Hi Graham

Sorry you are not getting on well with your Dr 🙁 but i think that MM might scare them (i know tel me about it lol)

But I am blessed with a Consultant that told me I dont need to go to the Dr for MM if I feel I have a problem I just have to phone the Ward up for advice or help, and that is what I have done.

Good Luck on your…[Read more]

Hi Roz
So glad to see you are moving on with your life,it is hard when there is so many things around you,but it,s true what they say life goes on,children seem to bounce back,they have there own friends they can talk to about it and it is hard for anyone to take on anyone,s grieve .

Although i am here to help with my daughters grieve,we do…[Read more]

Hi Sarah and Henry

Well done on doing the race for life, I remember my young Bride (Elaine)doing it the year after she had her op for breast cancer and the year i was told I had MM it was a very emotional time seeing the Number on her back with the words "I race for My Husband and Myself" gosh i can feel tears as I write this bugger…[Read more]

Hi Antoinette

Hey am Sorry you are teary 🙁 go my way girl (it works for me) cry in shower you dont notice so much and more important I felt that if I have this MM it wont take me so I told my Consultant I dont want to wait (he did say we could pospone treatment) and i want to throw whatever he could while I was still young and fit (ish lol)…[Read more]

Hi Sarah

Brilliant photos and the ORANGE really stood out. Well done you. Hope Henry gets rash sorted soon.

Take care
Love Jean x

Hi Antoinette

A Warm welcome to your site :-D.
Sorry you have got MM I was told in 2009 had 5 courses of CTD then stem cell transplant December 2009 am now in remission and doing well, am a iccle bit older than you am 56 soon to be 57 😎

The Harvest and return of my Stem cells was all done through my Femoral line, and to be honest all…[Read more]

Hi Antoinette

Welcome to this site,we will help you all we can,there are lots of people on here who have been through the same thing as you,or who are carers to those people,it is very scary all the information you have to take in,medical jargon and worry.
Try not to look to far ahead and take one day at a time,forget SCT for now just try to…[Read more]

Hi Antoinette.
First of all welcome to the forum. None of us want to be here. You'll find lots of support and advice here in your journey and battle against MM. Everyone's journey and treatment is different. It's a very individual disease.
Myself I was diagnosed in October 2011 and I'm or rather my paraproteins are proving to be a challenge to…[Read more]

Hi Jean and Frank

I can Copy what Deb's has said its the start to remission, and with that I wish you Luck it will happen but along they way you will feel a bit? rough, fingers crossed that you go through it as well as I did 😀 uphill but with a smile 🙂

Love and Hugs

Tom "Onwards and Upwards" xx

Debs I sent you an email early today. I have 2 email addresses so I sent it to both. You must not have gotten it. I think what you went through – Frank will go through as well. My memory is non existent. I wanted to know again your experience. I read your blogg but as I said memory gone out the window. Frank treatment is Radio therapy, CDT and…[Read more]

Hi Teresa
No not in the lake district till the end of next month. I've not been posting but I have been reading. I've been up and down with my moods – I'm blaming the dex effect. I've had my blood tests again today potassium is low again but everything else was ok. Dreading the result of my PP levels and the bone marrow test. It's about time I…[Read more]

Hi Keith.
Hopefully it's just a blip and not a relapse. My last PP reading was 41! I've never been below 36 🙁 I too have the dreaded BMB Tuesday might see you at the day unit. Hopefully we'll both get some good news.

Take care.
Andy

Hi Eve and slim

Well I for one (as a mere male) feels real sorry for Slim and his cough cough problem.

Onwards and upwards Tom xxx see the thought of it made me writ the end back to front lol xxxx

Hi Gill

Trust me girl we wait for no apologies from you 😎 and am sure our moderators understand the words sometimes need to be said to vent our frustation I for one aint got a problem with it 🙂

Love and (((HUGS))

Tom xxxx

Hi Keith

Well I have my fingers crossed for you also and lets hope its just a blip M8

Tom "Onwards and Upwards"

Hi Jean and Frank

Well its here now and am sure you will get through it.

Advice? ? well take it one day at a time and rst when The body tells you yes Jean you because as the "Watcher" its hard too so both of you take it easy no rush for anything and it will all fall into place 🙂

Good Luck in the road to Remission.

Love
Tom "Onwards…[Read more]

Eve and Teresa thank you so much for your posts. I am beginning to feel better about this. I really fell apart yesterday. Teresa I have been following your posts and am so sorry about your husband. I hope he gets relief from his pain. This is such a horrible illness. Eve I hope Slim is feeling ok.

Love jean xx

Hi John

Yes it is way down the list of side effects,and as you say may be men do not like to mention
It.Slims never been shy in that department.
Once Slim had antibiotics he was fine,he started bad P&N after he came off Velcade,but when he came to Kings they upped Amitryptiline and now his legs are fine.
Doing well at Kings I am having…[Read more]

Hi Jean

I think no matter if you are expecting it,everything seems like a bit of a blow as you have said 6 years is good. Every day is a new learning curve, in time it will just seem normal. So try not to worry,we have all been there before you and will help. You on this journey.

Frank has been caught early,so he does not have much bone…[Read more]

Thanks Jane and Jo

I know it had to come Jo but it feels like 6 years ago when he was first diagnosed – scared!! Frank seems to taking it better than me. He's full of chat and we are going out for dinner tonight!!

ThAnks again for your support.
Love Jean xx