Hi Dee

WE live in Deal kent,it is my husband who has Kappa Light Chain Myeloma,
He is treated at Canterbury,He was diagnosed after many months of pain,and weight loss,that was August 2010,finally diagnosed February 2011 18 months on Myeloma Trials X1 which might be available to your Dad ,he finished Chemo, he has just had a Stem Cell…[Read more]

Hi Dee
I know all this is worrying,and you will continue to worry,but take some deep breaths,and think I can do this,and the calmer you stay,the more help you will be to your Dad.

Right now your Dad has a lot of the symptoms,which are not very nice,the first thing they will do is control the symptoms,stop Dad being sick,and help him regain…[Read more]

Glad to hear mum is feeling better,

When Slim was first taken in to hospital it was with AKF and hypo-calcuimia(spelling) ,within 48 hrs the difference was amazing,
The Kidneys should clear but it,s sensible to make sure your mums fluids is high to help clear any chemo.

As for sunshine its no fun for Slim long sleeves hat and factor 50:-(…[Read more]

Hi Mari Sarah and Min

My Problem Mari is I am deaf so phones are a no no,I hate them,miss a lot of the conversation!!!, so prefer to do face to face,If Slim goes on the phone by the time he has come off,he cannot remember what was said,lol
Would be interested to know how you get on Sarah,I know a few people who actually do counselling,may be…[Read more]

Hi Tim Jo and Sue

Went to hospital today,and Slim had more platelets,the sister said it is normal,and she thinks Slim looks very good after SCT,but he now weighs 62k so all skin and bones.

Going for bloods on Friday instead of tomorrow so will be able to see how far they drop,today before platelets they were 10 and neuts 1.0,he says he knows…[Read more]

Hi Rachael

Lots and lots of fluid,any thing that goes down,Jo use to take the tablets in yoghurt to get them down,the whole illness is a roller coaster ride,with highs and lows,
My advice is get your mum on here and she will see how quickly people respond,and it will help her,because this whole thing can make you very depressed.I hope they…[Read more]

Hi Rachael

Am pleased your Mum Janice is home now (but keep an eye on her temp).

Am sure it will be the meds your Mum is having that is making her loss her appetite, I was same after my SCT and it was hard to face a plate full so my Young Bride (Elaine) gave me a smaller plate with smaller portions so as not to over face me with…[Read more]

Hi Eve and Slim

Yes I understand your concern I was worried with every ache and pain cough or sneeze but the Dr's and Nurses said all will be fine and it was and is 😎 I had to have more blood once and platlets twice after i got out within my 100 days 🙁 but it picked me up a little bit each time they threw it in 😎 I was told "Tom you are…[Read more]

Hi Ozzy

A well done to you for making the decision to pack in work, as for me I still aint made my mind up yet (i know i dither) but mine is down to the financial side of it :-S, we had some put to one side for a rainy day but am sure you all know its Pi55ed it down since 2008 when My Young Bride (Elaine) fell ill then I in 2009 but hey Ho…[Read more]

Thank you Helen and Ozzy
For your replies,
When Slim was in hospital at Kings he had 5 units of platelets,Then when he was taken in to Canterbury hospital he was given 3 units of blood and 1 unit of Platelets,He has been out 10 days and had 2 more units of platelets,and we go in this afternoon for another unit.
I asked the consultant in…[Read more]

Hi Ozzy
Getting Myeloma does make you question,how you manage the rest of your life,I think in that respect it is not a bad thing as you value things more.

Ozzy if I am correct everyone has a certain amount of these cells in the bone marrow its when it goes above 5 it becomes an issue might be worth ringing Ellen,to confirm.!!!!

Have a good…[Read more]

Hi Sarah
Sorry I cannot help you with the rash,Henry does sound if he is over doing it a bit,but that,s what men do,the desire to be back to normal is strong,Slim is the same.I do not know if this is any help to you,but Slim has used a product called POLYTAR from boots,its for people who have trouble with skin,I also rub him down with coco butter…[Read more]

Dear Siobhan
I am very sorry to hear of your mum passing. I only knew her a few months but she was inspiring. There are a lot of inspirational people on this site but in my opinion your mum was the star. She gave advice and comfort freely and helped me when my head was filled with dread of MM when I was first diagnosed.
I hope you can gain some…[Read more]

Hi Rachael

A warm welcome to the site, and like us all am sorry you had to be here. I wish you and you Mum good luck in your Mum's road to remission.

I hope your Mum is feeling better today and the temp is sorted.

Keep strong.

Tom "Onwards and Upwards" xx

Hi Roy and of course That wonderfull Lady Ann

Well done to you all, and let the fight be won 🙂

To One "Onwards and Upwards" Young Lady 😎

Tom "Onwards and Upwards" xx

Hi Siobhan

My name is Eve,I left a massage for you on your mums facebook page,I kept looking out for your mum posting,because no matter how ill she felt she would always take time to reply to new posting.

She was a special lady and will be missed,as you say she is now out of so much pain,I am so glad her passing was peaceful,and hope all the…[Read more]

Hello Siobhan

I read onFB of the passing of your lovely mum. I was completely devastated as I was "talking" to her a few weeks ado. Like the others have said, I never had the pleasure of meeting your mum, but she was my friend and so vey helpful and supporting tome and us all even in her bad times. She had a great sense of humour and she wil…[Read more]

Hi Siobhan

Well am sure you have the strenth your Mum had.

Your Mum was a great Lady who had time for everyone and yes her spriti was hard to break and am sure reading your Mum's old posts will let you know that she was strong and witty On line as well as at home.

Hugs sent to you all at this sad sad time

Tom xxxx

Hi Rachael

Its such a shock to the system, In many way,s your just glad you no what it is,we have all been there,if you keep reading the back post I am sure you will find lots of answers to you questions.

Only advice I can give you write you questions down before you see consultant,They see this thing every day and are so used to it,they…[Read more]