Hi Dai
I don't know if you use twitter but after a bit of hunting you can find some very useful links to reports from the US on there. I find it very useful. I now follow several posters from the US and get the latest news from over there.

Andy

Hi Andy

Well good luck for Friday,either way I think it will be a great relief.You will know what you are fighting so you should be able to take part,and do some research towards that treatment,you have jumped so far ahead with different treatments in so little time.
All treatments need time to work Velcade they say 6 cycles and like to know…[Read more]

Dai
I would do it now,but my dead mother in law use to tell people i started the G&T at 10am,but you have no excuse enjoy one then have a snooze,Bridget would be laughing at that, Eve

Hi Dai
Bridget amazed me,as I know from the amount of pain relieve she was on and still in pain,how hard it must have been for her,they gave her another hurdle to jump and she put her self forward.
She had the will to live,thinking always about her daughters and her mum,always there for them,Grandchildren as well,she has left her own goodness…[Read more]

Dear Dai

What a lovely thought for Bridget. I never thought I would cry over someone I never 'met'. Bridget was an inspiration to me through her posts not just in answering queries that I had but her posts to other people. Her family must be so proud of her as she was a truly wonderful person. She will be missed. Rest in peace dear…[Read more]

Hi Everybody
Just got in,I have been down to the sea front walking and thinking about Bridget.
I hope she is there with her family looking on,I hope her daughters are strong.
They say things happen for a reason,and this is one of the times you think life is so unfair,Bridget is no longer in pain and to me this must be the blessing in her…[Read more]

Hi Alix
Good luck with your run and money raising. I used to run ordinary marathons before Myeloma damaged my back. I regret to say I only once ran for charity which I now regret. If only we could turn back time.
Once again good luck with the run and training – the hardest part! – and thanks for supporting Myeloma UK.

All the best
Andy

Hi Teresa
We had a great time in the lakes thanks. The weather was a bit wet but hey without the rain they'd be no lakes 😉 unfortunately my back was causing me a bit of trouble so we didn't get to walk far but the change of scenery did us a world of good. We've booked again for early September hopefully the sun will have turned up by then…[Read more]

Hi All.
Many thanks for taking time out with all your suggestions.
Dai thank you for your thoughts and advice I found them very helpful and insightful and will base my meeting around your advice. I really like your posts and how much thought you must put into them I find them very informative and helpful.
David I think I have been trying…[Read more]

Well Andy what can I say its almost if I have started a ball rolling,did not mean to just found it strange so many treatment with out real progress or time for progress.

If I was you I would ring up your consultant and ask to see him!!! he should be able to give you time away from the clinic!!!!! don,t go on chance.

Have your list of…[Read more]

Hi Tina

And well done, making any decision after SCT is hard, and to make one that delay's our "Back to Normal" is even harder but I feel you are correct its too early, I was daft and jumped straight into it as soon as poss even though both consultants at both hospitals and two leading Nurses told me not to, (stuborn old cuss I am)

I also…[Read more]

Hi Alethea

Sorry you had to join us but you will have found a great site with great folk (oh and me?)

I found it easy to tell people about it, I feel that the problem shared is a problem well halved 😀 the more you have to help you bounce back up when yopu are feeling low the better 😎

I also had that depression but a half hour under…[Read more]

Hi Andy

Well am sure you know me by now ??? well am happy if my Doc is happy 😀 if he aint got a smile on his face when I go into the room am out till he has Lol, as Long as My Man says its working I dont feel the need to ask anything else 😎

And am "Onwards and Upwards"

Good Luck M8

Welcome to the forum Alethea.
None of us want to be here but here we are. You will find us a friendly bunch – sometimes funny sometimes sad but always supportive. We are all at different stages of this dreadful disease and everyone's journey and treatment is different. It's a very individual disease.
I myself was diagnosed October 2011 after…[Read more]

Hi Cinzia
Hello and welcome,
i think like me a lot of people have missed you joining the forum,because unless you have a related condition you tend not to go in to that subject.

My post now is just to say welcome and hope you have a good response.Eve

Hi Helen
Hope you are feeling better,not nice at the best of times,but must be an added worry with Myeloma even when in remission.

I can understand you wanting to get back to normal,and go back to work,there is a nurse on the chemo unit,who has had treatment,her words were[ i just want to be normal],I did not ask much just talked about her…[Read more]

Hi to you all
Tina I can only tell it from Slims side,had a few problems with his bladder side,it was an infection,antbiotics given.another side effect way down the list.
I must admit I gave in with Slim at one point tried commode plus bottle,to him it was a no no,I kept telling him be ok once he was feeling better,he was not having any of…[Read more]

Hi Keith
I take my Rev just before bed. Can't remember if I was told to or I just assumed that was the right time because that's when I was told to take my thalidomide when I was on it. It may of been in the Rev box paperwork along with the side effects – I sometimes read them when I'm bored 😉

Hope everything turns out well this week…