Hi Eve, Mari and Helen.
It was a tough consult but on reflection a good one. There wasn't much about my condition she revealed that we didn't already suspect but it was good? to have our suspicions confirmed. Now we know what we are up against and can channel our energies to the fight. It will be good to have a second opinion and some new input.…[Read more]

Wendy a brilliant photo and hair style. Well done you on the run

Jean x

Hi Andy and Steph

How do you feel about it all!!!! has it answered some questions.!!! Do you feel that everyone is trying there best for you!!!.I think over all you must be pleased even if you are unique.
Well you might not see it at this moment,but you have made the big boys sit up and take notice,
You have your answers and you know were you…[Read more]

Hi Jo

They said that the cells had been producing Pp for 6 years and then for the past 4 months the PP's were dropping and are now at 8. Consultant went on about rogue cells and made a comment about non-secretory but I got the info from the Myeloma nurse. Am doing research on it.

Will be thinking of you on Monday, good luck
Love Jean x

Hi Judd
How are things going,I see you did not get many reply,s I know Andy G went on them,plus another person.
I have bumped this up to the top.so if more people see it you might get some reply,s let us know how you get on .Eve

Hello Myra
Welcome to the site,

You have listened to the doctor,s what do they say!!!!!
My husband is the person with Myeloma,and he has damage to his bones but no compression on the spinal cord which is a good thing.If he was in danger of compression he would not have much choice.As for pain yes he is in pain,and has strong pain relieve,his…[Read more]

Hi Jean
Lets hope so,some one on the net said blackmarket asking £45,000 for tickets,but you would have to use a forged passports as they check ticket belongs to person who enters.
2 0f my daughters always put in for tickets and have done well each year.
This is the best though.Eve

That is great Eve she deserves it and I hope she has a brilliant time and that at the end she has something to go wild about!! Murray winning Wimbledom —- WHOW

Love jean x

Hey well done that Slim (and Eve 😉 )

Its been a long old haul for you both am sure :-/ but you have both done it with grace and am sure the odd cuss word (but thats Ok it helps8-) )
Hope the Pl soon rise and line is whipped out.

Love to you both

Tom "Onwards and upwards" xx

More Good News is great news 😀 and lets keep that rolling.

Well done Eliz and Wendy now thats the way to do it 😀

And Eve you know us men come first :-S and lots on us on three month stints now, all you young ladies are going to run faster to keep up with us oldie's Lol 😎

Love
Tom "Onwards and Upwards" xxx

Hi Ladies
Great to hear all the good news,but as per usual were are all the men!!!!!

Read your good news on face book Wendy. Brilliant news. Long may it continue

Jean x

Hi David
How about renewing your Vows,I should imagine as you got marries 50 years ago,things were hard,Do it in style,a lovely day to remember.Eve

Ha ha. Thanks Eve. My son said he would give me a ream of paper and I can bring it into them. Should put me in credit for some time 😛 will ask for them next time

Jean x

Hi Helen and Tom
Well he is holding his own,went down to 61.4 now 62.2 so not to bad.
As you can guess from his name ,he has always been Slim,he looks very healthy at 12st 8lb.But 9st 8Lb gives no room for any extra that might come his way.

My thanks to you both,for your support,it does look if he has turned the corner,had bloods taken…[Read more]

Hi jean
Just a quick reply.
There should be a notice some were that tells you ,you have every right to see results of test,and bloods are test.Next time get 20 pence out of your purse and give it to them and shame them,how dare they not give you a print out!!!!!!
At the moment I know the results by phone but every week or so I ask for a print out,Eve

Hi Eve

Well I lost lots of weight and it stayed off for MONTHS but it came back and has been slowly climbing to above my pre MM weight 🙂 but I am told by my Dr that it would help if I lost a little bit (and here is him sat with a belly as big as mine lol) (((nearly)))

Small plates and steady as Slim goes no rush it will come back Trust me…[Read more]

Hi Eve

Thanks for that. A couple of months ago I asked for a print out and was told they were not allowed to print the results – saving paper!!! So i just make a note of them in Myeloma diary. They said bloods were ok haemaglobin 13.5. Said light chains had changed a bit. Now that I know a bit more I will be more demanding. I remember one of…[Read more]