Rachael

Sorry that you have joined us but you are very welcome. You have come to the best place for support and information. I am new to the treatment aspect of this awful disease as my husband has just started first cycle of CDT, but if you have questions or worries there will be someone that can help.

I hope your mum does well on the…[Read more]

Devastated to hear the news of the passing of Bridget. Such a lovely lady who will be truly missed. Deepest sympathy to her family

Jean x

Hi Roy

Thank you for you post. It is so good to read something positive. My very wishes to you, your wife and daughters

Love Jean x

Hi Jane

You will have to go out and buy yourself a big floppy hat and factor 50 sun cream,lol. My brother who lives on the Wirral told me you actually had some sunshine the other,but you know what these scousers are like,all talk.:-)

Slims eating better,so he has a little bit more energy,its hard work for him as he has no taste buds left,so…[Read more]

Hi Stephen
Slim had his SCT and came home on the 1st of June,since then its 2 trips to local hospital each week to check on bloods plus any extra trips for platelets,he also spent 3 days in local for fluids,plus blood and platelets,have been back to Kings who are happy with him,and want to see him in 2 months.
My own opinion is this is were the…[Read more]

Hi Jen

We all felt like that at the very start,medical jargon test results and wondering what is going on.

Some people get confused like your dad,my husband is the same,there is no way i could let him go for treatment on his own,after 18 months of chemo and treatment,he is not the person who started this treatment,it does not happen to every…[Read more]

Belated Birthday Greating Jo I hope you had a great time

Love iccle ole Tom xxx8-)

Hi Ian

Well you for one have made a fat Bald man very happy Lol, ye the skipping was trying to teach Grandson Liam how to skip 🙂 Hope his Mum and Dad keep it up so he wins the Race at skool 😎

Eve I have been told its alo for the young at heart and am sure we all fit into that one Lol xx

Jo Am sure it will be from lifting the beer and…[Read more]

Well i have to say Stephen,they sounded if they did a good job on you,Slims was very different.

We travelled 86 mile went to chemo out patients were he was given his chemo to help generate BMC out into blood and sent home with a five day course of injections.Travelling 86 mile back. Total 172 mile round trip to Kings London from the south…[Read more]

Hi Jennah

Am sure it will go well, send my regards to your Dad and wish him luck, let us know how you BOTH got on as am sure its not easy sat waiting.

Tom "Onwards and upwards" xx

Hi Onlyme

Sorry to read about your Mom its a bugger this MM and you know am gonna say it but I cant add or help on this one just wanted to wish your Mum a good journey on the road to remission.

Tom "Onwards and Upwards" xx

Hi Gill

It must be a very hard time for you at this moment I do hope they find something that will help Stephen,I do know some myeloma,s are more aggressive than others,i do not know if you remember Sharon who use to post,she had a more aggressive type.

I found it difficult to get Min on facebook,so i went through Tom or Dai they e mailed my…[Read more]

Hi Jennah

Haven't experienced Chemo in hospital with Frank (on tablet form) but when my brother was having it his wife used to txt me to tell me he was snoring his head off!!

Take care and best wishes to your dad 😀

Jean x

Hi Jane

Welcome to the site I am doing catch up,I loose track of what is going on,that,s why I am late welcoming you.

You sound if you have been through the mill a bit,i take it that you did not have a SCT because of age,and treatment that you have already had.

It takes awhile for energy levels to return after CDT,my husband had it then…[Read more]

Hi Onlyme

So sorry to hear your news,cannot help with your questions as Slim is behind you on this journey,lets hope the Rev works it does seem to buy that extra time,which in its own way helps you to adapt.

Sorry I cannot be much help,but if kind thoughts help,there is plenty coming your way.Eve

Hi Ian

You must be feeling a bit down,all that treatment and mm taking hold once again.i hope the velcade does the trick again and would be interested in the result as Velcade worked well for my hubby first time round,and its good to know what is round the corner.

Some times I wish I could swear on this site,and i am too old for the under…[Read more]

Hi Mari

I had just been saying to Frank a few minutes ago that I was going to phone Jackie our myeloma nurse tomorrow to clarify things but he said he would rather I didn't. He intends to speak to consultant when we see her next Thursday. Just hope Frank has no problem with reduced Thalidomide.

Thanks Mari
Love Jean xx

Hi Ian

Well you have done well out in 48 hrs 😎

Gosh how weak our bloomin bones are? I have been today to see my Doc bloods are good but I tild him about a pain in right upper arm/shoulder so he sent me for X ray so have to wait till next thusrday for results. am sure he will say its just old age 😀

Keep fit

Tom"Onwards and…[Read more]

Hi Jo

Happy birthday. Hope you have a lovely day – 21!!!! You had sunshine – lucky you – we are blowing up for a storm. Hope you had a nice drive

The consultant said that the myeloma cells are changing and the predominant myeloma cell is not producing protein says that it is a sign that the myeloma is progressing. Told us the count had…[Read more]

Hey Vicki that's great news about Colin. Hope he goes from strength to strength. I thought that about the protein but I taped the conversation so I will listen to it and then ask her next Thursday.

All the very best
Jean x