Thanks Keith

It is the para protein. She was always please when it came down. But the decline has been dramatic and she said there was something going on. I emailed Ellen to ask her. So will see what she says.

Thanks
Jean

Hi Sue

Welcome to the site
Glad to see you managed to get some help with your questions,you should find on here if people cannot answer your questions they will point you in the right direction.

Let us know how things go with hubby remember there are people who are here to help you.Eve

Hi Sherif
I have come on your post just to say hello,and say I hope you find what you need,and wish your mother well Eve

Hi David

Its all coming out now,its not that you could not sleep,its because you did not want to sleep:-) . Must admit I have done a few champagne breakfast after all nighters the only problem was I could never remember who came to breakfast,so never kept in touch.(mess 41 commando unit) bar would not dream of chucking you out.

Had 4 hrs…[Read more]

Hi Dia and Tom

Well Tom I know I said I am just the carer,but I forgot to mention everything else,but as it would take,all day I will just except your praise:-P lol

Yesterday I took Slim to Kings starting off at 10am,getting there for 1pm and then spending hours waiting for bloods,doctor,then prescriptions ,getting away at 5pm,and getting…[Read more]

Hi Ian

Wow I heard what you have had and its amazing, I hope you are doing well, are you still in hospital?, how did you fracture your neck?. gosh I dare not sneez now.

Hope your soon better and please dont sneeze

Tom "Onwards and Upwards" x

No No No lol I dont want to prick my self Lol I (at the moment) dont need to BUT could I stick a needle into my Tum ??? am sure I could If I had to but if the option of a Nurse doing it for me first came up :-S am off with that option Lol 😎 Good Luck to all those that do it themselves 😀

Tom "Onwards and Upwards"

Hi Helen and John

May I ask you if the SCT was a success ? as since mine in December 2009 I only had Zometa infussion's? Is John having any of the bone strengthening drugs? as that could cause Jaw Problems?. but dont stop taking any treatment that is helping stop the MM.
all of us are different in our treatment and side effects.
Hope all…[Read more]

Hi Keith
Yeah I self administer the injections. It's not too difficult you soon get used to it.
All the best
Andy

And I hope you had a good sleep Dai its a begger I know, been done it that sort of thing, but I used sleepy pills not every nite just now and then to help me catch a bit of shut eye 😀

And Eve You my dear are not Just the Carer you ARE THE carer 😀 without people like you and all the others that have partners and Family looking after us our…[Read more]

Dia

My eyes have so much grit it them,through lack of sleep,and I am just the carer :-SEve

Hi Keith
Good luck with the Rev/Dex treatment. I hope everything goes well for you. I'm on Rev 25mg for 21 days then 7 days off and Dex 40mg days 1-4, etc with tinzaparin injections everyday. I get the usual Dex moods 🙁 but I think I'm tolerating Rev ok – just the occasional slight cramping in my feet at night time and a bit of tiredness. My…[Read more]

Hi Keith

Lets Hope you will be taking them for years and years Good Luck with it all Keith and heres to minimum side effects 😎

Tom "Onwards and Upwards"

Hi Mavis
Thanks for your wishers.

No such luck on the bloods,came out of hospital on Saturday,went yesterday to check bloods,phoned he needs platelets so back in to day,then check bloods again Wednesday,Then 86 miles to Kings Thursday.
Tried ringing Kings yesterday as Canterbury could not answer a question about injections,still waiting a…[Read more]

Hi Helen.
Glad to see you enjoyed yourself in New Zealand.
I asked the same question about how long do I have to keep up the 3 litres a day a couple of weeks ago and got the same answer – forever! Fortunately my taste for beer has come back a little so that does help 😉 I was getting sick of just water and tea. So now I have a beer or two a…[Read more]

Hi Keith
Sorry that your fears have been confirmed. When we spoke at the support group you were very sure you'd relapsed. I'm on the Rev/Dex regime though not as maintenance as a treatment. Just started my 3rd cycle Saturday. Hopefully it'll do great things for us both.
Have a great time in Jersey and come back fighting fit ready to take on this…[Read more]

Hi David.
I'm on revlimid and dex as a treatment after all other treatments failed. I have just started my 3rd cycle. My paraprotein level came down slightly at the end of cycle 2 from 41 to 35. Not a big fall but it was in the right direction. I'm not getting to excited about the reduction because I've been slightly lower before. I do get…[Read more]

Hi Jen
You could be talking about my husband,except he had tumour on back,plus lesions on skull and shoulders after first CTD his bone marrow went up to 80%,so started Velcade which took it down to 6%,it was still going down,then he had his SCT and has come home,but is having a few blips on the way.

Slim has a chemo brain,I drive most of the…[Read more]

Hi Wendy

Thanks for your very informative reply. Frank is only on 100mg of Thalidomide and had this bad reaction, I would hate to see what he is like if he was on 200mg!! We will see what happens tomorrow but I hope they reduce the doseage and then increase it gradually. My concern Wendy is that Frank has a history of drug intolerance and I…[Read more]