Hi Teresa

I cannot think of better goals to aim for than the birth of a child and as we are. Both twitchers in a small way,it's lovely to see the birds in there mating colour,s not that we have any exotic birds around us,it's just nice to watch there behaviour.

At least they are keeping the Myeloma from rampaging which will buy you time,plus…[Read more]

Hi Sue

I understand were you are coming from but it will do you good to have a bit of me time,feeling guilty about it is natural.

I am very much the same I spend a lot of time in the hospital with slim,it takes me 1hr to get there,buy the time I get back my day is finished,buti am aware I will have to pace myself as I will not be. Much good…[Read more]

Hi Teresa.
My bone marrow test wasn't too bad on Tuesday though the doctor had to go in twice! My blood test showed I was Neutropenic so that meant I had to be careful and try and avoid people with bugs. Today I went for more blood tests and also saw my consultant. My bone marrow test showed my healthy marrow had been cleaned out, hence the…[Read more]

Hi Paul

Sorry its not worked out SO FAR am sure we will have more bridges added as time goes on, stick with it and stay strong
and fingers crossed 🙂

Tom "Onwards and Upwards"

aww Sue I am sure its hard for you folk that are erm on the side lines and having to leave us MM folk alone to all the treatment, its a sad thing but it has to be done anm afraid.

You Time is somthing you want to do but cant because you wory too much about Michael.

Hope all is soon sorted out

Love and Hugs to you Both

Tom "Onwards…[Read more]

Hi Eve and Slim

Am sure Eliz will cope re the washing machine as my Young Bride has coped for over 36 years with a mere Male not able to use a washing machine? I fix it when its broke (if poss) and drag it out and take to the skip if i cant fix it so all I ask is the Young Bride is able to use it lol, and to be fair am same with…[Read more]

Hi Eliza

How an earth do you manage with a husband who cannot use a washing machine,!!!!

Teresa how are things going with you, I hope you and you husband are finding some quality of life,try to hold on to the thought the experts are not always right,some times you must have goals and dreams to hang in there.Slims goal is New Zealand,we have…[Read more]

Hi Paul

Fingers and everything else will be crossed that treatment will work. Have a brilliant weekend – enjoy the sunshine

Jean

Hi Paul.
I've had the DT PACE treatment. I only had one cycle of it though and it was deemed to be a failure for me. It didn't bring down my paraprotein levels but there again none of the treatments I've been through have been successful at lowering my levels below the mid 30's.
I coped ok with the DT PACE I didn't have any serious side…[Read more]

Hi Paul

Sorry to hear Velcade did not work,I think Andy G had the same treatment,may be it is an age thing as you produce more cels the younger you are ???

You must be feeling a bit down,it,s easy to tell you there is something round the corner but your options are getting reduced,I know some people have had SCT with a higher count might be…[Read more]

Hi Eve and Slim

Well Eve this post made me Lol (its just like having a baby lol)

And as for the water good lord I did struglle to drink the amount they wanted me to and the drip for me was far better, yep it was a struggle to unplug wrap cable up and find a FAST way to the loo (failed many a time but hey ho it gave my nurses a laugh to see…[Read more]

Hi everyone

Well Dai Slims mind set is never again,told him it,s a bit like having a baby will forget the bad bits,(no sympathy).

In Kings they keep them in for a month no matter what,so he has been warned as to drips,I can count three at this present moment plus pump,they do not do ice and do not encourage any food other than hospital food…[Read more]

Now aint I said that before The "You can do it Dai, if anyone can then its you" and am as pleased as punch that you have proved me correct, way to go Dai Onwards and Bloomin Upwards, am sure you have more of the "Whatever it takes" in you than I have and I aint gonna let it take me without the Fight.

Keep strong Dai and keep fit 😎
(shed a…[Read more]

Hi jacque

My husband is in Kings having hit SCT at this moment,just getting his platelets, dong fine but is having problems eating,has come out with a rash on his legs but it does not seem as bad as I expected.

I think he has his low points in the morning,build up of throat over night plus feeling sick and rushing to toilet,expects to be…[Read more]

Dai you are okay and ready for tomorrow and I'm so happy for you.

Love Jean xx

I am over the moon to read you news Dai. You and Janet deserve something positive. Really great.
Love Jean xx

Hi Sarah and Henry
Well done to both of you,Henry is doing very well it only seems like the other day you joined the site,and there you are SCT over thinking of going back to work and doing the race for life.

Well done keep the good work up,Eve

Hi Helen

A beautiful place and its nearly winter there,I enjoyed the peace you do not have the flight paths or the motorways.

Slim and I next year,hoping to do Christmas but will have to see.
Have a lovely time. love Eve

Hi Teresa.
I'm glad you had a good time at the brew pub for mothers day. I hope this weekend goes well for you and Peter with your children and grand children around you for the long weekend.
I go for my bone marrow test on Tuesday – though I'm not looking forward to the test itself it's the results I'm more nervous about.
We had a fun night…[Read more]

Hey Scott

Agree it was a good day. But you missed one event – rugby. Broken hearted that Ulster didn't win but there again they were terrible. Dont think they could have played netball!! Frank fell asleep towards the end of the Chelsea match and would not believe me when I told him that Chelsea had won. United loosing!!! We have a split…[Read more]