Etta replied to the topic Start stem cell in the forum Treatment 13 years, 4 months ago
Still here ended up going to theatre to have lines put in my groin,
As the machine started to drag and my veins were getting tired.
So I think I might have an over night stay.love Etta
eve replied to the topic Post SCT Sickness in the forum Side-effects 13 years, 4 months ago
Hi Gary
Slim had his SCT on 13 may and came out Ist of june
He still takes ante sickness pills used to take Ondansetron but known to make you constipated,so now on Domperidone he was given 2 months supply by Kings,he takes them 30 min before meals,but does eat in between mealtimes.
If your sister is having all this and is still being…[Read more]
tom replied to the topic Good News X Two in the forum General 13 years, 4 months ago
Thank You Teresa yep that girl did well 😀 and the four month stint is great especially when he said I know it a long time but you know where we are if you need us 😀
And our Grandkids are getting us fit Lol
Love
Tom and Elaine "Onwards and Upwards" xxx
tom replied to the topic Start stem cell in the forum Treatment 13 years, 4 months ago
Hi Etta
Hope they got enough in one sitting 😎 I hate seconds Lol xxx
tom replied to the topic British 10K run for myeloma in the forum General 13 years, 4 months ago
Now thats the way to run it 🙂 xxx
tom replied to the topic Post SCT Sickness in the forum Side-effects 13 years, 4 months ago
Hi Gary
Am pleased your sister got through the SCT pretty well 😀 but am sorry to hear she is still being sick.
I also was same and to be honest was strill taking anti sickness pills for month months after my SCT, my consultant was also saying its a long time for you still to be wanting them :-/ but hey she gave me them and I took them…[Read more]
Etta replied to the topic Start stem cell in the forum Treatment 13 years, 4 months ago
Hi Tom, Eva and Teresa,
Thanks for all your replys just getting ready to set off to Blackpool vic now.
Fingers crossed the injections worked there magic.
Love Etta
tom replied to the topic Start stem cell in the forum Treatment 13 years, 4 months ago
Hi Etta
Not a problem.
When I had my harvest it took 3 hours on the machine, all pain free am pleased to tell you 😀 and collected enough in one session 😎 so didn't have to go back.
Good Luck with yours
Love
Tom "Onwards and Upwards" xxx
Etta replied to the topic Start stem cell in the forum Treatment 13 years, 4 months ago
Hi Tom
Thanks for the reply at least I know it's normal so no pain no gain.
Etta
tom replied to the topic The Answers in the forum General 13 years, 4 months ago
Hi Andy sorry seem to have missed this post :-S
You seem to be doing Ok M8 I do hope the Prof can help in some way
Tom "Onwards and Upwards" x
tom replied to the topic Start stem cell in the forum Treatment 13 years, 4 months ago
Hi Etta
Yep thats normal mine came in spasms and lasted about three days, well worth it though the more pain the more cells 😀
Good Luck and Nice "First" post hope to hear from you Both again.
Love Tom "Onwards and Upwards" xxx
Etta started the topic Start stem cell. in the forum Treatment 13 years, 4 months ago
Hi this is my first post, my husband joined in my name last year.
He had asked some questions and had good replys as I was very poorly then.
I started my injections for stem cell collection on wednesday 4 July and go tomorrow morning hopefully for my mobilisation. Yesterday was day 4 of my injections but I got really bad pains in my breastbone…[Read more]
Etta replied to the topic Bristol SCT in the forum Treatment 13 years, 4 months ago
Hi Stephen,
glad to see things are going well. Nice to here what to expect when Etta goes in soon, I will have to start grabbing some music together to get her through the days.
Keep your spirits up, it will all be worth it in the end!
Craig & Etta
tom replied to the topic Good News X Two in the forum General 13 years, 4 months ago
Thank you Ladie's and Pete:-D
Yep to say we had a few drinks am sure would be an understatement Lol.
Many Thanks
Love
Tom and Elaine "Onwards and Upwards" xxx
tom replied to the topic Some good news in the forum General 13 years, 4 months ago
Hi Wendy well done and you loog great on the photo 🙂 x
Love Tom "Onwards and Upwards" xxx
tom replied to the topic Hickman Line in the forum Treatment 13 years, 4 months ago
Hi Ali
Am also pleaed your Mum is doing good and I bet your Dad enjoyed his Bacon and Eggs.
Kepp strong and take care of yourself.
Eve I love shopping 😉 but not food nor clothes I love "Junk Shops and car boots lol Elaine (the young Bride) says give over we have thrown better away we dont need to buy it Lol, and she is correct Lol but…[Read more]
tom replied to the topic My husband has just been told he has got myeloma!! in the forum Newcomers 13 years, 4 months ago
Hi Dee
I had my SCT in dec 09 and am now in remission and drug free (age 57 just lol) and I cant do what i used to be able to do its now another learning curve for your dad and he will have to cut down some of the things he used to do till he is a bit better.
Tell you Dad I understand how he feels as I was the same when Eliane (ny young…[Read more]
eve replied to the topic Tickets for Wimblendom in the forum Off topic 13 years, 4 months ago
Hi Jo
Nice to hear from you:-)
I feel much better now,as not going to the hospital so much with Slim,and that by itself is great,as i can get food and drink more regulated at home.
Not needed any platelets so that is a bonus,he is looking a lot better,although he still try,s to over do it,next will be BMB to see if it has worked,then plan…[Read more]
eve replied to the topic Hickman Line in the forum Treatment 13 years, 4 months ago
Hi Ali
Good to hear things are going ok with your mum,
You make sure you take it easy as when this is over ,I think it,s when the hard work begins for the person who is doing the caring,it can be a very emotional thing as well as being aware that it takes so much energy away from your mum.
I kept the Grandchildren away for the first month,and…[Read more]
andyg replied to the topic The Answers in the forum General 13 years, 4 months ago
Hi Keith & Sue.
My original BMB showed my marrow was packed with MM but my last one showed I had little bone marrow left! In the little holes where it was supposed to reside but around the outside there was MM cells. So even though there was less bad cells I didn't have many good cells. The one question i didnt ask was which was the more…[Read more]