Karen Hemmings

  • tom replied to the topic Hello to All in the forum Newcomers 13 years, 6 months ago

    Hi Jacqui

    A warm welcome, I know we all will understand that its all new to you and you have gone through some of the post on here? then am sure you know we have great Folk on here that have and are going through treatment and am sure that what ever treatment you get/having some of us will have had it or be just in front of you, so when your…[Read more]

  • Hi all.
    As you may know I haven't been responding well to any of the treatments so far. Well I've just been called by my specialist nurse with my paraprotein result after my first cycle of Rev/Dex. Not good news my paraproteins are still being very stubborn and have actually gone up slightly from 38 to 41 not a lot but a big blow. I don't know…[Read more]

  • tom replied to the topic itchy rash in the forum Side-effects 13 years, 6 months ago

    Well what can I say my skin aint been the best I have dry skin (always have) so cant comment on it but I did have more of a body rash after sct?

    Hope Henry is soon sorted.

    Love
    Tom "Onwards and Upwards" xxx

  • tom replied to the topic I'm back. in the forum General 13 years, 6 months ago

    Hi Andy

    Welcome Back M8 I have had that twice Infection but nothing ever found?? strange thing this MM.

    Kepp strong and away from the hight temps

    Tom "Onwards and Upwards"

  • tom replied to the topic relapse first time in the forum General 13 years, 6 months ago

    Hey Sally you aint alone now you have joined our motley crew. and am sure we all know how it feels too many Q and too many forgot to ask its? put it all down on paper as the days go on and add as you come up with something you feel you need to know.

    And Trust me That "Old Sal" will soon be back with a vengeance.

    Love

    Tom "Onwards and…[Read more]

  • tom replied to the topic The Big Picture… in the forum General 13 years, 6 months ago

    Well mine looks Ok ? BUT is it ? Thanks Dai.

    Hope ur doing OK 🙂

  • andyg replied to the topic POSTBONED in the forum End of Life and Grief 13 years, 6 months ago

    Dear Eve and Slim.
    We are so sorry to hear of your sad loss. Our thoughts are with you and your family at this sad time.

    Love and hugs.
    Andy and Steph xx

  • andyg replied to the topic New Need to talk in the forum Carers 13 years, 6 months ago

    Dear Teresa and Pete.
    We are so sorry to hear your dreadful news. It knocked the wind from my sails. I don't know what to say other than you are all in our thoughts and we hope that you knowing that can in someway help. There's no need to reply but I do hope you get this message.

    Lots of love and good wishes.
    Andy and Steph XX

  • andyg replied to the topic Revlimid and Velcade in the forum Treatment 13 years, 6 months ago

    Hi Stephen.

    Welcome to the forum.
    The important thing to remember about mm and the fight against it is that everyone's journey is different. Drugs that work marvellously for one person fail to make an impression on another. I know I seem to be in the later group 🙁 Velcade didn't work for be and now I'm trying Revlimid and Dex with my…[Read more]

  • andyg started the topic I'm back.. in the forum General 13 years, 6 months ago

    Hi everyone.
    Just a post to let you know why I've not posted for a bit. Just over a week ago I went for my usual blood tests and my temperature was a little high 37.8. The next day I was there for my zometa and my temperature was higher 38.2 cue an examination by a doctor and a prescription for antibiotics and an appointment for the next day.…[Read more]

  • Hello Vanessa and Philip.

    Welcome to the forum. We are all friends here.

    Sorry I can't help you with your question. I was only diagnosed October last year and haven't reached a stage for a sct yet. I'm sure you'll receive an answer from someone who has had a similar experience as Philip soon. If not you could give Ellen a call on the…[Read more]

  • Hiya Ann and Pete.
    Welcome to the forum, none of us want to be here, but it's a friendly, supportive and informative forum.
    Sorry for the delay in welcoming you but I was in hospital last week and have only just recovered.
    I was diagnosed with mm oct 2011 after approx. 18 months of back trouble.
    If you have any questions ask away, either…[Read more]

  • Hi Vanessa and Philip

    A warm welcome to the group.

    Cant give advice on VCD as all I have had is CDT then SCT all done in 2009 and now am drug free.

    Just wanted to say Hi 🙂

    Love Tom "Onwards and Upwards" xx

  • Hi Duncan
    Sorry for not replying.

    You have a lovely dog,it will be a great help to you in your recovery,as you have to take the dog for a walk and this helps.

    We are based in Deal Kent,but Slim knows Bovi Sands well based in Torpoint, in 40 and 42 commando units once upon a time
    I have some problems not connected with myeloma,so will be…[Read more]

  • eve replied to the topic Revlimid and Velcade in the forum Treatment 13 years, 6 months ago

    Hi Stephen

    Sorry for not welcoming you to the site earlier,as I have had a few problems myself,its my husband who has Myeloma.

    They say myeloma is such an individual illness and everyone reacts different to the drugs involved,I can only tell you about Slim my husband.
    he was on CTD had 6 cycles and looked if he was in remission,bloods and…[Read more]

  • tom replied to the topic POSTBONED in the forum End of Life and Grief 13 years, 7 months ago

    Eve and Slim

    I am so sorry for your loss, I send our condolances to Matty's Family and Friends.

    Love and ((Hugs)) to you xxxx

  • tom replied to the topic Day one of CTD in the forum Treatment 13 years, 7 months ago

    Hi Tina

    Dont worry about the sleep in the afternoon I do that and am only 56 and not on any meds these days Ha ha.

    Keep strong and sleep often

    Love and ((Hug))

    Tom "Onwards and Upwards" xx

  • tom replied to the topic Revlimid and Velcade in the forum Treatment 13 years, 7 months ago

    Hi Stephen
    A Warm welcome to this forum, please take your shoes of and sit back and feel comfy.

    Sorry I cant answer your Q as I have not been on that, but am sure some one will be along and be able to give you the advice you need.

    Good Luck on your road to remission.

    Tom "Onwa

  • Dear Eve and Slim

    What an awful shock. I am sovery sorry to hear your terrible news. My love, thoughts and prayers are with you and your family.

    Love Jwan xx

  • Hello Everyone

    Just to let you know what is going on.
    Slims SCT was suppose to start on Tuesday,but my grandson Matty died on Tuesday morning,it was felt everything would be too much.Eve

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