Dia

Jo has voiced my thoughts as well about the Forum. Would be lost without it. Hope the pain has eased.

Love Jean x

Hi Stephen

I am so sorry to read about your Wife I send My Condolences to you and your Family.

And well done to you all for raising that ammount of money for us all.

Stay Strong and remember the good days

Regards

Tom x

Bloomin heck Dai I bet that was scary :-0 I am pleased Janet was on the ball 😎

I have always been told if I feel Unwell then I should phone the ward up and talk to them and they will make the decision whether to pop up or stay at home, I have used that adout three times so far and it works for us 😎

Hope all goes well for Tomorrow Dai…[Read more]

Hi Teresa
DT PACE well the DT part of it is the usual dexamethasone and thalidomide (tablets). The rest was Cisplatin , Cyclophosphamide , Etoposide and Doxorubicin all given as an infusion 24hrs/day. Not sure how it equates as "pace" but there you are.
I've enjoyed Easter thanks – we've been out and even had a few drinks…[Read more]

Hi Bridget
I come out with things all the time,and my kids think I am daft as a brush,I put it down to me being a Liverpudlian ,and my children are Southeners.

They do say I am sounding more like my late mother every day,having three girls I get the last laugh as slowly they are all sounding like me,specially my oldest Ruth who has two…[Read more]

Hi Gina and sister
Lovely to hear from you,and to see you are moving on with your lives,that,s what your mum would have wanted,lets hope this less crying days as as this is also what your mum would want.
I think you feel it more on days like mothers Day and birthdays,the knowledge you can no longer pick up the phone and have a chat.

As you…[Read more]

Hi Stephen

My heart goes out to you,mainly selfish because I know one day I am going to be in the same position as you,I hope that does not seem unkind,why has it taken you so long to find this site,people on hear understand exactly what you are going through,some have already been there,and others are preparing themselves,but hoping there is a…[Read more]

Hi Ian

Swollen ankles,sounds like water retention ,Slims ankles became very swollen on Velcade,had to buy socks with loose fitting at the top.only just managed to fit into his boots,I use to massage his feet and legs which gave him some relieve.
He did not have PN until he finished Velcade,he only has it sometime,s I think it is just a…[Read more]

Hi Teresa

I would say lots of deep breaths are needed,you do not say if you have any support from children or friends,this is a time for some help.even if you can just have a few hours break ,to recharge your batteries.If you just need to chat come on here,someone will all ways reply:-)

Lets hope for some new treatment soon.Love Eve

Morning Mavis

My we are going through the wars 🙁 but going the correct way 😎

I wont be In Chapel today But I will say a prayer for us [u]all[/u] Today and hope that it helps us all am sure today is the day he will listen 🙂

Tell Gordon that you are correct its a temporary loan you are having with the stuff.

Mavis I was on CDT…[Read more]

Hi Dai

I think you have said what a lot of people feel,you see so many people coming on here for advise help or just to explain how they feel,some never to be heard from again,and some just can not cope with the whole process,and as we have both said some who cope for years and then just post. I would not pretend to know why they post and we…[Read more]

Hi Mavis

I must have missed some of your posts as I did not realise that you were having such a rough time of it. Glad that things are heading the right way. I will keep you in my prayers. Hope you have a great Easter.

Love Jean xx

Hi Stephen

I am so sorry for the pain that you are going through. It was good that you were able to spend a lot of time with Dawn. I am sure that you have lovely memories that will give you comfort. My husband Frank, was diagnosed with smouldering Myeloma in September 2006. Only treatment he has had is Zometa. He has good days and bad ones.…[Read more]

Dear Michelle and Stephen

I am so sorry to hear of the passing of your loved ones. I am a career for mtyhusband who has this horrible illness. My thoughts are with you both at this terrible time and hope that your good memories will see you through the hard times

My love to you both
Jean x

Morning Dai

I have had same over the months and told my Consultant and he checked me over and put it down to 1)Old age ((ish)) and 2) just doing too much and he tells me its not MM related so I will go with that. same symptoms as you Dai that bad toothache but in shoulder (right one) and down the arm, if I stretch the arm I get a sharp pain…[Read more]

Hi Teresa.
I was diagnosed Oct 2011 but I think my symptoms started 18 months previous. The usual back pain treated by the doctor with pain killers and Physio.
On diagnosis my paraproteins measured 50 after 4 cycles of CDT my readings only dropped to the mid 30's. I was then moved onto PADS (Velcade). I had 2 cycles of that with no movement in…[Read more]

Hi Gina

Great to hear from you 😀 and am very pleased you are all doing OK 😎 yes am sure the "Crying Days" will get less and less over time, but thats not to say your memory of your Mum will get less you will just remember the good days 😎

Keep going strong, you are doing a great Job

Love and Hugs Tom xxxx

Hi Sarah and Henry

A well done to you both, keep it up and Henry will soon be (near) back to his old self.

Love and Hugs

Tom "Onwards and Upwards" xxxx

Hi Kay

Well am afraid Dai is correct and he keeps his money am sorry to say.

I had my SCT in Dec 2009 and I still get tired and I mean Real Tired.
so a sleep when your body tels you to and not think am all done its been X number of months, take your time an no rush

Good luck with the hair Lol xxx

Love Tom "Onwards and Upwards" xxx

Hi Nicola

I am pleased that your dad had a great send off, over 300 folk now that a big gathering as you say your Dad was a great man and having 300 plus at the wake is a tribute to your Dad.
Keep strong and Good luck with your Fundraising
And Its Ok to carry on through the nite 😀

Love Tom xxxx