Hi Eve and Slim

I will be thinking of you all on the 8th May. Am sure it will be a good Celebration of Matt's Life I dont need to say "Think of the good times" as am sure you will be.

Love and ((hugs)) to you all.

Tom xx

Hi Ann

I have been trying to attach a copy of my drug regime so as you could look at it but it wont let me?? but as has been said phone hospital up it should be open 24/7 as they need to dispense Meds all the time 🙂

Good Luck

Hi Andy
Well done on the Bloods M8, and am sure the rev/dex will soon sort it out.

Keep strong and fit

Tom "Onwards and Upwards"

Hi Jerry

Sorry to hear your Father is poorly, I wish him well on his road to recovery.

Where Is your Father getting his treatment ?

Tom "Onwards and Upwards"

Hi Ron And Christine

I am pleased to read Christine continues to improve 😀 and as i am in remission I now only go to see the Dr every four months 😎

This Myeloma is a strange oneas I went through Zometa for 24 months post SCT. But as we all differ in treatmentr/side effects I should not be too surprised.

Keep strong

Love…[Read more]

Hi Bridget I, like the rest am so glad to hear from you. You have certainly been through the wars. Pray you go from strength to strength. Hugs xx
Jean

Hi Carol.
I'm on DEX time 😉 and also on facebook. So I've spent some time sending out friend requests. I'm on as Andrew Godfrey – same photo I think. So if anyone gets a strange friend request it could be me 😉

Take care all
Andy x

Hi Lexi.
I have multiple myeloma and my paraprotein level was 41 at last test! I started at 50 in oct 2011 and my paraproteins have proved a challenge to my medical team and I. The main thing to remember is everyone has a different journey and reacts differently to treatment. The target for me is to get below 10 and have a stem cell transplant…[Read more]

Hi Tina.
A warm welcome to the world of DEX. I've had my 4th round of DEX for my 2nd cycle of rev/dex therapy. It's 3:30am and I'm wide awake! I know I'll be sleepy all afternoon but as Tom says its worth tfe side effects for the good it does. I get chubby rosey cheeks too.

Take care
Andy xx

Hi Eva

Thank You for this, and I have posted it on Sue's Page so her contacts can see it.

When you next talk to Sue give her My Best and a Little hug from us all.

Thank You again Eva

Love
Tom xxx

Hi Tina

A warm welcome to Dex and am sure your good spirits will return 🙂 its worth the orf days to get into remission.

Dex is an evil little begger but worth its weight in gold if they could take out the side effects it would be Magic 🙂

Keep with it Tina and in no time you will forget you had to take it 🙂

Love
Tom "Onwards…[Read more]

Hi Bridget

Am pleased to see your doing "Well" you are going through the wars so am sending you a great big cyber ((((HUG)))

You should ask if you can have an Energy drink on scrip if you are struggling to eat.

I hope you are better before you go to clinic and wont need to use the bag 🙂

Love and loads of hugs ((hugs))

Tom xxxxx

Hi Deb's

Hugs to you its not easy putting a post like this.

Penny was an inspiration for me with the way she coped with her illness.

I did not know Penny aside from being an "Online Friend" and Like you all I am pleased to have Known Penny for such a short time.

RIP Dear Penny, The Lord has another Angel watching over us.

Tom…

Hi Teresa
CDT is usually the first line treatment of MM – well it was for me – and is cyclophosphamide, dexamethasone and thalidomide.
Hope your coping ok.

Love Andy xx

Hi All

Thank you all for your kindness it has helped over the last few days,as we have found it difficult even to mention it.So this did help.

We are going to have a celebration of Matty,s life on the 8th of May My daughter from NZ has come home,so although it is a time of sadness,there is a great deal of love and happiness around us as…[Read more]

Hi Lexi

I am up at this terrible hour,so i thought I would reply to your posting.

First may I welcome you,we are usually a happy bunch on here,who have either got Myeloma or are carers.

May i say,Smouldering Myeloma may never go into Myeloma,also some people have it for many many years,Ted on here is in his eighties and although his…[Read more]

Hi Pete

Well am sorry you had to start your treatment 🙁 to start with I will say listen to your body? yes it was only a couple of days ago you could run burn the candle at both ends and lift more than the other bloke at work BUT to be honest your treatment will take it out of you (but you will get through it) rest when your body tells you…[Read more]

Aww Bless Tina

Am sure that its not nice? But as My young bride can tell you I just suffer wind and its not trapped ha ha, but on a serious note I dont know what you would need to take to solve it.

Good Luck on the Burp side and burp away

Love Tom windy But "Onwards and Upwards" xxx

Hi Andy

Am sure its a worry but I like Dai hope its just a blip. Its a worry at times like this but am hoping it soon settles.

Keep Strong

Tom "Onwards and Upwards"