Hi Mari
Amazing we are 70 miles down the road,and had nothing but sunshine all day,a bit windy,I watched my daughter sitting in Wimbledon with just one quick shower,It came down at my other daughters nr.Dover in sheets,but did not rain much 9 miles up the road.:-S
I think they do have different polices on different wards,as Slim was in Davidson…[Read more]

Hi Keith.
I think it's the Revlamid that causes the cramp. I get it also though not to bad. My feet and calves are the main culprits though I did used to get some stomach cramps too. I also suffer fatigue on the second day off dex. The reason I don't think it's dex causing the cramps is I've been on dex at the high level a while now whilst the…[Read more]

Hi Liz, well am pleased I make you all smile 😀 and after hearing Kev's reply to you am sure he is like me anyways "anything for a quiet life" Lol

And Andy and all you other MM'ers am sure you dont want to follow my advice?? as you will all need a new Liver? what with all my drinking "Beer,vodka and not forgetiing my Red Wine"8-) but hey ho I…[Read more]

Good afternoon Etta

And how did we do today 😀 Hope you got enough for two (not that you will need two 😎 )

Get them all in freezer in small bags.

Love and Hugs

Tom "Onwards and Upwards" xxx

Hey Keith

I am on nothing,zilch at the moment but I tell you M8 I have been that fatigued (my word for fatigue 😉 ) i find it hard work to walk the bloomin Yorkie Lol, but most days I am spot on 😀 , energy levels have dropped a fair bit since getting MM I need more sleep than I did before? I ache more I??? hang on that could just be my…[Read more]

Hi Everyone
The procedure working up to a sct differ from hospital to hospital.
Slim was like Steve,s we travelled up from Deal that day and got back at 8pm.
Slim did his own injections,we did stay up in Kemsing for the harvest as it took 2 days,Slim found it tiring he was dosed up with Calcium through a driver,because of feeling sick.
At…[Read more]

Hi Teresa
I know this is a hard time for you and your family,I hope you have a palliative care team,coming in to help you.
I can only send you my best wishes,and hope you achieve those small goals,that you talked about.Peter has a goal with the grandchild on the way.
Love Eve

Hi Dai
Well in truth you have been here before,and you know the routine,but you know you will get over this little hurdle,you both sound if you need a bit of a break and some pampering!!!!,can you do anything about that, I know as a carer how much it takes out of me,some times I just want me time.years ago i use to cook for England,I realised…[Read more]

Hi Dai.
Sorry to hear you and Janet are not feeling well I hope you both have a speedy recovery.
It's strange how our different hospitals have different guide lines. I am told if I ever feel unwell or if my temperature stays over 37.5 for more the 3 hours or if it exceeds 38 to ring the hospital ASAP or if it's during the week in day unit…[Read more]

Hi Min.
Thanks for the info. I have met Prof Jackson before at a support group meeting and as you say he was very approachable and easy to talk too.
Hi Teresa.
Just posted to you under carers 😉 This will be my second dose of radiotherapy and it's not at the same site. Though it is close to it. I was just thinking about how my back will…[Read more]

Hi Teresa.
We over here would love some of your excess sun. Though I think the temperatures you are having to endure are not good. Apparently there is no immediate end to our damp and soggy weather in sight 🙁
I'm sorry to hear about Peter being in pain I hope they find the right meds to get him pain free ASAP.
I know when my back was…[Read more]

Hi Etta.
I hope everything goes well with your collection and you get enough stem cells with your femoral line.

All the best
Andy x

Hi Liz & Kev
I think all us male MM suffers should follow Tom's advice because he is doing so well. Onwards and upwards eh Tom 😉
Backs are a major problem with MM and its good that Kev is getting a MRI ASAP. I've lost aprrox 3 inches in height due to damage to my spine and by the end of the day I'm struggling to stand upright.
I hope the…[Read more]

Hi Vicki & Colin
I'm glad your hospital visit went well.
I imagine you must be looking forward to the SCT with mixed emotions as you say there will be ups and downs. Hopefully it will pass without any problems and you are soon looking back wondering what all the fuss was about.
Mari I've had my Hickman line fitted for a few months now and…[Read more]

Hi All.
Thanks for all your messages of support and encouragement. After a weekend of contemplation I am now back to my "normal" ? self 😉 I must admit I was a bit down with the outcome of Fridays meeting but I have moved on from there and now know a bit more of the battle ahead. I'm going to maintain a positive attitude because I think we all…[Read more]

She did Dai
They had excellent seats and said it was well worth going.
She phoned tonight to tell me she has won a holiday for 2 for I week to the Bahamas,adults only with a choice of 3 islands,Her husband did not believe her,thought she was joking as she never thought to tell him she had entered .

Someone up there is looking after her.

Hi Beverley

Welcome to the forum. I'm sure you don't want to be here but they are a great bunch of peeople on here, you will get support, info and friendship. My hubby was diagnosed with smouldering myeloma 6 years ago and just started treatment last month. Come here and ask any questions, they are a very knowledgeable lot.
Regards Jean

Hi Liz and Kev

Great to see the lights are getting dimmer 😀 and to be honest its the chest that has been my downfall since I started my treatment (and I stopped smoking?)

Note to Kev, "You and I know that our young Ladie's know us better than we know ourself, so I suggest you follow my lead:::and do as you are told I do lol" keep up the…[Read more]

Aww Etta you tight devil not even parting with your stem cells, go on girl let them have them I promise they will give them back to you soon 😀

I had a Femoral Line done for my bits (in the groin) and am sure thats the best thing to do as it seems to me to get less infections or problems.

Etta did you have a Nurse with you all the time you…[Read more]

Hi Dai

Well what a game and a half you are having 🙁 but am pleased you are getting the treatment you should be having.

I know that Anti Biotics shouldn't be given out willy nilly but us MM'ers need them to be given at first click of an infection.

I also home you are "Tickety-Boo " by Wednesday and for longer.

Keep well My…[Read more]