christmas,I hope all goes well for Colin love Etta
Etta replied to the topic Start stem cell in the forum Treatment 13 years, 4 months ago
Good morning all had a good nights sleep first in weeks,thanks Tom for your posts and I am having a rest today Craig is working from home to keep me under control ha ha,love Etta
andyg replied to the topic Proper fed up… in the forum Side-effects 13 years, 4 months ago
Hi Dai.
That's good news. Hopefully you'll settle down back to a bit of 'normality' now.
All the best Dai.
Andy
andyg replied to the topic The Answers in the forum General 13 years, 4 months ago
Hi Teresa.
I'm having radiotherapy on my lower spine because there is an active area there that could be causing some back pain. So they want to zap it 😉
I've not got my appointment to see the Prof. yet though it seems his myeloma clinic is on a Tuesday as I've been told by people in the know. Hopefully I'll get an appointment through the…[Read more]
jmsmyth replied to the topic Tickets for Wimblendom in the forum Off topic 13 years, 4 months ago
Eve so glad your daughter enjoyed Wimbledom and winning a trip to the Bahamas – fantastic. Well done her. When will she be going ? She deserves a good break
Live Jean x
eve replied to the topic Revlimid in the forum Treatment 13 years, 4 months ago
hi Pennie
You do not say how old your are,your husband is entitled to Attendance Allowance ,it is not subject to how much money you have,plus you might be entitled to carers allowance!!!.Worth seeing about .
I cannot help with the REV.but you have coped with other treatments,my husband is retired,but I do get concerned about him driving,so I…[Read more]
tom replied to the topic Start stem cell in the forum Treatment 13 years, 4 months ago
A Warm Welcome Home Etta, and a well done n ow for the SCT 😎
Love
Tom "Onwards and Upwards" xxx
Etta replied to the topic Start stem cell in the forum Treatment 13 years, 4 months ago
Hi all back home collected 2.1 yesterday and 2.6 today doctor said that was good.
My nurses were lovely,thought I might have to stay in as my leg started to bleed heavily but stopped after more bed rest and pressure. Thanks for all your kind words love Etta
eve replied to the topic Smouldering myeloma in the forum Newcomers 13 years, 4 months ago
Hi Beverley
This is just a welcome to the site,and hope you keep on smouldering for many moons.
By being diagnosed early,it means they will keep a careful eye on you,learn as Much as you can ask Ellen for books on it.
My husband went full in to MM with a lot of damage,and we do not know how long he had it.
So my advice is learn as much…[Read more]