Hi Carol
Were have you been??? not heard from you for awhile .Hope it was sunny were ever you were.8-)

Hi Mari
Have nothing to add about Velcade.
Did Steve only get enough stem cells for one chance,from what I can see for allo SCT,you would have to convince them its viable.They like a back to back ,your own sc then a few months later a donor .Eve

Hi Helen its a mine field and it should be made simple for those of us that have a Terminal Illness 🙁 I mean how bad do you have to be to get good Money of the state, money that we have paid in :-S

Good Luck with it all 😎

Love
Tom "Onwards and Upwards" xx

Hi Sue

Yes Bridget has been fighting a chest Infection and does not feel like getting on computer as often, I leave Bridget messages on Face Book and when she feels up to it I get an answer 😎

I will send one and tell her you were asking about her. failing that come on over to face book we have a few from here on it 😀

Love Tom…[Read more]

Hi Jean

Sorry to hear Frank's blood's are not right :-/ as for me I aint a clue to be honest just wanted to wish you and Frank well.

Love
Tom "Onwards and Upwards" xxx

Helen
You just go and have a wonderful time,if you have not seen your sister for a long time you are going to find it very emotional too.Love Eve

Hi Helen
Looking at Elaine,s reply,I cannot help but think she has it just about right,we would all like to think that people will get a good run of collecting there pension,but it does not work that way.!!
As for the fact they are more concerned about your blue badge,well every company has to fill there disabled quota,you will then tick one of…[Read more]

Hi Eve
My blood tests came back good – hopefully when they check my paraproteins next week we'll see some downward movement – however I'd been feeling a bit under the weather since Monday and my temp has been rising. It was 38.2 today so after my zometa they did all sorts of tests to find the source of the infection. They think it could be my…[Read more]

Hi Teresa
I hope the hospital visit goes/went well. I was. At hospital today hmm yesterday now for blood tests. They came back ok. Though I did have a raised temperature – more pills to take.
I enjoyed reading your son in laws brewery website it's well set up and informative.
I'm happy to see he's brewing Belgian beers they are a particular…[Read more]

Hi Michele
How are things going,did your husband make any decisions concerning whether to go for SCT??
How are things going in general.Eve

Hi Andy
I have the same problem,and I am not the patient,cannot blame the Dex:-P
Wake up, and just cannot get back to sleep,usually play scrabble with my daughter in NZ but she is not always available as its 3pm over there.

How did the visit to the hospital go,??? Eve

Hi Tony
Welcome to the group. You'll find out most things you need to know from your friends on this forum. Everyone's story is different and everyone's journey is also different. If you get stuck for advice then there's the helpline.
I myself was diagnosed in oct 2011 so I've not long started my journey. It's been a bit bumpy so far for me.…[Read more]

hello Tina, Yes I started the myeloma X1 trial last monday, had a bowl of porridge, then took the tablets with water, included a soluable aspirin and the anti sickness tablets, then took the dog out across the countryside for an hour and half, fell asleep in the afternoon, did the same again today, tuesday. So far no disasterous side effects.…[Read more]

Hello Badger, thanks for the welcome, cant say that I am pleased to be here, but bowled over by the support. started the myelomw X1 trials on monday morning, so far no disasterous side effects, long may it continue.
thanks again for the welcome, tony

Hello Dia, thanks for the welcome, no doubt we will swop stories over the coming months, good luck and thanks, Tony

Hi Susie

Thats Good News for you then, the four month check is good.

Keep strong and well.

Great Job 😀

Love Tom "Onwards and Upwards" xxx

Hi Eve

I have an iPad and I downloaded Kindle free from the App store. I set up an account with Amazon and get my books within seconds. They are usually cheaper than hard copy.

Jo hope things are good with you.
Best wishes
Jean x

Hi Tom
Thanks for info,do not have a kindle but do have an i pad ,so will look on there.
Good to see you are doing well,try not to worry about smm.why worry about it if you cannot do any thing about it,Ask for an I pad for next Christmas they are amazing. Love Eve

Hi Wendy
I thought the Myeloma X1 trials were world wide with all data being combined and results published world wide,to come up with results that will eventually be accepted as given results of CTD against RCD.May be I am wrong.Eve