andyg replied to the topic More later but… in the forum General 13 years, 6 months ago
Hi Dai.
You sound like you went through a similar experience as I did a couple of weeks ago – though my temperature topped out at 38.9 Glad your on the mend now.
Take care
Andy
andyg replied to the topic New to the site in the forum Newcomers 13 years, 6 months ago
Hi Vicki.
A warm welcome to the forum. I have MM myself diagnosed October last year. There's not much I can add that hasn't been said already. Just remember everyone's journey through MM is different. Treatments vary some get bad side effects some get very few side effect etc etc. but whichever way the journey takes Colin keep the us informed…[Read more]
andyg replied to the topic Newbie in the forum Newcomers 13 years, 6 months ago
Hi Gail.
Welcome to the forum. I was diagnosed with MM October 2011 – 3 days before my wedding so my wife has been a carer since we married. Not a nice start to married life! I think it can be easier for the suffer than the carer at times.
Feel free to ask ANY questions on here come along for a moan a shout a scream! You'll always find an ear…[Read more]
andyg replied to the topic New – but feel I know you already! in the forum Newcomers 13 years, 6 months ago
Hi Rosie.
Welcome at last to the forum. I was diagnosed October 2011 so you've been on the MM journey a lot longer than me. I haven't had a sct yet as the medics are struggling to get my paraproteins down. I have been told sct can be quite difficult for some but not having been through it myself I can't offer an opinion on whether going for a…[Read more]
tom replied to the topic Newbie in the forum Newcomers 13 years, 6 months ago
Hi Gail
Well I thought I had replied to this one?? might have gone into cyberspace?
So A Warm welcome to you and Howard, you have got the good group and you will find the folk on here very good for info and a cyber hug as and when (well even when you feel you dont need it) you need it.
Love
Tom "Onwards and Upwards" xxx
tom replied to the topic Busy Week in the forum Treatment 13 years, 6 months ago
Hey Eve and Slim
Thoughts are with you and fingers are crossed for Slim's SCT
Love and Hugs to you all
Tom "Onwards and Upwards" xxxx
tom replied to the topic New – but feel I know you already! in the forum Newcomers 13 years, 6 months ago
Hi Rosie
Welcome to the Group, am sure you will be pleased you have made the "Plung" and wonder why you didn't do it before.
Keep strong and keep us posted in the treatment you are offered:-D
Love
Tom "Onwards and Upwards" xx
tom replied to the topic More later but… in the forum General 13 years, 6 months ago
Well we have been through the wars Dai 🙁 and may I say you cope with it realy well take in your stride and dont blame anybody (ang on am gonna read it again) erm read it again and ye am sure we are guilty of throwing in the "Its Ok it will get better" and "Biotics will soon sorth that one out" ye av done it Lol.
But seriously Dai I am…[Read more]
tom replied to the topic New to the site in the forum Newcomers 13 years, 6 months ago
Hi Vicky and Colin
Yes My Young Bride (Elaine) and I are doing great thanks, just waiting for the warmer weather to arrive 😎
Ps I think I might have something wrong with me :-0 :::::::::::::::::::::::::::::::: I dont like Golf Lol
Love
Tom "Onwards (and golf free) And Upwards" xxxxx:-D
tom replied to the topic New to the site in the forum Newcomers 13 years, 6 months ago
Hi Vicky and Colin
A warm welcome to the site 😀
I am the one with the MM and My Young Bride (Elaine) is the watcher (dont like the word carer) and I also have been a "Wathcer" as well as a MM'er as Elaine had Breast Cancer i 2008 and as you now know I got MM near as one year to the day Jan 2009 so we have both been patient and watcher's…[Read more]
andyg replied to the topic New Need to talk in the forum Carers 13 years, 6 months ago
Hi Teresa
My sleep patern is all over the place some nights I sleep right through and others it takes a bit to drift off. I'm back on my dex for the next 4 days so I'll be needing my iPhone fully charged.
On the beer front I prefer the double brewed beers though the triples are good too. My wife Steph enjoys the fruit beers though she's a red…[Read more]
andyg replied to the topic New Need to talk in the forum Carers 13 years, 6 months ago
Hi Helen
My hair "style" has been the same for a long time 🙁 My brother and I used to be called Phil and Grant when we went out together! Aka the Mitchell brothers 😉 I can't remember the last time I paid to have my hair styled. I started to lose it in my early 20's. I'll look around for a picture of me with hair. It'll take some uploading as…[Read more]
Etta replied to the topic Newbie in the forum Newcomers 13 years, 6 months ago
Hi Gail,
I, like the others, know what your going through. My wife was diagnosed July last year and started on the trial late September.
It's not easy to see the person you love become moody, not eating, irritable, and seeming to waste away in front of you.
Don't take things to heart when they say things to you that you think hurt, it's not…[Read more]
eve started the topic Busy Week. in the forum Treatment 13 years, 6 months ago
Hi Everyone
We have a busy week ahead of us,with lots of things we do not want to do,Matty first,then daughter off back to NZ and Slim going in for SCT on Sunday.Not a good week but i am sure we will get through this:-)
Glad to see Bridget back,getting worried about you.
Again thank you for your thoughts and support,as Tom would say onward…[Read more]
eve replied to the topic Newbie in the forum Newcomers 13 years, 6 months ago
Hi Gail
Reading your post,it could me writing it,only the year would change to January 2011.So you are not alone,you have joined many other people on this journey,because the carer has no choice,and some times is forgotten,because everyone worries about the person who is ill.
I use to worry about my husband,being very confused,plus lots of…[Read more]
Etta replied to the topic New to Forum in the forum Newcomers 13 years, 6 months ago
Hello all,
Been a while since I have been on, Etta checks the forum more than I do now (she's pinched my iPad off me too!) but she's still a bit shy about posting I think. 🙂
Just to give folks an update. She has been off her chemo now for a month with her levels at 22 ( I presume this is her para proteins?). Just had another bone marrow…[Read more]
tom replied to the topic Hi everyone in the forum Newcomers 13 years, 6 months ago
Hi Jerry
Your English is just fine, you will get help/advice and comfort on here.
As for your Father's treatment? well with Myeloma all Patient's are not on same treatment, what works for one may not work for another.
Regards
Tom "Onwards and Upwards"
eve replied to the topic Penny Lane in the forum End of Life and Grief 13 years, 6 months ago
Hi Susan
Thank you for posting about Sharon,i have been trying to find out how Sharon was as she was on Velcade the same as Slim,and i was wondering was it working for her,she helped me a lot with information.
Thanks again for posting,I wish her husband and young family all the best,Eve
andyg replied to the topic New Need to talk in the forum Carers 13 years, 6 months ago
Hi Teresa.
I'm feeling good now thanks. Just got in from a night out with my wife, brother and sister inlaw. I had a few beers, probably the most I've drunk since I was diagnosed.
I'm not going to comment on hair colour or style since I don't have either lol and that was before chemotherapy took its toll on me.
My wife and I have a few days…[Read more]
tom replied to the topic My husband has just been told he has got myeloma!! in the forum Newcomers 13 years, 6 months ago
Hi Pete
Am pleased you got it sorted out 😀
Tom