It is so great David reading posts like this. Im sure it gives everyone a lift. Good on you – long may it continue.

Love Jean x

Hi Jo

Good to hear from you. How are you doing? Hope all is going well for you. As usual Frank is driving me nuts – but love him dearly. Waiting for appointment for CAT scan. Still has pain is side. Some days he's good and others – bad form. Must be feeling good today as we are going out for dinner. We have had fantastic weather all week…[Read more]

Hi Steph and Andy

I am sorry you have had to join our "club". I am a carer to (hate that word). My husband Frank has MM diagnosed in 2006. They are truly a great bunch here, you will get friendship, support, advice comfort and hugs. It has been my lifeline and I know you will get a lot out of it. Ask anything and I'm sure someone will have…[Read more]

Hi Steph

A Warm Welcome to the group, am sure you know by now that this "Mob" will help you get out of any Low Ebb that the MM has and will cause you and Andy to have we tell them to keep chin up (chins in my case)

As you know we tell people carers and MM'ers to take it one day at a time.

Not forgetting to rant and rave on here if the…[Read more]

Now Mavis look what you have gone and done? I leave you for a few days and you go and throw yourself in the Hospital :-0.

But seriously I am so sory to hear that you have done a decline, but trust me Girl you are one that will throw that rope up high and drag yourself back up to top form (well mm top form) again.

You are in the correct place…[Read more]

Dear Mavis

I am sorry to hear that you have had a really hard week and such a bad time. My thoughts are with you, keep positive. God bless
Love Jean xx

Thank you Dai your words, they are beautiful and I'm so glad you you shared them. Thanks Tom you are always there with hugs and there is nothing as comforting than a hug.
Love Jean x

Hi Terry

I also have been sat at a window when the sun has been throwing itself and its heat straight at me an had a "Snugglr Blanket" "other brands are aslo available lol) wrapped around me. yes i have (and still do) used a thermal vest in cold days (works a treat) as i cant see any point of feeling cold when you can buy borrow or nick( please…[Read more]

Jean

I am so pleased that the day went well and the service was what Derick would have wanted.

Take Care and am sending (((Hugs))))

Love and Hugs

Tom xxx

Hi all

Thank you all for your lovely words. Derek was buried yesterday and if a funeral can be described as "nice" – it was nice. Derek's neighbour is a lay preacher and they had been friends since Derek moved in 14 years ago. Billy knew Derek very well and he conducted the proceedings. It was nice to listen to someone who really knew him.…[Read more]

Hi Ian

Well done M8 am pleased that all is going well for you 🙂 and am sure the side effects will get better as time moves on.

I never (touching wood) never suffered with GVHD? and if i did then I didn't know about it 🙂 you do right keeping fit and away from the hospital, Long may it continue 🙂
Thanks for the Good News Ian it's…[Read more]

Hi Janet

Its a Bugger but I have had a cough and (forgive me) a lot of flem (uck) since i found out I had MM :-/ so it might be one of the symptom's when I think about it? anyways with my cough Elaine (the young bride) knows where I am in the shop lol.

Hope your soon better

Love and cough treatment
Tom "Onwards and Upwards" xxx

Hi Dai

Janet sounds a very lovely Lady and that am not surprised nor shocked as am sure you are a true gentelman and would only marry a Lovely Lady 😀

We know how you and Janet feel about Kids (gran or own) and you know how Elaine (the young bride) and I feel about ours what with all the photo's i have posted on F/B 😀

Our three…[Read more]

Hi Kirsty

Like the others a warm welcome to this great site?

Sorry you had to join us but as away now you have opened the doors 🙂

As for your first one the advice i can give so far is take it slowly and one day at a time, lots of members here going and gone through what you are about to do.

I cant advice YOU what to do but I can…[Read more]

Lol Dai as am sure you know I am (or was) a hairy ass docker so am now up to speed on that Lol.

And same goes for you Dai if you feel with the help of your brother that you could do the trip then I for one (and you for two) would say go on lad get on with it, you will enjoy it, it might be better to hire a Cmper van as you could stop and sleep…[Read more]

Ditto to that Dai, and it looks like she is very active and keeping herslf busy.

Well A well done you lot, and a well deserved trip to france I must say 🙂
Now I can uncross my fingers Have a great time and just give us a little thought when you are away 😎

Love and Hugs

Tom "Onwards and Upwards" xxxx

Ps Am not sure what Dai Means??:-P

Well Eve you certainly aint any of the above 😀

As I said in Last post I had mine all done prior to SCT some at the start of treatment some nearer my SCT , but am not sure anyone can say whats Normal with our Consultants (as good as the are) they all work in a different way.

Good Luck and hope you and Slim dont have anymore Hiccups…[Read more]

A Well done that Dai and his new Friends. Its looking good dai and am sure your (The next comment will be copied and pasted :-0 ) Red Blood Cells (HGB) have dropped a full point from 10.7 to 9.8 and my Neutros are down a bit from 4.0 to 2.6 since my interim bloods a fortnight ago but my White Blood Cells (WBC's) at 5.0 and my Platelets at 147 are…[Read more]